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Old 02-23-2004, 11:31 PM   #1
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Exclamation Reactive hypoglycemia-reaction THIS SOON AFTER?

I posted a thread the other day about having severe reactive hypoglycemia to the point where I can't function at all anymore and have an endocrinologist who absolutely does not believe in hypoglycemia (even reactive) if there is no diabetes and will not even perform any tests since my fasting bg is not under 50. I need to find a new endocrinologist, obviously. Anyway, every bit of information in the hundreds of pages on the internet about reactive hypoglycemia say that a reaction occurs 15-20 minutes-3-4 hours after the food was eaten. Now, for me, it seems that I have a severe reaction in 5 TO 10 MINUTES after a consume a food containing ANY CARBOHYDRATES AT ALL, even a VERY time amount. It's like I consumed poison. I also have a reaction 3-4 hours later, but it feels SLIGHTLY different. I feel weaker. Is this typical of reactive hypoglycemia to have such a strong reaction so quick or is this a symptom of something else? This is really scaring me, because it's literally almost an immediate reaction of heart palpitations, confusion, shakiness, cold sweats, stomach distress and other symptoms.Has my reactive hypoglycemia just gotten so out of control I cannot handle ANY carbs do you thinK? I appreciate any responses, I'm only 19 years old and am sick ALL DAY NOW and can barely think clearly at all anymore
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Old 02-24-2004, 07:45 PM   #2
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Re: Reactive hypoglycemia-reaction THIS SOON AFTER?

This is where is gets tricky. When someone talks about doing a 2 hour posprandial blood sugar, they are talking about 2 hours after the START of the meal. It is easy to think that you can do it after you finish but some carbohydrates start to affect your blood sugar almost immediately. So, when you see that you can start having a hypo reaction 15-20 minutes after you eat, they are not including when you started eating.

Some people, myself included, get a carb surge when they eat. I can actually feel changes. On the other hand, and please don't take this wrong, there are other conditions that can cause these symptoms including psychosomatic conditions. If you have had all of the blood work done including hormone levels and thyroid function, you might want to look elsewhere for the root of the symptoms. Good luck
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Old 02-24-2004, 07:53 PM   #3
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Re: Reactive hypoglycemia-reaction THIS SOON AFTER?

Try using a glucometer and remember test before and 2 and 4 hours(ADA) after( or every 15 minutes after eating-). Keep a record of how many grams or ounces you eat and what you eat. Take that to a doctor(endo?). Remeber Glucometer readings should be judged as +_10-20%, and if you can, always use a control solution that reads about 100 mg/dl. to see if your meter , strips and battery system are in control!(if you meter is out of control you may think you out of control by mistake!)
I find if I read every 15 minutes, there is always new information and answers. But I don't do this very often! Only with a new food (and untested volume in grams or ounces). All I can say is this is very effective for me.(...ouuch!)

 
Old 02-24-2004, 07:54 PM   #4
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Re: Reactive hypoglycemia-reaction THIS SOON AFTER?

Mommy of 4,
Thanks for your reply. I actually didn't get all the blood work done yet. I actually was extremely angered after I left my appointment with the endocrinologist I saw because she didn't believe that I could possibly have hypoglycemia unless I had a tumor and says it doesn't exist without diabetes blah blah blah. Anyway, I've actually only taken my OWN blood sugar with meter I bought at the pharmacy. I realize that many hypoglycemia symptoms are the same as anxiety symptoms and so on, and I would definitely look into it being psychiatric if I wasn't soooo ill. And although I've been eating, I even fainted twice this week and avoided fainting once by eating sugar. AND that was after a meal 30 minutes prior of all protein. It doesn't make sense to me. Anyway, thank you for that information because I can also feel rushes while eating the carbs. Interesting. Now I understand. Thank you so incredibly much for taking the time to reply!
Sincerely,
Katalina
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Old 02-24-2004, 08:05 PM   #5
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Re: Reactive hypoglycemia-reaction THIS SOON AFTER?

Ok, this is where I get really angry!! The Hippocratic Oath is all for not if the Dr's cant hold on to "First do no harm" By not testing you at all, he could be putting you in a dangerous postition. This is the equivalent of a Dr who says "I see you have what's going around" before you have ever had the chance to tell him what is going on!!URGH

I would definitely be on the lookout for a new Dr. Maybe eating 5-6 small meals a day would help since you wouldnt have a large load of carbs at one time. Good luck and thanks for clearing things up
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Old 02-24-2004, 11:09 PM   #6
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Re: Reactive hypoglycemia-reaction THIS SOON AFTER?

wa5ekh,
That sounds like a really good plan, and I'll do that. Right now I have money for more test strips, too. They're not horribly expensive, but I thought they were extremely cheap and I was wrong. Oh well. They are absolutely necessary. I read somewhere that my blood sugar will be HIGHER in the morning and LOWER in the evening if I have REACTIVE hypoglycemia. Do you know if this is true? Also, what is considered a dramatic drop in blood sugar levels? I was wondering if it's possible for you to give me an example of what I could possibly expect. I know the numbers are different for everybody, but I was wondering if you could give me an example of one of your "low" numbers so I could see how low it dropped to. Like, is a dramatic drop in blood sugar going from 98 to 80? 98 to 87 in 15 minutes? I'm sure that once I start charting that I'll see a pattern, but I'm just curious as to know what to look for. During the two days that I took my bg levels, they were always between 90 and 112. That was also about a month ago when symptoms were a little better than they are now. Thanks so much.
~Katalina
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Old 02-25-2004, 08:01 AM   #7
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Re: Reactive hypoglycemia-reaction THIS SOON AFTER?

