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Old 05-24-2004, 07:01 PM   #1
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kellykay HB User
c-anca

well hello there.. was wondering if anyone knows anything about this test..
i have been sick for many years. my old doctor never found anything wrong with me, thought i had lupus and the blood work was always negative.. ana anyways
i just changed doctors. and she ran alot of tests...this came back . as postive.. and it stated specfic to wegener's granulamotis (spelling) a uncommon vasculitis
I looked it up and yeah sure i have the symptoms.some of the insidous others more prominent
. fatique being the biggest of them.
not sure if i am trying to talk myself out of this or i am in some sort of denial but i am looking for something that tells you. if you test positive it doesn't have to mean that is what it is.. anythoughts ???
has anyone else tested positive for this . and not had the disease,.

 
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Old 05-24-2004, 08:29 PM   #2
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californiasunflower HB User
Re: c-anca

Kellykay, I had symptoms, was tested, and it was negative. Because of the timeline to treat Wegener's, I am grateful the doctor ruled it out.

Has your doc called you about what the positive result means? And has he/she given you any feedback and started treatment?

 
Old 05-24-2004, 10:01 PM   #3
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kellykay HB User
Re: c-anca

it was my family doctor that found this.
i am being send to a specialist. i live in a town and i am being sent tot he city for this appointment..
she said quote"the was a good hit" she was looking for the p strain to rule out other autoimmune stuff.. which is really good considering i read somewhere family doctor don't usually test for this.. my old doctor never did
she told me what the test indicated
she mentioned that i would need a biospy and that it was important. because the treatment is intenstive..what else.. and no worry!! got to love that one..
and if i have any concerns or am feeling any worse CALL
If this is what i have... i have angels watching over me.....

 
Old 05-25-2004, 08:12 AM   #4
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DebbieT HB User
Re: c-anca

Hi there. A positive blood test does not necessarily mean that you have Wegener's Granulomatosis and that's why its necessary to have the biopsy. Wegener's is a rare disease and obviously the drugs used to bring it into remission are very strong so they wouldn't want to start treatment without being absolutely certain. My father was recently diagnosed with Wegener's and he's doing really well at the moment. He was lucky to have his diagnosed early. His started with cold like symptoms that never went away, sore throat, then blocked sinuses and terrible headaches. Eventually, his nose started to bleed and thats when he went to his GP. He was lucky to have a GP that had actually heard of Wegener's and my dad was sent to hospital the next day. Anyway, hopefully it will turn out that you haven't got this. Let us know how things go and good luck to you.

 
Old 05-26-2004, 05:53 PM   #5
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californiasunflower HB User
Re: c-anca

Yes, I am very impressed with your GP! Kudos to him for testing you. Glad that you are going to see a specialist for further evaluation. Definitely keep the board posted as you will get more info here and from those who are familiar with the actual Wegener's condition.

 
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