HELP - clueless about symptoms - Immune Disorders Message Board

asgatchel · 03-21-2001, 07:48 PM

I am a college freshman and have been sick since last November. I constantly have headaches and I get off and on fevers. I am extremely tired no matter how much I sleep and when I get really worn down I start to shake, and the other symptoms worsen. I have seen many doctors and been tested for so many things (lupus, mono, thyroid, CFS, etc) but they are all normal. I have even gone to the Cleveland Clinic - but nothing has been found. If any of you have any ideas, PLEASE let me know. Thanks

Em195050 · 03-25-2001, 04:46 PM

Dear Elida,
Although I post regularly with a different message board, I often check in here. I'm always interested in the experiences, and helpful information, that others have to offer.
I read your post with interest, and have something to ask, and something to offer.
But first ... I want you to know that your symptoms and concerns are valid, whether or not you have a diagnosis. Do not stop your search for the care that you have a right to.
My question: Has Behcet's Disease/ Syndrome been considered? The symptoms that you mention are hallmark Behcet's, although there are a host of others.
My offer: Regardless of whether or not BD has been eliminated,(or skipped over, as is often the case), I would like to invite you to visit the Behcets Organisation Worldwide website and message board
(www.alexknight.clara.net/behcets-syndrome).
The folks there are compassionate, responsive people and the advice and support are given freely. Most auto-immune diseases are interlinked, and I have learned a great deal there.
I will be checking back for your post here, but I do hope to see you there. You will be most welcome. Em

arkie6 · 03-26-2001, 07:00 AM

Quote:

Originally posted by asgatchel:
I am a college freshman and have been sick since last November. I constantly have headaches and I get off and on fevers. I am extremely tired no matter how much I sleep and when I get really worn down I start to shake, and the other symptoms worsen. I have seen many doctors and been tested for so many things (lupus, mono, thyroid, CFS, etc) but they are all normal. I have even gone to the Cleveland Clinic - but nothing has been found. If any of you have any ideas, PLEASE let me know. Thanks

What does your diet typically consist of? Do you eat a lot of things that contain sugars and other refined carbohydrates? Don't discount the possibility that poor nutrition could be the cause.

Alan

asgatchel · 03-26-2001, 09:04 AM

Thank you so much for the information you have given me. That disease that you suggested to me has not been mentioned by any of the doctors. I will check into that. I greatly appreciate your encouragement and support. I will be visiting that site soon, also. Thanks again!