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Old 06-18-2008, 01:20 PM   #1
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Unhappy Having total abdominal hysterectomy 27th june

Hi, I started with pain in my pelvic region 2 years ago this month. I went to the hospital as the pain was that bad and I had started to vomit. They took an x-ray and showed me the x-ray and what the dr told me was 2 kidney stones. Having been given pain relief, which finally started to work after an hour, I was sent home and told to come back if the pain returned. I was fine until September 2006. The pain returned and the vomiting. This time the pain was much worse. Thinking it was kidney stones, I attended hospital and was admitted. I was told the next day it was nothing other than constipation. I knew this wasn't right so I went home. I was admitted to hospital again the next day with even worse pain. I was told by the dr that he wanted me to see a gynaecologist. I stayed in hospital waiting for the gynaecologist. On the Saturday night, 3rd day in hospital, after visiting hours had finished I got my husband to ask the nurses if the gynaecologist was coming to see me or not. I had been to the toilet twice that day so knew it was not constipation and if the gynaecologist was not coming to see me I was going home. I was told that the gynaecologist had left the hospital and would be back on Monday. I started to get dressed to go home. Within 5 minutes the gynaecologist turned up and insisted on examining me. During exam the nurse was sent out of the room for some swabs and I was left alone with a male gynaecologist which made me very uncomfortable. After he examined me I got dressed and went home. I started bleeding very heavily and losing large blood clots. I still had pain and went to see my gp. It took many visits to my gp to get her to send me for an ultra scan (from sept 06 to jan 07 in fact before she sent me for a scan) which showed I had a cyst and something wrong with the lining of my womb (either thickening or thining, I can't remember!) I was told that they would do nothing about this as they only treated a cyst if there was a lot of pain. I had been going to my gp with this pain for ages! I was also losing a lot of blood and clots since the exam - I wasn't bleeding before the gynaecologist examined me. I was on the depo injection and hadn't really had a period for about 3 years so I felt I was now having a constant period with the pain as well. Eventually my gp sent me to see a gynaecologist who sent me for a full body scan. This showed I had fibroids and polyps, plus the cyst and endometriosis. I was told I would be put on a waiting list for an operation to see what was going on inside. This was on 11 June 2007 (my birthday!) I waited until November 2007 and because I had not heard anything from the hospital I rang up and was told they had forgot to put me on the waiting list! I was rushed in for the exploratory op. They then put me on some injections that made my body go through a "fake menopause". I have had 6 months of these injections now. I requested that I be allowed to see a different gynaecologist as my current one was a waste of space to be honest. I saw a different one and she is now going to do my hysterectomy on 27th June. I suffer from agoraphobia (fear of people) so staying in hospital is more scary to me than the operation. Can anybody give me an idea of the amount of time you have to stay in hospital after the op? I would also like to know how long to expect to be bleeding for after the op and how soon I will be able to do normal every day things. I am really frightened of the stay in hospital but I know I need to do this as it is the only thing that will, hopefully, stop the pain and the bleeding I have had to put up with for so long and had to pester my gp to do something about it. The injections reduced the pain a great deal and the bleeding is now very little and more a show of blood like you would get when starting a period than an actual period so the injection obviously helps. I was on painkillers but they made me constipated and when I asked my gp for some other painkillers because of this he wrote me a prescription out and at the same time said if you take more than two of these you will feel like you are giving birth!!! I have marks on my stomach from having a hot water bottle constantly clutched to my stomach for the pain. I also noticed that my stomach has swollen, is this normal? I had lost 3 stones before this started and have now put the weight back on, just vacuuming would make me start to bleed so doing the aerobics video was definitely out. My stomach definitely does not look right and my husband mentioned that to the drs at the hospital when I was first admitted but they didn't care. The more advice you can give me the better. I will be so grateful. Thank you.

Last edited by carina1106; 06-18-2008 at 01:30 PM.

 
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Old 06-18-2008, 03:47 PM   #2
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Re: Having total abdominal hysterectomy 27th june

My thoughts and prayers are with u. Keep your head up and relax. Trust in God and you will be okay.

 
Old 06-19-2008, 06:13 AM   #3
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Re: Having total abdominal hysterectomy 27th june

Thank you so much, that is very kind of you.

