Are immune disorders hereditary?? - Immune Disorders Message Board

micdav · 07-07-2004, 11:52 AM

My daughter is 14 mos old. She was scheduled for surgery yesterday. She has urinay reflux and needs ureteral reimplants. They decided to cancel the surgery because of my antiphospholipid antibody syndrome. My ana has been positive in the past. I have also had 3 miscarrriages. My blood is thick. I am currently on aspirin therapy. My daughter has to see a hematologist before they reschedule her surgery. My questions:

1) Are immune disorders inherited?

2) If so, can it be detected as soon as 14 months?

3) Has anyone's child undergone surgery for urinay reflux?

I am so confused right now. I would feel so guilty if my kids have this problem too.

I would appreciate any input.

Micki

wendyk33 · 07-09-2004, 06:08 AM

Hi there. I am sorry for your problems and for your daughters problems. In answer to your question, some immune disorders are inheredited. 2 of my children have c4 deficiencies, as well as my husband and myself having slight ones. I don't know if your disorder is hereditary or not but I do know some are. Good luck and I hope she doesn't have it.

Wendy

Lizzi · 07-10-2004, 07:05 PM

Micki...
I'm soo sorry you have this too & have had 3 mc...I have antiphospholipidsyndrome too...am on baby asprin therapy have had 2 mc & 1 stillborn..but..am blessed with 3 healthy children...recently got a shocker..thought we were done having little ones...untill a few weeks ago...one more on the way...anyhow..my question was...have you thought of having any more?...& have they discussed what they'll do if you do?...wondering this because..with my last son...I was sent home giving myself shots of lovenox int he stomache twice a day till the coumadin level was right & doing frequent blood work...my ob's have 4 in their office...I saw one who didn't deliver me last time..& he said we have to c-sec this time due to other complications..but said he sees no reason I"d have to have the lovenox & coumadin again?...I"m really confused...have you discussed this with your ob?
Lizzi...

vamp36 · 08-10-2004, 10:54 AM

I know some Autoimmune are heridetary. I have Autoimmune Hepatitis and it can be hereditary as well. But there are no tests for my children to see if they can possibly get it some day. It's a wait and see thing which is hell. Good luck to you and your family.

californiasunflower · 08-12-2004, 09:07 AM

Quote:

Originally Posted by micdav

My daughter is 14 mos old. She was scheduled for surgery yesterday. She has urinay reflux and needs ureteral reimplants. They decided to cancel the surgery because of my antiphospholipid antibody syndrome. My ana has been positive in the past. I have also had 3 miscarrriages. My blood is thick. I am currently on aspirin therapy. My daughter has to see a hematologist before they reschedule her surgery. My questions:

1) Are immune disorders inherited?

2) If so, can it be detected as soon as 14 months?

3) Has anyone's child undergone surgery for urinay reflux?

I am so confused right now. I would feel so guilty if my kids have this problem too.

I would appreciate any input.

Micki

Hi Micki,

I am no expert but from my understanding, APS, is considered to be a hereditary disorder. It appears that since your baby daughter is being referred to a hematologist, the medical community may be able to determine if she is affected before they proceed with any type of surgery. I know with the blood disorder Factor V Leiden that it can also be passed down genetically, but it isn't always. That's the good news--it is not always passed down! There are blood tests to determine whether it was or not, so possibly that may true too with the APS. We can only hope! Please keep us informed how your daughter is doing.

You mentioned that you were positive for APS and on aspirin therapy. I too am on that therapy as well as on a blood circulation medication. Are you periodically retested while on the aspirin therapy? Can you tell me if I am tested for the Antiphospholipid Antibodies will these medications affect the results?