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Old 02-10-2004, 02:42 AM   #1
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naughteblonde HB User
Crazy immune reaction?

Hi
Ive been going though the dianosis process for an unknown medical problm for 2 yrs now. I have mouth ulcers, skin rashes, iritis, reactions to needles or skin trauma, ibs, urethritis, arthritis, CNS probs but no test has come back positive. No HLA-B27, no ANA, no RA factor ect not even sed rate or c reactive. My blood shows two things - B12 anaemia associated with my digestive probs which is treated by injection, and an odd thing ith my immune system.
Intermittently when my Gp does the usual b12 check he picks up my immune system acting odd. Apparently there is something in my blood that shows how much Im reacting eg to infection or allergy. He told me the normal level for people is about 1%, for people with major allergies and illness it tops at 2-3%. Mine is tops at 6%. My blood is saying that Im fighting of a serious infection when every test for infection is clear. It tends to show around the times my symptoms above flare. What does this mean?
Thanks!
Anne H

 
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Old 02-29-2004, 08:49 AM   #2
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californiasunflower HB User
Re: Crazy immune reaction?

Hi Anne, not saying this is your diagnosis, but review information with regards to Pernicious Anemia. See where that takes you. Has your doc informed you of what he suspects are the cause of your symptoms?

 
Old 03-01-2004, 08:14 AM   #3
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peregrine HB User
Re: Crazy immune reaction?

Quote:
Originally Posted by naughteblonde
Hi
Ive been going though the dianosis process for an unknown medical problm for 2 yrs now. I have mouth ulcers, skin rashes, iritis, reactions to needles or skin trauma, ibs, urethritis, arthritis, CNS probs but no test has come back positive. No HLA-B27, no ANA, no RA factor ect not even sed rate or c reactive. My blood shows two things - B12 anaemia associated with my digestive probs which is treated by injection, and an odd thing ith my immune system.
Intermittently when my Gp does the usual b12 check he picks up my immune system acting odd. Apparently there is something in my blood that shows how much Im reacting eg to infection or allergy. He told me the normal level for people is about 1%, for people with major allergies and illness it tops at 2-3%. Mine is tops at 6%. My blood is saying that Im fighting of a serious infection when every test for infection is clear. It tends to show around the times my symptoms above flare. What does this mean?
Thanks!
Anne H
Do you also have profound fatigue? If so, check out the Chronic Fatigue board. These symptoms, with fatigue, could likely equal CFIDS.

Last edited by peregrine; 03-01-2004 at 08:15 AM.

 
Old 03-02-2004, 12:40 PM   #4
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naughteblonde HB User
Re: Crazy immune reaction?

Hi there,
thanks for your replies. My docs have ruled out pernicios anaemia because I dont have anti intrinsic factor. It seems that its a digestion issue as I can be stuffed up to my ears in oral B12 but dont absorb it. My doc didnt think it could be chronic fatigue either though I do suffer from extreme tiredness. I havent had a virus of any sort to recover from. My immune system is so powerful that it has been over 12 years since Ive had any virus or cold of any sort. Am I right in thinking this is CFS?

 
Old 03-03-2004, 05:00 AM   #5
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peregrine HB User
Re: Crazy immune reaction?

Quote:
Originally Posted by naughteblonde
Hi there,
thanks for your replies. My docs have ruled out pernicios anaemia because I dont have anti intrinsic factor. It seems that its a digestion issue as I can be stuffed up to my ears in oral B12 but dont absorb it. My doc didnt think it could be chronic fatigue either though I do suffer from extreme tiredness. I havent had a virus of any sort to recover from. My immune system is so powerful that it has been over 12 years since Ive had any virus or cold of any sort. Am I right in thinking this is CFS?
To receive that diagnosis (CFS) you would have to have had at least 6 consecutive months of profound symptoms initially. Check out the CFIDS Foundation home page for the list of symptoms and requirement for diagnosis

 
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