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Old 02-14-2004, 02:10 PM   #1
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coley91 HB User
Itp... Imune Thrombocytopenic Purpura

any one else have children that have had ITP. My son was just diagnosed with it. We just got released from the hospital. Just needing information from any one who has or is going through it. Thanks.

 
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Old 02-18-2004, 02:56 AM   #2
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Deda HB User
Re: Itp... Imune Thrombocytopenic Purpura

coley91--

Hi...my little niece had ITP when she had just turned 3. She was staying with us (while my brother and wife were in Hawaii), and I noticed she was a little lethargic and pale. Then the next day she had nose blleds off and on...heavy nose bleeds. She also had bleeding in the skin, you know, those little pinhead sized purple spots, all around her body. She didn't have much of an appetite either. So, because her nose bleeds continued through the night, and she threw up blood, we took her to the emergency room, and after taking blood tests, the Dr. told me she has 1 of 2 things, either Luekemia or ITP. Luckily it was the ITP. It was confirmed the next day with a bone marrow test and other blood tests were done. She was put on Prednisone, and stayed on that for a few months. I don't know the dose, but they told me that her appetite was huge! Anyway, she did very well, and started feeling better within a couple of weeks. They kept a close eye on her, (Dr's) for a good 18 months or so. She's 17 now and going to graduate high school in a few months, and she's never had anymore problems, thank God. I do know that it's an auto immune disorder. (and I thought I read it's more common in females). I'm sure with the proper treatment your son will get well. But I remember the Dr. that dx'd it said that it could be very dangerous if not properly treated.

Good luck,
DEDA

 
Old 02-18-2004, 09:56 AM   #3
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Re: Itp... Imune Thrombocytopenic Purpura

Quote:
Originally Posted by Deda
coley91--

Hi...my little niece had ITP when she had just turned 3. She was staying with us (while my brother and wife were in Hawaii), and I noticed she was a little lethargic and pale. Then the next day she had nose blleds off and on...heavy nose bleeds. She also had bleeding in the skin, you know, those little pinhead sized purple spots, all around her body. She didn't have much of an appetite either. So, because her nose bleeds continued through the night, and she threw up blood, we took her to the emergency room, and after taking blood tests, the Dr. told me she has 1 of 2 things, either Luekemia or ITP. Luckily it was the ITP. It was confirmed the next day with a bone marrow test and other blood tests were done. She was put on Prednisone, and stayed on that for a few months. I don't know the dose, but they told me that her appetite was huge! Anyway, she did very well, and started feeling better within a couple of weeks. They kept a close eye on her, (Dr's) for a good 18 months or so. She's 17 now and going to graduate high school in a few months, and she's never had anymore problems, thank God. I do know that it's an auto immune disorder. (and I thought I read it's more common in females). I'm sure with the proper treatment your son will get well. But I remember the Dr. that dx'd it said that it could be very dangerous if not properly treated.

Good luck,
DEDA


Yes! It sure can be dangerous. They can bleed internally, and if they bump there heads ect, with low levels it can cause brain bleeds. My son is on bed rest, we go get his levels checked tomorrow. All the signs of it are gone. So... hopefully the levels are up up up. We are praying hard for that. I was reading in a couple articles on the internet, that they are linking ITP to the MMR shot, which he did just get. Scary huh. Thanks for the information on your neice. Its nice to talk to people who have been through it also.

Nicole

 
Old 02-18-2004, 11:49 AM   #4
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Deda HB User
Re: Itp... Imune Thrombocytopenic Purpura

Nicole, I didn't want to scare you in my first post, but now that I see how informed you are about this I will say that her Dr. here in Sacramento told me of a 10 year old boy in L. Tahoe that died of it. He said that he bled to death. I was so frightened!

How old is your son?
Good luck Nicole, and I'll pray for your little guy. Hope those levels are way up!!! (It's platelets, right?) Here's an angel for him, (and you too!)

DEDA

 
Old 02-18-2004, 08:24 PM   #5
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Re: Itp... Imune Thrombocytopenic Purpura

Quote:
Originally Posted by Deda
Nicole, I didn't want to scare you in my first post, but now that I see how informed you are about this I will say that her Dr. here in Sacramento told me of a 10 year old boy in L. Tahoe that died of it. He said that he bled to death. I was so frightened!

How old is your son?
Good luck Nicole, and I'll pray for your little guy. Hope those levels are way up!!! (It's platelets, right?) Here's an angel for him, (and you too!)

DEDA
My son is 5. Went to the doctor today, and she said he looked good... no signs of having platelets down. Thanks for the Angel!!! I know there is one beside both of us. God is good!!! Thanks for your prayers!! His name is Caleb.

 
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