I have just been diagnosed with UCTD, having gone to the doctor with pain in my hips that happened after a 5-hour walk and did not go away. I also mentioned back stiffness when getting up from a sleep, and stiffness in the hips when getting up from sitting. He did a variety of blood tests, ruling out rheumatoid arthritis but showing up antinuclear antibodies.
Many years ago I was diagnosed with Hashimotos Disease ( resulting in hypothyroidism) and was put on daily thyroxine. My thyroid function tests have come back in the normal range ever since.
I am looking for other people who have been diagnosed with this condition, so I can get some sort of idea of what I might expect. I have no other symptoms, but over the past few days more parts of me have gotten sore - shoulders, one joint in my right hand - so I'm wondering where it is going to end! The GP sounded positive - that most likely the symptoms will go away in a few weeks, although they may flare up in the future. Has anyone else been down this path? If so, how are you doing?
Well it doesnt take a 5 hour walk for me to feel like that. I am getting where I feel like that 24/7. It sounds like you are ordinarily very active and that you will be doing pretty good once your soreness wears off. I wish I could add something.
I have just been diagnosed with UCTD, having gone to the doctor with pain in my hips that happened after a 5-hour walk and did not go away. I also mentioned back stiffness when getting up from a sleep, and stiffness in the hips when getting up from sitting. He did a variety of blood tests, ruling out rheumatoid arthritis but showing up antinuclear antibodies.
Many years ago I was diagnosed with Hashimotos Disease ( resulting in hypothyroidism) and was put on daily thyroxine. My thyroid function tests have come back in the normal range ever since.
I am looking for other people who have been diagnosed with this condition, so I can get some sort of idea of what I might expect. I have no other symptoms, but over the past few days more parts of me have gotten sore - shoulders, one joint in my right hand - so I'm wondering where it is going to end! The GP sounded positive - that most likely the symptoms will go away in a few weeks, although they may flare up in the future. Has anyone else been down this path? If so, how are you doing?
I was diagnosed with UCTD 10 years ago. UCTD is a term for connective tissue disease that is unclassified or hasn't yet declared itself to be something that is classified, such as Lupus or Shogrens. I also have CFIDS and Hashimotos and it is often difficult for me to separate out these three, if, indeed, they are separable! What I mean is that I do have "flares" and I suppose sometimes they lean more toward the UCTD symptomology and at other times CFIDS or Hashimotos. However, all of these illnesseses also overlap in symptoms, so you can see my dilemna. One difference from you is that I did have ANA antibodies. Have you considered that you might have Fibromyalgia, or a combination of Fibro and CFIDS? If I were you I would do a search on google for both of these and also check out the CFIDS Foundation web site.
Thankyou soooo much for your replies. Just knowing there are people out there who understand and might know something more, is a huge bonus. I wasn't aware of CFIDS, so I took a look there. I think I can rule that one out, at least for now. I'm not tired, just sore in those blasted hips, legs, back, shoulders.....the list is growing by the day. It is so weird, cos I ask myself are some of these pains psychosomatic, because I have only just been diagnosed? But I'm pretty sure the answer is "No". I don't think these weird pains could be "in my head". Today I seem to be getting pains in whichever parts of my body I am using. The hip pain is constant, but I started to get pain in my hands today, from driving the van. And in my shoulder, when I climbed into the van. I feel like an old woman!!!!
Thanks for the advice, Peregrine. Can you tell me more about how your disease has progressed? The 5-hour walk was an aberration, I went to a trade fair and had to do all that walking. I usually only walk for about 1/2 hour a day. But boy I wish I hadn't done it, cos I've been sore ever since!
I think I can rule out fibromyalgia, as I do have the ANAs and I don't have chronic fatigue or any of the other symptoms. I guess it is going to be a wait-and-see issue, but I hate having to wait, not knowing what will come. I prefer to have some idea of what might happen, and then if it doesn't, that's a bonus!
So thanks again, and any feedback on what is happening, or did happen to you, would be most appreciated.
Hi Lesley, I will tell you my story. I am a 36 yr old mom, I was in good health, thin, no problems really. Last Jan, within one week, I thought I was dying. I developed joint/muscle pain, burning feelings on the sides of my thighs, chest pain, muscle twitches, etc etc etc
I had tons of bloodwork done, I found I had high thyroid antibodies and was DXed with hypothyroidism, and read that this was often the cause of my ailments, I was thrilled, knowing what was wrong. I started on thyroid meds. I also had a low ANA of 1:80, but they said it was most likely due to my thyroid.
I felt better for a while, but never great. this last winter I started feeling worse again and took it upon myself to go to a Rhuemy DR. He examined me and tested my ANA again....it's now risen to 1:320..and he said my joints were very stiff for my age.
He DXed me with connective tissue disease and feels the ANA would not jump this high due to the thyroid. he started me on vioxx but now I am on bextra. I feel in my gut that I have Lupus but the other symptoms have not come out yet. I am on the Lupus board here a lot.
HUGS to you. Do you know the number of your ANA and the pattern?
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