just diagnosised with scleroderma - Immune Disorders Message Board

pieplate1 · 06-28-2008, 10:13 PM

anyone out there with this, can you please respond on how you are doing, and what treatment you are on. pieplate1

gdiluca · 06-30-2008, 11:48 AM

I only have CREST and have not progressed very far. I am currently taking methotrexate and Plaquenil. I gotta say that they have helped me in that I'm not so dreadfully tired all the time. I also take nifedipine for my Raynaud's. That too has helped in that i don't have such severe attacks any more. Each patient is different with different progressions.

pieplate1 · 06-30-2008, 09:30 PM

hi, what symptoms did you start with, how old are you?? Could you please give me a rundown of your symptoms, and would love to hear details, as there is not very many people around me with these symptoms. I am 60 and had treatment for breast cancer two years ago. Waiting to hear. pieplate1

gdiluca · 07-01-2008, 12:02 PM

My sypmtoms started with very swollen hands and fingers with extreme fatigue, although i've had Raynaud's and GERD much longer. Then I got non-stop hives and sun sensitivity. I've got spots too. I had blood work done that came back ANA positive with the centromere pattern. I still have a high sed rate as well as a high CRP. I am 48 and have been going to the rheumatologist now for a couple of years. Flares come and go, with dry eyes, mouth and such being the biggest nuisance. My parotids swell up sometimes so that i look like i have the mumps. I can break out in a lace like rash called livedo reticularis which can look kind of funky. No dreadfully big deal to me as long as i don't get overtired. Fatigue is the enemy! Each person is different and i only have the CREST version, but all things considered, i can't really complain. What type of scleroderma do you have?

pieplate1 · 07-01-2008, 09:56 PM

Quote:

Originally Posted by gdiluca

My sypmtoms started with very swollen hands and fingers with extreme fatigue, although i've had Raynaud's and GERD much longer. Then I got non-stop hives and sun sensitivity. I've got spots too. I had blood work done that came back ANA positive with the centromere pattern. I still have a high sed rate as well as a high CRP. I am 48 and have been going to the rheumatologist now for a couple of years. Flares come and go, with dry eyes, mouth and such being the biggest nuisance. My parotids swell up sometimes so that i look like i have the mumps. I can break out in a lace like rash called livedo reticularis which can look kind of funky. No dreadfully big deal to me as long as i don't get overtired. Fatigue is the enemy! Each person is different and i only have the CREST version, but all things considered, i can't really complain. What type of scleroderma do you have?