IgM - Immune Disorders Message Board

sew4you2 · 11-20-2005, 08:00 AM

I have been diasgnosed with IgM defiency. I find that it is rather rare. At the present I am working with doctors at UCSF hospital. I am interesed in hearing from anyone with imformation

Jf

shaynesmom · 11-22-2005, 04:31 PM

Hi:
How were you dx with this? What are your symptoms? Are you seeing an id at UCSF?

Sorry I don't have any advice.

Will tey treat w/IVIG?

Good Luck.

sew4you2 · 11-22-2005, 04:39 PM

The ENT doctor was trying to find out why I could not get rid of a sinus infection. Six months of antibiotics. He ask for the blood test. I have tried IVIG, but I am low in IgM which is not found in a measurable amount in IVIG. After a six month test it was abandon due to no improvement in the sinus infection. I am seen an immune clinic at USSF. blood was drawn for 12 blood test this week. I have no idea what the treatment will be.

charleyhorse · 11-22-2005, 11:58 PM

Hi there .... I have an IgG deficiency so our symptoms are similar but the treatment is different. An IgM deficiency is usually treated with preventative antibiotics on a rotating basis, which should help reduce the frequency and severity of the infections. IVIG as you found out is not usually very effective for IgM problems. I believe there are some other treatment options, but it will depend on what has caused the IgM deficiency - whether it is 'primary' meaning you were born hard-wired to develop this or 'secondary' caused by another medical problem. You might give the folks at the Immune Deficiency Foundation a call once you have your test results - if you call the phone number on their site a nice human being will send you tons of material about your specific immune deficiency syndrome. Very helpful group. I'd be interested to hear what your test results show - keep us posted and I hope you can get those infections under control.

Barb