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Old 08-13-2009, 08:46 AM   #1
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is anyone sorry they had a hysterectomy?

Ive now been going in circles with my doctor for what seems like forever! Ive got fibroids, Ive got bleeding problems, Ive had ablation and now I have undetectable cells and three attempts at biopsies have failed. (too much scar tissue) so now he is pressuring me to "just get it over with" and have the surgery.
Ive gone for 3 opinions....basically I am getting the same answer from everyone. Since they cannot tell what these cells are, and arent getting clean samples- everyone is advising just to get this over with, especially since the fibroid isnt in a place that it can be removed, and this would solve "all of my problems". Except that I just started a wonderful new job and dont want to take 6 weeks off yet, unless its absoutely medically necessary!

So im leaning towards waiting until spring and doing it then, meanwhile trying to have a heart to heart with my company to see if I can secure my job....but deep down, i dont want this surgery. Id rather live with the pain, bleeding and discomfort then do this to myself.....especially since no one can tell me if it IS medically necessary!

Crazy right?? Has anyone had this done and been sorry they did it? Are their any stories out there which I should know about?

Any info is appreciated.
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Old 08-13-2009, 09:32 AM   #2
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Re: is anyone sorry they had a hysterectomy?

Msnik, I just had this Monday, tvh/bladder sling/&rectocole repair w/graft. I had to get clearance from my neuro be4 they wud put me to sleep. However, I've done great w very little pain. Rt leg is somewhat numb. All feels better already! I wud definitly recommend it.
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Old 08-13-2009, 07:21 PM   #3
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Re: is anyone sorry they had a hysterectomy?

Quote:
Originally Posted by MSNik View Post
....but deep down, i dont want this surgery. Id rather live with the pain, bleeding and discomfort then do this to myself.....especially since no one can tell me if it IS medically necessary!

Crazy right?? Has anyone had this done and been sorry they did it? Are their any stories out there which I should know about?

Any info is appreciated.
Do what you think is best for yourself.

My question to you is this, though. What types of cells have they found and what types of biopsies have they done? If you have severe dysplasia, then it is best to seek the opinion of a gyn/oncologist.

As far as me and my hyst, I'm glad I had mine. I was not happy about having to have one, but having stage 1 cancer made it not an option for me. So I had it. I came to terms with the necessity. The recovery was a bit inconvenient, but I'm glad I had it.

 
Old 08-14-2009, 04:49 AM   #4
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Re: is anyone sorry they had a hysterectomy?

Thank you both. What I am asking though, is anyone out there who is SORRY they went thru this?

I have reasons for asking, sorry if that offends anyone, but im looking for the "other side" of the opinions....
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Old 08-16-2009, 05:26 AM   #5
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Re: is anyone sorry they had a hysterectomy?

Question MSNik. Are you going to get an answer? Would anyone have a hysterectomy if they did not have to for their own well being?? With all due respect I think you are playing lotto with your health.

 
Old 08-16-2009, 06:30 AM   #6
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Re: is anyone sorry they had a hysterectomy?

cejayb-
is anyone going to answer me? Yes, actually several people wrote to me privately to tell me their horror stories of having had a non necessary hysterectomy....

Secondly, am I playing lotto with my own health? Since you have absolutely NO IDEA why Im being told to have a hysterectomy, or what my other health conditions are (I happen to have Mulitple Sclerosis) or why I am asking; I think its slightly rediculous of you to make such a comment.

I asked if anyone would share their stories with me, and only an incredibly ignorant person would question why I would ask that. The people who choose NOT to answer, are actually doing me a favor.....the people who choose to tell me their stories (and there is another post in womens health section which has even more responses) have done me a HUGE favor in letting me know what complications they have had, what issues having had a hysterectomy before the age of 45 can bring on, how it has affected their marriages and other health concerns.

I dont have cancer- this is not absolutely the best choice I can make with regard to my MS- and the issues which the doctors "think" will be resolved with a hyster, may very well cause me even more problems! It was a valid question to ask....and yes, the answers I recieved have given me MUCH food for thought.

MSNik

Stop. Think. Ask. Do not assume. Its a little lesson I learned in life which Id like to share.
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Old 08-16-2009, 06:47 AM   #7
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Re: is anyone sorry they had a hysterectomy?

I am very pleased that people have written to you privately. I did assume that you had no responses from your comment. Ignoring my own circumstances...with dire consequences...had me concerned for you. I duly grovel!!

