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Old 06-11-2004, 11:54 PM   #1
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patjam HB User
Question anyideas

MY son James has CVIDS he is on IVIG but before he went on to this a hole load of tests where of course to find the problem and on test the doc has never answerd properly is

"It was intresting reading that his HLA-DR posative cells were less than 1%."

This was taken form a letter written by his present immune doc to a specialist pead center and it was thier reply letter at first his present immune doc said it was nothing to worry about and left it at that but somthing told me he was telling me the full story,so i tried looking on the net myself in end asked James specialist nurse to ask the immune doc and the reply came back basically his immune system is not working.

Is he right??????????????????????????????????? ???????????

Thankyou Pat

Last edited by patjam; 06-11-2004 at 11:57 PM.

 
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Old 06-12-2004, 02:43 AM   #2
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peregrine HB User
Re: anyideas

Quote:
Originally Posted by patjam
MY son James has CVIDS he is on IVIG but before he went on to this a hole load of tests where of course to find the problem and on test the doc has never answerd properly is

"It was intresting reading that his HLA-DR posative cells were less than 1%."

This was taken form a letter written by his present immune doc to a specialist pead center and it was thier reply letter at first his present immune doc said it was nothing to worry about and left it at that but somthing told me he was telling me the full story,so i tried looking on the net myself in end asked James specialist nurse to ask the immune doc and the reply came back basically his immune system is not working.

Is he right??????????????????????????????????? ???????????

Thankyou Pat
visit the chronic fatigue site on this board

 
Old 06-12-2004, 08:21 AM   #3
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patjam HB User
Re: anyideas

Why My Son Is Only 3 Years 7 Months Old

 
Old 06-12-2004, 10:58 AM   #4
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peregrine HB User
Re: anyideas

Quote:
Originally Posted by patjam
Why My Son Is Only 3 Years 7 Months Old
I thought you said CFIDS. What exactly is CVIDS?

 
Old 06-12-2004, 02:00 PM   #5
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patjam HB User
Re: anyideas

common varible immune difency

 
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