Last edited by carina1106; 06-19-2008 at 06:14 AM.

 
Old 06-19-2008, 06:15 AM   #4
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Re: Having total abdominal hysterectomy 27th june

Quote:
Originally Posted by shannonb72 View Post
My thoughts and prayers are with u. Keep your head up and relax. Trust in God and you will be okay.

Thank you so much, that is very kind of you.

 
Old 06-19-2008, 08:25 PM   #5
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Karlee73 HB User
Question Re: Having total abdominal hysterectomy 27th june

Hi Carina,
Thought id let you know that i am also having a hysterectomy done on the 27th of June and i am totally freaking out, although my problems aren't as bad as yours! I am 35 years old and have 2 children, I had a bad smear test about 11 years ago and had to have a cone biopsy done , but my problems over the last few years have gotten out of control! sometimes my period will last for 12 weeks at a time and im in constant pain! Ive tried a couple of different options including the mirena but that only made the problem worse! My gyeno told me that he would do a hysterectomy but has told me that he wont know until im on the operating table wether or not it will be vaginally (I hope ) or abdominal. I was all booked in for may 30th but at my pre- anisthetic checkup I was told that the surgeon had forgotten to put me on his operating list, I was so frustrated because I had already left work and my husband had also organized his work around it too! Now the time is getting closer I am really starting to freak out so im heaps glad to have someone i can share my feelings with!

 
Old 06-20-2008, 06:22 AM   #6
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Re: Having total abdominal hysterectomy 27th june

Thank you so much for taking the time to read my rather long note. It must be awful to be all set for having it done on a certain date and then having that date changed. I am just so worried now that the date gets changed as my husband, too, has arranged holidays from work to fit in with the time I will be in hospital. I am having the abdominal surgery - I am overweight so they said this would be best and the fact that I will have a scar on my bikini line isn't a problem as I never would wear a bikini! I hope everything goes okay with your operation and I will think about you as I go down for my operation. Please let me know, when you are able, how you are getting on and I hope it is not too painful for either of us. I wish you a speedy recovery and will light a candle for you at church this weekend - it will be my last chance for a while but my mum goes every week so I'll get her to light one for you and me until I can get there myself. I really feel for you. It is, as you said, nice to have somebody going through the same thing at the same time and hopefully you will keep in touch and we can share our experiences. Sending you a big hug and wishing you all the best. Thanks again for your note, it was so kind of you, especially when you are going through the same.

 
Old 06-20-2008, 10:19 PM   #7
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Re: Having total abdominal hysterectomy 27th june

I am so happy that you replied and your kind words have really made me feel special ! I hope everything goes well for you and I'd love to keep chatting with you ! I think it"s amazing that I've found someone to chat with who lives in the UK and im in south australia. Ive just checked on the world times zone and we are 8 1/2 hours ahead of you in time !. I cant believe how much you have been through with all your problems it must be very frustrating , hopefully for both of us once wev'e had our operation things will get better!!!!!

 
Old 06-24-2008, 06:30 AM   #8
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Re: Having total abdominal hysterectomy 27th june

Quote:
Originally Posted by Karlee73 View Post
I am so happy that you replied and your kind words have really made me feel special ! I hope everything goes well for you and I'd love to keep chatting with you ! I think it"s amazing that I've found someone to chat with who lives in the UK and im in south australia. Ive just checked on the world times zone and we are 8 1/2 hours ahead of you in time !. I cant believe how much you have been through with all your problems it must be very frustrating , hopefully for both of us once wev'e had our operation things will get better!!!!!
Hi Karlee73,

It is really nice having someone who is going through the same operation on the same day - even though we are so far away from each other! This internet invention is really amazing - you can "talk" to someone anywhere and share experiences. I had the mirena put in just before Christmas last year. They said this would stop the bleeding and pain - it didn't! I am glad it is a total hysterectomy because then, hopefully, everything comes out and that means no more cysts (as there are no more ovaries to attach to) and no more polyps and fibroids, at least I hope so, nobody has actually guaranteed this yet. I don't know about the endometriosis because I don't know enough about it. The funny thing is that the injections I have been having for the last 6 months did help but last week I started bleeding again - just a little, and the stomach pain has come back, not as bad as before but bad enough for me to get the hot water bottle out again. I think this may be me panicking. I am more fearful of being in a ward with people as I can't handle more than 2 people in a room and have to leave if more come in. I can't get on a bus because of this. I am hoping this operation will be worth it and finally, after 2 long years, the bleeding and pain will stop. I hope your operation goes well and you have a speedy recovery. Please, do let me know how you get on, and, as soon as I can sit at the computer again, I will let you know how I am getting on. Thanks again for replying, it really is so nice of you especially when you have your own worries. Keep in touch.

