On Prednisone because of immune system. - Immune Disorders Message Board

mergatroy · 08-15-2006, 10:08 AM

I looked for a forum for auto-immune problems. I have been to several pulmonary doctors with my breathing problems. I have allergies. I have what appears to be severe asthma. The ONLY thing that rescues my breathing is Prednisone. I have tried approximately 15-20 other meds and I am currently on
Asmanex, Fexofenadine, Quinine Sulphate (cramps from Prednisone), Omnihist II
LA, Astelin Spray, Nasonex, Rhinocort Aqua, Xopenex, Albuterol Sulphates for the nebulizer, and a few others I can't remember. But you get the idea.

ONLY Prednisone rescues me. After many, hospital tests they explained it to me, in layman's terms I guess, that my auto-immune system is rejecting the air around me, so they put me on Prednisone for short periods of time..like a week or ten days. Prednisone is a bad medication to be on, but as the dr. said, the side effect of not breathing is _____??

By the way, after taking 40mg of Prednisone the first day and 20mg a day for a week, I feel like I could throw away the other meds.
Too bad Prednisone is so bad for us.

Has anyone else been told this? I would like to think I am not the only person with this malady.

taurus10 · 09-08-2006, 01:36 AM

i am 50 yrs old

rcristal · 09-08-2006, 05:37 AM

I have been on 40 mg. of Prednisone daily for three weeks. I am being treated for a nasty autoimmune disorder affecting my hearing and balance. However, the prednisone does not agree with me at all. I am experiencing irregular heartbeats, I spent 24 hours in the emergency room with atrial fibrillation and I am nervous etc. The hearing issue is bad but I feel as if the cure is much worse than the problem. Anyone else have this bad a problem with this type of medicine?

cosmo · 09-08-2006, 07:50 PM

Rcristal:

What autoimmune disorder were you diagnosed with? I'm being treated for one as well and I have dysautonomia too, as well as bone and joint pain and chronic hives. I spent a month in the hospital total this summer including a week in rehab. I'm now on Cellcept so I hope that kicks in soon!

Les44 · 09-08-2006, 09:06 PM

When I was on prednisone (100mg/day for a week, then many months to wean down)

I really feel your pain. I truly can't tolerate the drug and pray I never have to go near it again!