What do I have? - Immune Disorders Message Board

k2626 · 07-12-2008, 10:52 PM

Hi guys, I have been trying to figure out what is wrong with me for the past month. Going to a new Rheum next week and am wondering if this sounds like an auto immune disorder. At times I get scared it is bone or bone marrow cancer, or maybe lyme.

My main complaints are traveling bone pains. For example one minute I get a deep toothache type pain in my spine that pulsates, and hours later its my ankle, or my foot, or my finger. I also have extreme joint popping which I NEVER had before. Every time I move, even while I sleep my joints crack loudly. I have had a buzzing feeling in my feet from time to time as well and have noticed weird bumps on my hands, some clear others with a red dot. I have bowel issues now to but not sure its related
I have tests for cbc, thyroid, RA, lupus,sed rate, nuclear....all came back okay

Any thoughts?

Nexis · 07-12-2008, 11:08 PM

Its me again from the MS post.

I am also seeing a Rhemu Doc too and nothing is coming back positive, and so now I am having my blood sent out to a reputable Lyme testing company, Igenex in Palo Alto California, since the testing here in this country I am now residing in does not have a reliable Lyme testing and standards.

I use to live in the States, in high risk areas so if you do too or think you do, start posting on the Lyme board.

k2626 · 07-13-2008, 12:02 AM

Thanks Nexis, I have posted there and a ton of other places too. What exactly have your symptoms been?

Nexis · 07-13-2008, 02:20 AM

Nice to meet you.

Sometime it varies - I have been having symptoms starting from last year and I had all kinds of tests!

Yet I had a strange episode where my neck was stiff, I couldn't barely talk, my face was feeling paralyzed, odd fevers and could not urinate, and then all the joint symptoms started to appear yet the above has dissapear...

Today my hands, fingers, knees are very sore as if I had a boxing match.

Also feeling ready to vomit and dizzy, and extreme fatigue.

I want type more yet my finger joints are extremely stiff and sore...

What about you?

Two doctors think its Vasulitis yet not enough symptoms, yet I think its Lyme. I hope I won't have to go down the vague "Chronic Fatigue Syndrome".

I am waiting for my results for the basic Addison's disease.

I am very strong, fit and athletic for a woman, and I cannot believe how weak I am and in much pain.

k2626 · 07-13-2008, 11:06 AM

I hear you I am very fit too, I normally work out 6 days a week for 2 hours, now I get in pain so I have cut down which is hard on me.

My pain is different. I just woke up one am and my tail bone ached, I could nto walk...15 min later it was fine. Two days later it was my left ankle, next day right foot since then I sometimes get deep pulsating pains in my spine, yesterday my finger hurt for 15 min. Mine feels like its my bones, they feel like they are getting crushed or like a toothache. Also, now my joints are cracking left and right, which is very very odd for me. I have had some buzzing in my feet at times, and digestive issues...fatigue as well.

I have had so many blood tests but nothing has shown yet aside from low d though they said that would not cause my issues. I go to another Rheum next Mon and am going to reqeust a bone scan, also bone marrow biopsy. Gettng tested for lyme as well.

This is very nerve wracking...