Re: Hypoglycemia & Pancreatitis
what i am wondering here considering the overall length of time you have simply been really suffering with this hell, have you ever actually seen a good GI doc that could be soo helpful in soo many ways here? the one test that would help alot here since this IS the only type of test where they can actually even fully visualize any area within that upper GI would be with whats called an ERCP? have you EVER actually had one done? and ERCP is really the very first initial test they did on my son the day he vomited up blood at school one day out of the blue. that is when we even had a freaking clue that he was actually even sick? no jaundice or anything that would have led anyone to even think he was anything BUT healthy actually. but that ERCP gave them a great 'inner' view(it simply uses a tiny camera at the end of a scope that goes into those areas using also a very very bright light) of like everything in that upper GI including the head of the pancreas. what other types of real testing have they done here just to actually determine what the heck is triggering this in you? that would be very helpful for me to know just to try and help you?
simply actually doing the right testing is what is going to bring them much closer to a real solid Dx of what the heck is going on with your pancreas. testing and ruling things in or out is what matters when in that diagnositic mode in any medical type situation. just what have your overall hepatic labs been like so far, anything not within the norms there or only the pancreatic enzymes? ya know, the one insane thing that thye actually found after the interventiaonal rads kept trying like hell just to even get a drainage tube into ANY real bile duct with our sons liver just being soo heavily hard from the formnation of fibrotic tissue? was that he actually has two totally seperate pancreases. who knew? it was not til one of the IRs they called into try since he was an actual ped IR actually just saw what appeared to be a real 'opening' in the areas he wa actually abke to get into and figured he woulkd just shoot some dyt into it that it was actually seen forthe very first time? that 'mini' pancreas was where HIS inflammation actually was, just wondering if this could also be an issue with you too? it occurs when we are younger where there is kind of a 'wall' between the two areas within that pancreas that as the child grows, that wall is supposed to go away and not be there anymore? well his never went away for him and essentially created two totally independant pancreases. the only real way to even see this would be with that ERCP being done where theycan just actually 'see' in very real time what it is they are looking at and possibly even seeing for the very first time anything that could have been a simple congenital abnormality. no real 'scans, even the best contrasted type of MRI will just natually even be able to fully pick up every single even tiny abnormality or finding in anyone since it is just ONLY a scan of an area and not like a good clear 'kodak' moment, ya know what i mean? that ERCP really would just show the area that NEEDS to be much more clearly visualized with someones trained and experienced eyes. even if you have had one in the past, just considering the constant inflammation that has been going on there for quite sometime would just possibly pick up something that was not even there or actually even 'seeable' previously that just could be now kind of thing?
i just personally given what occured with my son and what i just came to learn about alot of these types of upper GI tests thay did, seriously feel that just even doing the ERCP would probably show things to your docs in the very best possible way right now. have they ever done what just IS a very specific and highly sensitive test on your bile ducts called a GGT? this would show ANY possible real inflammation/possible smaller infection even within any of the real bile duct structures that could very easily be impacting the pancreas thru a very direct connection with that common bile duct that attatches at the very head of the pancreas? just another type of add on test that is not usually ordere when they simply order the standard hepatic panel to be done?
you just seriously do need and deserve some really solid answers here and a real Dx after all you have had to endure with this. believe me i DO know way too much just how truely excruciating the pancreatitis can be. its just even doing the 'right' types of testing and ruling things in or out that is going to hopefully bring you that real dx at all right now. good luck and do see about that ERCP,espescially ifthey have never even done this on you yet. keep me posted legal, **
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