henoch schonlein purpura - Immune Disorders Message Board

sujkap · 07-23-2006, 03:45 AM

My husband aged 38 had HSP first in aug 2005, he recovered by feb 2006 and since last 3 weeks has had another episode, accompanied by severe abdominal cramps, purpura and knee joint pain. At the moment he is in hospital taking treatment for the abdominal pain, tissue biopsy done on the purpuric spots, awaiting results. Don't know what triggered it , but we did treat our room furniture with anti termite insecticide a week before...so I am guessing. Has anyone with HSP been able to identify what triggered it off?

scrappin · 07-23-2006, 02:19 PM

Wow! I had never heard of this till my then 4 year old had it. His was set off by a strep infection. Fortunately he recovered and didn't have any repeat episodes. I hope you guys can find some answers soon.

fillyhill · 08-17-2006, 10:48 PM

I am 55 years old, and I think I may have gotten it after a upper respiratory infection which I had for quite a while. That was 3 years ago, and I still have lite break outs when I get sick. I was on a lot of immune suppressant drugs for the first year and a half to control it. I have to take very good care of my health now, getting enough rest, taking fish oil, vitamins, etc., and the one thing that has help me more than anything is I start drinking ********** juice, which really helps with the joint pain, which really disabled me, and it has also given me a lot more energy.

sujkap · 10-04-2006, 12:51 AM

okay just updating on what's been happening lately. He was on Prednisone 40 mg since july, tapered down every 10 days by 5mg. All was fine till we were on the last dosage of 5mg daily, everything came back. The stomach pain and cramps, so intense, now jumped back to 20 mg. All blood investigations are fine, ANA negative no occult blood in stool, urine etc. but this seems to be chronic Hsp. I wonder if drinking beer kind of makes the stomach ache bad,because he did have a couple of drinks! The docs don't know what happens in the stomach, inflammation? purpuric lesions? I wish we could lay our hands on this cause, it is so mysterious!

justjones · 10-05-2006, 07:05 PM

Help!! I'm terrified. Yesterday I took her to the doctor because her foot was swollen and her lower legs were covered in purple spots. The doctor diagnosed HSP right away. It seems to have been triggered by a recent respiratory infection (which a chest x-ray actually showed was pneumonia..she's only been mildly sick we had no idea!!). The bloodwork showed no kidney involvement right now, and she's not having abdominal pain. Today we went back to the doc, who said the rash already appears to be fading and she seems improved today from yesterday. But she told us it's hard to say which way it'll go. She may continue to get better, or it could worsen. It feels like a nightmare, we have no idea we're in for - how long, what symptoms may occur. I'm hoping and praying she doesn't have any complications, or stomach issues. I'm hoping that since her stomach isn't bothering her, that's not going to be one of the problems. Does anyone know?? Help!!