Swelling All Over
Doctors are giving up… maybe you will know what is wrong with me.
About five months ago I was in a car accident. I healed FINE. Then, in July I woke up in great discomfort, and noticeably swollen. Espeically my calves. My Primary Care Physician drained blood, checked my urine, did a Doppler of both legs, and an Echocardiogram. When all those tests came back with nothing, my PCP COMPLETELY LOST INTEREST…and her staff became very frustrated with all of my calls.
I then went to an Arthritis Doctor. He took blood, x-rays of my chest and knees, and DRAINED both of my knees. I naively thought he was going to take my case on as a personal interest and try hard to get to the root of the problem. When I showed up for my next visit, I realized I was wrong. He actually was irritated when I showed him the research I printed on MY symptoms…(a lot from this site!) He told me he narrowed it down to two diseases, Sarcoidosis or Psoriatic Arthritis. He sent me for a CT scan of my chest which again came back fine.
The PAIN has gotten worse. In the beginning, I was not in “pain” I was just extremely uncomfortable with the extra weight and tightness of my skin. My body aches all over. When I wake-up in the morning and take my first steps, I feel like I ran a marathon –barefoot! My hands are very sore and hard to close. Last week, I started a steroid pack which temporarily helped the inflammation and decreasing the pain significantl. But when the pack finished, so did the relief!
A few days ago I went to the ER… and they sent me home with a script for a urinary track infection (which I had no symptoms for!).
I’m in the process of changing my PCP and starting fresh. As days turn into months my hope and spirit are slowly dying. I find it harder and harder with each passing day to find my strength. I used to be a strong, driven, young woman…. But I can’t find that part of me. It was wonderful when the steroids and draining decreased my swelling. My body literally returned home, and I was elated. But, it only put me in an emotional hole! Cause the swelling came back so fast. I am wearing my friends and family with my state of depression and can only hope that when I do come out of this mess I am not left alone.
• Swelling throughout entire body…significantly in legs, hands, face
• Pain in hands and feet
• Ache in body
• Green urine (at times)
• Numbness and tingling sensation in hands and feet
Thank you for reading this. Much appreciated.