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Old 03-06-2010, 11:27 AM   #1
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Hypoglycemia & Pancreatitis

Doctors are STILL working on figuring me out. Lol. Pancreatitis and hypoglycemia, what's the relation? If any. I definitely have chronic pancreatitis, levels roller coaster all the time. Now they're thinking I'm hypoglycemic. (Not diabetic, already had my fasting glucose checked).

 
Old 03-07-2010, 09:31 AM   #2
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Re: Hypoglycemia & Pancreatitis

its becasue that pancreas just IS what really regulates your overall blood sugars by the release of insulin when your body somehow just 'senses" that need for more sugar or insulin at all kind of thing? something must be a bit haywire with certain signals not being "right' within that sensing area/mechanism that triggers realease.

just how long has the actual pancreatitis been going on and what have your pancreatic enzymes been looking like during this period? the amylaise and lipase are the main pancreatic enzymes of this organ and would show higher than norm with ANY inflammation if one just has pancreatitis at all. my youngest son went thru that nightmare while he was going thru liver failure back in 1999-2000. not fun. have they tried ANY real meds at all to try and 'right' the pancreas at all yet? simply really finding out just what the underlying cause of the panreceatitis actually is, since it can be caused by many different things, really IS the key to get the best and more appropriate types of actual treatment. just what type of specialist are you seeing for this at this point? and are you actually obtaing EVERY single lab sheet or any other testing results that have been done on you too? if not, you just really do need to be also doing thisd everytime something is just tested and it generates that "report". just so YOU can see how your labs are "trending" along with how the interpretting rads are seeing your main problem areas too. just keep everything in some type of expanding folder type thing? this is what i ended up having to do with our son,and when MY crap started hitting the fan, i had tos tart doing this for me too. this info just can come in sooo freaking handy for certain things at certain times, espescially if you should ever actually ahve to make an ER run with what you just have? all you do is grab that folder with ALL of your good baseline info in it and go. the ER docs would then have that good solid base to work from just knowing where you were and are now kind of thing? i also take these folders to every single doc appt my son and i have as well. just some helpful tidbits for ya that really helped me to try and stay on top of all things here. i do hope they can figure this all out for you soon. please keep me posted as to what you find out, K? good luck, FB
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11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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Old 03-07-2010, 01:21 PM   #3
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Re: Hypoglycemia & Pancreatitis

Thanks so much for the response. I really appreciate any helpful and positive feedback that I get through this board. =)

In 2007 I had to have an emergency procedure to have kidney stones removed (after local ER sending me away twice saying it was cramps...) My mother's head of micro, so I get to see ALL of my bloodwork. Noticed elevated lipase and amylase levels at that point. Over the next few years I had incredible pain along with the roller coaster of the levels. GI just said "take out gallbladder" without seeing labwork or scans...

Went to my "natural health" doctor, who has been tremendous help. He has treated many issues that other doctor's have chose to overlook. Other than these "crashes" I have now (which come with headaches and fatigue) I am a whole new person. Probiotics have made the intense pain stop, I did antivirals for a while to control the EBV my body was always fighting. But the pancreatic enzyme levels still aren't normal.

As far as the crashes, I've been thinking lately and I believe I've had this problem at least 10 years, possibly more. But its worse lately. I get what I consider food headaches, but I'm not hungry. I've started eating a giant spoonful of peanut butter when I feel this way, and guess what it helps! But its only temporary.

So what's next? Endocronologist? Is there any help or treatment if hypoglycemia is the issue?

Thanks again!

Last edited by legalrun; 03-07-2010 at 01:23 PM.

 
Old 03-08-2010, 09:58 AM   #4
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Re: Hypoglycemia & Pancreatitis

what i am wondering here considering the overall length of time you have simply been really suffering with this hell, have you ever actually seen a good GI doc that could be soo helpful in soo many ways here? the one test that would help alot here since this IS the only type of test where they can actually even fully visualize any area within that upper GI would be with whats called an ERCP? have you EVER actually had one done? and ERCP is really the very first initial test they did on my son the day he vomited up blood at school one day out of the blue. that is when we even had a freaking clue that he was actually even sick? no jaundice or anything that would have led anyone to even think he was anything BUT healthy actually. but that ERCP gave them a great 'inner' view(it simply uses a tiny camera at the end of a scope that goes into those areas using also a very very bright light) of like everything in that upper GI including the head of the pancreas. what other types of real testing have they done here just to actually determine what the heck is triggering this in you? that would be very helpful for me to know just to try and help you?

simply actually doing the right testing is what is going to bring them much closer to a real solid Dx of what the heck is going on with your pancreas. testing and ruling things in or out is what matters when in that diagnositic mode in any medical type situation. just what have your overall hepatic labs been like so far, anything not within the norms there or only the pancreatic enzymes? ya know, the one insane thing that thye actually found after the interventiaonal rads kept trying like hell just to even get a drainage tube into ANY real bile duct with our sons liver just being soo heavily hard from the formnation of fibrotic tissue? was that he actually has two totally seperate pancreases. who knew? it was not til one of the IRs they called into try since he was an actual ped IR actually just saw what appeared to be a real 'opening' in the areas he wa actually abke to get into and figured he woulkd just shoot some dyt into it that it was actually seen forthe very first time? that 'mini' pancreas was where HIS inflammation actually was, just wondering if this could also be an issue with you too? it occurs when we are younger where there is kind of a 'wall' between the two areas within that pancreas that as the child grows, that wall is supposed to go away and not be there anymore? well his never went away for him and essentially created two totally independant pancreases. the only real way to even see this would be with that ERCP being done where theycan just actually 'see' in very real time what it is they are looking at and possibly even seeing for the very first time anything that could have been a simple congenital abnormality. no real 'scans, even the best contrasted type of MRI will just natually even be able to fully pick up every single even tiny abnormality or finding in anyone since it is just ONLY a scan of an area and not like a good clear 'kodak' moment, ya know what i mean? that ERCP really would just show the area that NEEDS to be much more clearly visualized with someones trained and experienced eyes. even if you have had one in the past, just considering the constant inflammation that has been going on there for quite sometime would just possibly pick up something that was not even there or actually even 'seeable' previously that just could be now kind of thing?

i just personally given what occured with my son and what i just came to learn about alot of these types of upper GI tests thay did, seriously feel that just even doing the ERCP would probably show things to your docs in the very best possible way right now. have they ever done what just IS a very specific and highly sensitive test on your bile ducts called a GGT? this would show ANY possible real inflammation/possible smaller infection even within any of the real bile duct structures that could very easily be impacting the pancreas thru a very direct connection with that common bile duct that attatches at the very head of the pancreas? just another type of add on test that is not usually ordere when they simply order the standard hepatic panel to be done?

you just seriously do need and deserve some really solid answers here and a real Dx after all you have had to endure with this. believe me i DO know way too much just how truely excruciating the pancreatitis can be. its just even doing the 'right' types of testing and ruling things in or out that is going to hopefully bring you that real dx at all right now. good luck and do see about that ERCP,espescially ifthey have never even done this on you yet. keep me posted legal, FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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