Hi Triples and PP,
Triples, your story sounds very much like mine. I was diagnosed with both AIS and CIS last Friday and had the conization biopsy on Monday...now I'm just waiting to hear back!
I always had normal PAPS, and even was told I didn't need to get them every year! This was the first year I skipped a year. Go figure.
So, I was hoping to have a surprise baby, too (you're lucky!), but I think that's a dream of the past now. I will get the hysterectomy either way...if they find more or not. I asked my dr. how we could be sure it doesn't spread elsewhere, and he said you really can't be sure. Not the answer I was hoping for. I'm going to try to see an oncologist no matter if the results are good or not, just to make sure we're doing everything we can to reduce that risk, though. I sure don't want it in my bladder or colon. I think I'm okay with sacrificing the uterus, now, though. Doesn't seem so bad compared to everything else.
They say cervical cancer is slow-growing, but mine has jumped all the way from nothing to CIS and AIS since my last pap 2 years ago...so it isn't ALWAYS the case. Especially if you read these boards! Some people are even faster than that. Someone's gotta beat the odds, right?
You're not alone! Hang in there!
I haven't seen an oncologist, yet, but am planning on it. I'm not sure where you are located, but there are a few gyn.onc. in Denver. There are none in Colo. Spgs., where I am. The one I contacted in Denver only does surgeries, though?? So, they were scheduling me to just see another general oncologist up there instead. I figured I could stay in the Springs to see an oncologist. So, depending on the results, I might just find one here. If the results are really bad, maybe I'll try to get into the gyn.onc. in Denver...they'd probably be more likely to see me if I really need them to, after the results are in, anyway.
I just went on my health insurance's website and searched for oncologists, then looked through their site until I found a gyno.oncologist. There aren't really very many to choose from! So, I think the few there are probably are okay, since they get all of the business/specialized cases.
I'll let you know when I find out anything...or any dr.'s names...where are you at, anyway? What's your diagnosis, if you know yet and want to tell me?
Hang in there! We'll get through this!