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Old 05-18-2004, 12:31 AM   #1
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beezkneez HB User
Unhappy Need Help for My Mom-Unknown Disorder

Hi, I am your normal everyday 21 year old except for one thing....I am trying to help my Mom with a misery that no doctor around here has been able to diagnose or fully treat her symptoms. It tears my heart to pieces seeing her this way. No one can really understand unless you see her and know how much pain she is in. I live with it everyday and I just want to get her help. She says that she can't stand it anymore and she feels like she won't be here much longer. But I love her...she is my Mom and my best friend. Here are some of her symptoms:

1. She develops hives if her skin is aggervated (ex. if you squeeze her arm or if her pants rub her and if her shoes aggervate her feet.) The hives itch awfully expecially on her feet and become very hot, sometimes even blistering the skin, and then they hurt.

2. She becomes very worn out after little exercise. (ex. walking from her room to the living room.) She is unable to walk long distances without her knees and shins hurting.

3. She has these body aches. She said it feels like the flu. It started out as once a week and went to three times a week and now it is everyday. Every muscle in her body hurts. She said it feels like it goes down to the bone. The only partial relief she can get is laying in a hot bath.

These are just some of the symtoms, the most serious of them. She has been tested for many things and all the doctors can tell her is that they don't know exactly what it is. She was tested for lupus and fibromyalgia and they said it wasn't either. She has to take medicine for her thyroid and celebrex for some of the pain. But nothing really helps. Is there anyone out there that knows what this might be or knows somewhere that we can take her to get tested for what it may be? If you do know maybe what it is could you possibly recommend any medication she may talk to her doctor about that could help her? Thanks for your help if there is any you have to offer. I would take her place in a heartbeat if I could because I hate to see her in this pain so if you can help please do!

 
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Old 05-18-2004, 07:24 PM   #2
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Vball_#4 HB User
Re: Need Help for My Mom-Unknown Disorder

Just curious how long she has been on celebrex? I had a friend who had problems like this and it was caused by the celebrex itself. Made her have hives all over. The dr. old her to stop the celebrex and everything disappeared. It was an allergic reaction to it. I think celebrex is high in some type of sulfur. Maybe she should talk to her Dr. about this.
Best of Luck Vball_#4

 
Old 05-18-2004, 09:12 PM   #3
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beezkneez HB User
Re: Need Help for My Mom-Unknown Disorder

She's been on celebrex for a couple of years now. Really the celebrex helps with some of her pain. She knows if she misses a dose of it. How long did it take your friend for everything to clear up? Did it get worse before it got better? Thanks for you help

 
Old 05-18-2004, 09:54 PM   #4
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TrishaT HB User
Re: Need Help for My Mom-Unknown Disorder

Has the Dr. checked her for Epstein Barr Virus? I am going through the samething only the hives are not bad. I agree part of the itching could be from the Celebrex.

good luck
Trisha

Last edited by TrishaT; 05-18-2004 at 09:55 PM.

 
Old 05-19-2004, 07:30 AM   #5
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californiasunflower HB User
Re: Need Help for My Mom-Unknown Disorder

Hello

Not sure this term applies to your mom's condition but may be worth a try investigating "arachnoiditis."

Hugs to you!

 
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