 
Old 06-24-2008, 07:17 PM   #9
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Re: Having total abdominal hysterectomy 27th june

Hi Carina1106,
Well the time is getting closer and I am getting so nervous.
I was having depo injections a couple of years ago and found that they did help, I would only have a period every 4 to six months, before I started having them I was told that they can cause weight gain but because I was underweight it really didn't bother me, but unfortunately the weight that I gained was all in the wrong places, I ended up with a horrible podgy belly and my face always looked bloated, but since not having the injection I have lost around 10 kilo's (without dieting or doing anything different). I also have a fear of people and I think that I may be more scared about having visitors more so than the operation itself, I seem to be ok when Im with only one or two people but put me in a crowd and I'll have panick attacks!!! I have really became a bit of a hermit ! A couple of years ago a friend got me a part time job which was good and I seemed to be able to cope with all the people, but once I got home and took my uniform off I was back to being "a hermit" again, even now I hate going anywhere unless I am with my husband. And if we had to go to a family or friend function that I couldn't get out of I would start drinking alcohol to relax (although Im not a drinker) and would always make the situation worse, and then I would have to hide for the next couple of months because I was paranoid that Id acted like a fool ! Ive seen a doctor about it but he really made me feel as if it was just all in my head! It's very frustrating !!!! Good Luck and I will be thinking of you !!! and in afew weeks time hopefully we will both be saying to each other "THAT WAS EASY"

 
Old 06-24-2008, 08:44 PM   #10
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Re: Having total abdominal hysterectomy 27th june

I just had my laparoscopic assisted vaginal hysterectomy on Wednesday (last week) so don't have much advice about that, but wanted to poke my head in and wish you both well with your surgery!

Check in and let us know how you are doing!

 
Old 06-24-2008, 10:48 PM   #11
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Re: Having total abdominal hysterectomy 27th june

Hi Pickle Eyes,
How did your operation go ? was it very painful ? I might be having mine done that way but the specialist told me that he wont know until im on the operating table !!! ( I have no idea why he wouldnt know since everyone Ive spoken to have all known before hand) Hope your doing ok ?

 
Old 06-25-2008, 04:05 AM   #12
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Re: Having total abdominal hysterectomy 27th june

Quote:
Originally Posted by Karlee73 View Post
Hi Carina1106,
Well the time is getting closer and I am getting so nervous.
I was having depo injections a couple of years ago and found that they did help, I would only have a period every 4 to six months, before I started having them I was told that they can cause weight gain but because I was underweight it really didn't bother me, but unfortunately the weight that I gained was all in the wrong places, I ended up with a horrible podgy belly and my face always looked bloated, but since not having the injection I have lost around 10 kilo's (without dieting or doing anything different). I also have a fear of people and I think that I may be more scared about having visitors more so than the operation itself, I seem to be ok when Im with only one or two people but put me in a crowd and I'll have panick attacks!!! I have really became a bit of a hermit ! A couple of years ago a friend got me a part time job which was good and I seemed to be able to cope with all the people, but once I got home and took my uniform off I was back to being "a hermit" again, even now I hate going anywhere unless I am with my husband. And if we had to go to a family or friend function that I couldn't get out of I would start drinking alcohol to relax (although Im not a drinker) and would always make the situation worse, and then I would have to hide for the next couple of months because I was paranoid that Id acted like a fool ! Ive seen a doctor about it but he really made me feel as if it was just all in my head! It's very frustrating !!!! Good Luck and I will be thinking of you !!! and in afew weeks time hopefully we will both be saying to each other "THAT WAS EASY"
Hi Karlee73,