 
Old 08-16-2009, 07:23 AM   #8
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Re: is anyone sorry they had a hysterectomy?

im sorry you had dire consequences. If I was facing something "specific" in my need for a hyster, I wouldnt hesitate. Ive already had 3 gyn surgeries this year, with absolutely nothing but consequences! An ablation, Novasure, was the biggest mistake of my life...my tubal, has caused infections and problems- my attempt at embolization to rid of a fibriod, has also failed....so with all this in mind, what kind of outcome, can I expect from a Hysterectomy??

Having explored the DaVinci, the Lapro and the abdominal methods of hyster, and having had 3 opinions from 3 different surgeons, I have reached the decision that if I go thru with it, it will be the old fashioned abdominal way; however, even with that decision made, Im still hesitant to have the surgery.

I didnt mean to come across rude to you..but I definately think before answering a question with as strong as an opinion as you offered, you might want to know why a person is asking....

i did get lots of great feedback from women all over the world. And, to be honest, Im now hesitating more then ever to undergo surgery once again.

Thanks for your comments.
MSNik
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Old 08-16-2009, 03:14 PM   #9
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Re: is anyone sorry they had a hysterectomy?

You weren't rude...I offered an opinion without thought. Learning curve actually as your circumstances had never occurred to me...I had assumed [again!] that hysterectomy was a no choice procedure. Whatever you decide I hope that all goes well with you.

 
Old 08-16-2009, 03:17 PM   #10
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Re: is anyone sorry they had a hysterectomy?

Hugs to you. I hope whatever you went thru, turned out okay and that you are healthy now....
MSNik
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Old 08-17-2009, 03:05 PM   #11
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Re: is anyone sorry they had a hysterectomy?

I had a lap-assisted vaginal hysterectomy four years ago and my back was damaged from being on the operating table for 3.5 hours in that position they put you in for that type of surgery. Mine should NEVER have been done using that specific method. If I had to do it over again, given my chronic back pain, I would still have had the hysterectomy, but I would have it the old-fashion way, like you are considering. Mine was entirely elective (fibroids, endometriosis) but I was suffering and in pain and bleeding everyday. I think that each person and their circumstances are so different that it's difficult to "collect" opinions and glean from those what the "right" answer is. I too, wanted to know what the "right" thing to do was, and any decision always involves an element of risk. So, your decision needs to be based on a balance of potential risk vs. potential gain and, there is no guarantee. All you can do is make the best decision you can with the information you have on hand from your doctors recommendations and your review of medical web sites. Remember too, that people with "good" experiences tend to not even be looking at Healthboards :-) I wish you the best. Lisa.

 
Old 08-17-2009, 03:16 PM   #12
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Re: is anyone sorry they had a hysterectomy?

thanks Lisa...believe it or not, people ARE offering me plenty of opinions, by emailing me directly. It seems people with negative stories dont wish to share them with everyone, but are very forthcoming when asked!

I agree with your theory of risk vs gain. I too, have had years of endo, excessive bleeding, fibroids.....Ive gone thru a tubal, endometrial ablation, even fibroid embolization, nothing has helped...which is why i wonder if this wont "solve" everything....or if Im in for more disasters! I do agree that going the old fashioned way is probably the best choice for me.
But thank you- very much for your comments...
MSnik
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Old 09-24-2009, 08:31 PM   #13
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Re: is anyone sorry they had a hysterectomy?

I had an abdominal hysterectomy a little over two years ago. It was the best choice I ever made regarding my health and well being. I'm 54 now; kept ovaries; minimal hot flashes if any still.

Having lived many years with prolific bleeding; fibroids; polyps removal; I was ready to take charge and am so glad I did.

I had the abdominal because my uterus was quite enlarged; had also had a prior c-section so my doctor did not want to risk doing the vaginal hyst.

Not to say it doesn't hurt for several days afterwards, but I'd gladly do it 10 times over again if I'd still get the freedom and wonderful results that life is now offering me. I've stopped scheduling my life around my period and am finally enjoying it in all ways!

Last edited by sunnydaze1; 09-24-2009 at 08:31 PM.

 
Old 09-25-2009, 04:06 AM   #14
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Re: is anyone sorry they had a hysterectomy?

Thanks Sunny. Thats one of the more positive posts Ive read! I see my specialist on Oct 2nd for another opinion and willl keep your words in mind!
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Old 09-25-2009, 07:01 AM   #15
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Re: is anyone sorry they had a hysterectomy?

You're quite welcome and I wish you well! I'm sure you'll make the right decision that's right for you. Good luck!

 
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