camilledwells

16 years ago my symptoms started. Long story short was sent to the Mayo Clinc and told they were 75% sure I had Lupus. Pred. and Plaq. for many years. Still had problems so mentally I had to change b/c I was starting college and didn't want to be sick anymore. ok I know you can't change being sick, but I was a teenager and thought I could. I stopped all meds (after decreasing of course) and quit therapy, tried to be happy and do everything. I really did feel good for some time. Fast forward to today after many drs visits and tests that always come back normal (sometimes you just feel crazy). Recently I have been falling. It just seems that my hip just gives out and down I go. Now this jerking or tremor has started in my hip/leg 20 hours a day(or close to- on and off) Its driving me crazy. So I went to a new dr to get a fresh start (reum.) He says I have mayofacial pain syndrome and loads me up on drugs (I have a 2 yr old and there is no way I can take all this med.) He says I'm falling due to pain and starts me on pt (which ends up being massage therapy) so I like going to therapy but is it helping no! I am even walking with a cane so I won't fall and get hurt worse. So I asked to be sent to a neurologist and I'm going Friday. But my question is --- Does anybody out there have similar symptoms, I am getting nervous, my dad has ms and I'm begining to wonder if I've been misdiagnosed all these years. Any input would be great! THanks

Camille