I had the depo too, but nobody told me it would put on weight until after being on it for 3 or 4 years. I was already on the larger size so that didn't help. I have also suffered from depression on and off since 14. I can remember the day it started. I have coped with it until I got made redundant from a job I had done for 21 years and the people I had worked for and bent over backwards to help just turned their back on me and didn't help me one bit. Not one of them have been in touch since I left. Since then I stopped going out. I used to have to get two buses to work but now the thought of getting on a bus terrifies me. It has got to the stage now where I only leave the house to go to appointments, which I sometimes can't make on the day, it depends how bad the panic attacks get. I very rarely see my mum as she lives too far away for me to get to see her and my family are no help. I have to pay for taxis to go anywhere and it is too expensive to visit my mum very often. The last time I saw her was just after Christmas. My family have cars but never offer to give me a lift to my mum's, even one way would help with the cost of taxis. I understand totally how you feel. I am really getting nervous now about the stay in hospital. I spoke to a lady, on the phone, yesterday who was in hospital when I was in just before christmas - she had just had a hysterectomy and was going home. It turns out she knew my husband - was his friend's mother in law - so they got talking. My husband got her number and she rang me yesterday. She told me she wished she had had the operation done years ago. She said she had no bleeding when she came home - after 5 days stay in hospital. She did warn me about the removal of the tubes for blood and urine - apparently these were in for 2 days after the operation and the removal is painful - hope I didn't scare you, perhaps they do things differently where you are. Anyway, I totally understand your fear of people. I am just gone 45 and feel such an idiot to be scared of people but its nice knowing that others feel the same. I also have ocd's which are really annoying but not as bad as some I have seen on the television. I was seeing a psychiatrist for this but because I missed an appointment she discharged me. Knowing that I can't physically sometimes get out of the house because of my fear and panic attacks I thought this was really bad and wrote to her, as she wouldn't speak to me on the phone. I got no reply. So I am now without any support except for my husband who really doesn't understand and is no good around hospitals and sick people. I feel so alone and am really angry with the way I have been treated. I complained but it got me nowhere. Anyway, sorry for going on, getting more panicky as it is getting nearer. Roll on this time next week when, hopefully, we can both say thank God that is over and it was worth it. And that we are both at home. Do let me know how you get on. I will be thinking of you.

 
Old 06-25-2008, 04:07 AM   #13
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carina1106 HB User
Re: Having total abdominal hysterectomy 27th june

Quote:
Originally Posted by Pickle Eyes View Post
I just had my laparoscopic assisted vaginal hysterectomy on Wednesday (last week) so don't have much advice about that, but wanted to poke my head in and wish you both well with your surgery!

Check in and let us know how you are doing!
Hi Pickle Eyes

Hope you are doing well. Thanks for taking the time to jot down a note on here for others to share your experience. And thanks for the good wishes. I will let you know what happens as soon as I am able to get to the computer again.

 
Old 06-25-2008, 06:09 PM   #14
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Re: Having total abdominal hysterectomy 27th june

Hi Carina,
Well this will be my last message before the op and I wanted to tell you that I will be thinking of you. I cant get over how horrible you have been treated by people! Unfortunately people really dont understand depression unless they suffer themselves and instead of reaching out and trying to help you they find it easier to turn their backs ! And as for your doctor who discharged you for missing an appointment I think she is a cow ! If she was trained in her job properley she should know what you are dealing with and be a bit more understanding!!!. Its heaps sad that your mum lives too far away for you to visit all the time but im sure that you would be in her thoughts and her heart every moment of the day I would love to keep chatting with you after our operations, maybe we can encourage each other to defeat these nasty demons, and it will be great to have someone to chat with when either of us is having a bad day! Always remember to hold your head up and each morning when you get out of bed look at yourself in the mirror and say out loud " I am a very special person and no one is going to bring me down". Once again all the best for your op and I wish you a speedy recovery ! Will Talk Soon x Karlee

 
Old 06-25-2008, 06:37 PM   #15
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Re: Having total abdominal hysterectomy 27th june

Ladies, I hope ya'll are doing well. I assume you are recovering already. :happydance, but very quietly so as to not wake you:

I'm doing well. Every day is better than the previous day. Recovery is slow. My body is recovering slower than my mind though. I'm going to have to work hard to not do too much! But I'm spending about half the day reclining right now. I'm catching up on old movies!

 
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