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Immune Disorders Message Board
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Old 02-21-2007, 04:16 PM   #1
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indianamomoftwo HB User
Self attacking auto immune disorder

Hi. I saw my endocrinologist today and he told me, ( which i suspected ) i have an auto immune disorder , where my body attacks its self. He said this is why I had a hystorectomy and my female organs , they were almost all much.and this is what caused 10 miscarriages.
My question is...what else can i expect? I have always been sickly, something always wrong. ( blood test for years now have shown the high anti-bodies ) And now i am developing dark brown/black spots on my body which are being biopsied.
With this self attacking immune disorder, what does it all really mean? I didn't have much time to talk to dr. see him again in few weeks to discuss more. But now i am scared. Like does this mean i need to stay away from sick people do i get no new tattoos? What do i do?
Any advice would be greatly appreciated. i am only 27 with 3 year old twins ( from surrogacy ) and scared i am going to die.

 
Old 02-21-2007, 07:38 PM   #2
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2jen HB User
Re: Self attacking auto immune disorder

I have 2 auto-immune disorders, and I live a pretty normal life. I am only 21 and have also been kind of sickly my whole life. I have addisons disease, which can cause darkening of the skin in certain parts of your body. You might want to do a search on that if you are having skin discoloration. Good luck!

 
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Old 02-22-2007, 07:50 AM   #3
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fannieb HB User
Re: Self attacking auto immune disorder

My advice is to not panic and proceed with caution. Does your doctor realize how afraid you are? You might want to call to discuss you fears with his nurse and see if they can direct you to materials and info that could help. I know how hard it is to not know what is wrong, but it is all a waiting game, and I hope you can wait for a diagnosis with a really positive attitude.

You mentioned tatoos. If I were you, I wouldn't have any more--why make yourself suseptible to an infection when you don't have to?

I'll be thinking of you and praying for great results. You are obviously a really strong person--10 miscarriages? Wow, you've been through a lot. And, raising twins--you must be one great lady.

 
Old 03-30-2007, 01:50 AM   #4
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taz uk HB User
Re: Self attacking auto immune disorder

Quote:
Originally Posted by 2jen;2813***
I have 2 auto-immune disorders, and I live a pretty normal life. I am only 21 and have also been kind of sickly my whole life. I have addisons disease, which can cause darkening of the skin in certain parts of your body. You might want to do a search on that if you are having skin discoloration. Good luck!
have you or anyone on this forum tried to contract threadworms as as they
produce chemicals that reduce immune responce in a safe way, it may be annoying at times but a much better trade off for some poeple

 
Old 04-22-2007, 01:38 PM   #5
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iona_23 HB User
Re: Self attacking auto immune disorder

hi indianmomoftwo: i just wanted to say that you aren't alone on this. i too have auto immune disease. my body is attacking my thyroid. so i'm feeling a whole bunch of weird symptoms. it's real hard at first but as soon as you start knowing more and more about it, it does get a little better. but just like what everyone pretty much mentioned...talk to ur doctor about it. do some research on what specifically u have. healthboards are here for a support group. the thing that seems difficult for me right now is my hair is falling out. i mean...more than usual. i still have a full set but its depressing. i am trying to keep positive, but at times like this, it really does take a toll. prayer also works. i just got done praying myself (because i was having some anxiety coming on) and now it subsided. goodluck.

 
Old 08-18-2007, 08:42 PM   #6
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Join Date: Aug 2007
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Relief4U HB User
Re: Self attacking auto immune disorder

Try to relax. Go with your endo, and even get a second opinion. Immune disorders typically can be controlled to help you manage better. Do your research, get all the tests, and double check with another doctor before trying treatments.
I have had some mess me up. Working with a great endo now, he has improved my world!!
I do have to watch what triggers it, usually extreme stress, to much exercise, limit or cut out sugar! You will learn how to manage-but you need to relax I know with babies that is tough, that is when my disorder came out. Good Luck!

 
Old 08-18-2007, 09:26 PM   #7
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Join Date: Feb 2004
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yorkieloveroo7 HB User
Re: Self attacking auto immune disorder

just because you have a high ANA does not mean you have a autoimmune disorder and if you had a disorder he would have told you which one, i have had a high ana for over 10 years now and all my other bloodwork is fine so so far i am not diagnosed with anything

 
Old 08-19-2007, 04:32 PM   #8
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Join Date: Jul 2007
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Tumbleweed1999 HB User
Re: Self attacking auto immune disorder

".... and if you had a disorder he would have told you which one".

'Taint necessarily so. Granted, a high ANA is not indicative in itself, but the Dr. may need to send one to another specialist to get the correct diagnosis. Lab work, different tests (ultra sounds, biopsy, etc) all need to be done to get the correct (hopefully) diagnosis. My Dr. that originated all my testing is not the one that found the problem. I was referred to a GI who did more testing and came up with the final results.

Not trying to argue, just saying "taint necessarily so".

tmblwd

 
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