Anyone Out There With Goodpastures Disease?!? - Immune Disorders Message Board

kim1980 · 03-12-2004, 07:37 PM

HELLO-I WAS JUST DIAGNOISED WITH GOODPASTURES DISEASE(OR SYNDROME WHICHEVER YOU CHOOSE.)
THIS IS A RARE DISEASE 1 IN 100,000
NOBODY KNOWS TOO MUCH -INCLUDING MANY DOCTORS--IT IS TOO RARE FOR THEM TO EVEN HAVE EXPERIENCE WITH IT!

IF ANYONE KNOWS ANYTHING ABOUT THIS DISEASE--OR HAS IT--PLEASE CONTACT ME!

kim1980

Kristine1976 · 03-25-2004, 12:52 PM

I do not know *anything* about Goodpasture's syndrome and I was curious so I just looked it up on the internet. Even though it is an autoimmunie disorder, it primarily impacts the lungs and kidneys so maybe post your message on the Kidney Disorder Forum and see if anyone there knows of anything. Just remember that you have the ability to be stronger than your disease. Best of luck to you!!!! Sorry couldn't be of more help.......Kristine