Hi Katalina, When I had hypoglycemia, my reactions came like clockwork 2-3 hours after I ate. Early on, it was occassional, but as the condition worsened it happened with EVERY meal. You say that your reactions are coming 10 minutes after you eat... are you sure they are not coming 4 hours after the previous meal? If you are eating smaller more frequent meals, this could very well be the case. If you are writing down everything you consume, including the times you eat, you should be able to see the patterns. Try to look at the big picture not just the immediate.

Also, from my experience (being VERY allergic, previously hypoglycemic, and now diabetic) it seems that a reaction that close to the consuption of food could be an allergy. But you have to realize that when you are hypoglycemic or diabetic, a million other things in your body are not working well. So you could very well have multiple things going on at the same time. For example, a liver malfunction could cause you to overproduce sugar - if you have a liver problem combined with hypoglyemia, your pancreas is going to be producing insulin like crazy, and at sparatic times. Regardless, you need to get a diagnosis so you can start to get well.

I would immediately fire your Endo. She's not doing you any good. Its possible that because she is a specialist she is not willing to discuss anything she does not treat (not a good excuse, but very possible). Call your local hospital and find out if there is a diabetes education center. If so, try calling them and asking for advice on where you can go for help with diagnosing and treating hypoglycemia. They may be able to steer you in the right direction.

Also, I got the scoop from my Mom about the clinic I went to. I can remember if their name was North Shore or North Nassua Mental Health Center. She said that they started off as a "mental health clinic" but the more they started to work with patients, the more they found that nutrition, allergies, and blood sugar problems were causing all the the problems, not actual mental illness! So their expertise shifted into the areas of nutrition and diet. They became well-known for specializing in the diagnosis and control of hypoglycemia.

Just wondering... have you tried any of the suggestions I made in the other post? I think I posted some links for you about elimination diets and how they can help you uncover a variety of problems.

 
Old 02-25-2004, 10:47 PM   #8
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Re: Reactive hypoglycemia-reaction THIS SOON AFTER?

jdmassimo,
Thanks for MORE support, this is awesome. I'm so glad everyone is giving me all of these wonderful suggestions. It seems my reactions happen with every meal now, too. I don't think I'm having allergic reactions just because of the way it feels. I know a few of my food allergies, and although all reactions are different, it doesn't FEEL allergic, and always has to do with food, so I think all or most of my reactions are definitely hypoglycemic, but the bad allergies aren't helping. I always try to eat throughout the day, but I don't think that doing that was even enough. Today, I started charting my bg levels again and planning small meals EXACTLY every two hours and actually seem to be having a LITTLE less of bad day than I usually have. I'm definitely firing my endo because I need someone who is going to work their hardest to help me and that truly understands hypoglycemia. I'm going to look up that clinic that you mentioned (someone else mentioned that clinic, too) and in the meantime, I'm going to make an appointment with the endocrinologist at Yale-New Haven Hospital. I'm also going to call to find a diabetes education center, that's a great idea. I haven't tried an elimination diet yet. I have an appointment with an allergist coming up, so that may help me. I tried eating completely carbohydrate free and passed out the other day, even after a large serving of protein, so that didn't work out for me. Right now, I'm not really eating a large variety of foods. I'm actually eating a diet that's quite high in fat and quite high in protein. I mostly live on cheese, cold cuts, soup, eggs, vegetables, and very few carbs, some sugary yogurt sometimes, and mostly plain yogurt. Sometimes, I'll eat potato or corn products, but not often. I'm just lucky I *still* have a fast metabolism and am not really gaining any weight on top of all of the stuff. Interestingly enough, it seems that my blood sugar problem got 200 times worse after I quit smoking in the beginning of January. I suppose it's because I was smoking quite a bit and the drug interaction of cigarettes raises blood sugar levels, right? I almost wished I still smoked if it would help my blood sugar NOW, but obviously, as we all know, it's not helpful for the future. Plus, I was underweight and much more unhealthy as a smoker in other ways. Anyway, I hope I find a pattern of some sort with all of this charting and monitoring. Oh, also, how long after you had hypoglycemia did you develop diabetes, if you don't mind me asking?
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Old 02-25-2004, 10:49 PM   #9
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Re: Reactive hypoglycemia-reaction THIS SOON AFTER?

Oh, one more thing. To anyone who has hypoglycemic reactions- does anyone get TERRIBLE stomach spasms, indigestion, or severe acid reflux during a reaction? For me, the acid reflux is the worst and it's only when I'm having a reaction. Prilosec, Pepcid, Zantac, Tagament, Tums, Mylanta, Pepto, NOTHING helps except re-stabilization of blood sugar level.
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