please help, dont know whats wrong! - Immune Disorders Message Board

mishl33 · 07-09-2002, 12:52 PM

i have spent the last 2yrs at home being sick and the doctors say i have a or some autoimmune diseases but they cannot determine which one.
i lost all my hair, cannot stop sleeping, have major muscle and joint pain, nausea, bowel upsets, chronic urinary tract infections, a burning rash that flares up around my right eye every few weeks or so, headaches, sore throats, stinging sensations in my legs, a funny lightheaded feeling in my head that comes and goes and vasculitis. tests have shown that my immune system is attacking itself but my ana was borderline and now shows normal. my immunologist did have me seeing a psychiatrist because being sick for so long was getting me down but to my suprise the psychiatrist sat there and told me that my whole illness was in my head which i found quite offensive because i have physical symptoms and i know when i am not feeling right. i think that because doctors have not been able to diagnose my illness they are trying to convince me that its all in my head! i am so angry and i find this very unfair after all i have been through and still suffering with no answers! can anyone give me advise on where to go from here?

all things · 07-09-2002, 08:43 PM

Psychiatrists love to tell you it's all in your head...it's their bread and butter.

But anybody can tell that you have something physically wrong. I assume you've had exhaustive tests, that don't show much. Sometimes a Doctor of alternative medicine is a good bet. Mine is an M.D. as well, but was able to help in some unusual ways, that traditional doctors would just laugh at. They are bigger on nutrition, which is sadly missing from the standard MD repetoire. Get rid of things like soda and nutrasweet. A friend of mine had aches and pains, especially in the feet and legs, and had a 6 pack of coke a day habit. She gave it up cold turkey. The legs and feet cleared up, and so did the other muscle aches. Simple, but true.

mishl33 · 07-09-2002, 10:36 PM

thanks for your reply, i must admit that the doctors did have me starting to think that it was all in my head but when i really thought about it, there is way too many physical symptoms as well as abnormal test results and i just know in myself that there is something majorly wrong. i have just recently had some new tests done that show i am lacking 12 major amino acids in my body which can cause leaky gut syndrome as well as rheumatoid arthritis and ammonia toxicity and i need to take amino acid supplements as well as vitamin b supplements which can help.
i think you are completely right suggesting natural products as i have lived on antibiotics and these have become toxic in my body. i am only now looking very closely at my diet which i feel i will benefit alot.
thankyou so much for your advise!

Megherc · 07-23-2002, 12:40 AM

Ok. Call me a b****, but I'd send some copies of my test results to that psychiatrist with a little note, saying "It appears your whole profession is in your head. If you wish hard enough, maybe the Blue Fairy can turn you into a real doctor".

Grrrrrr.

[This message has been edited by Megherc (edited 07-23-2002).]

mishl33 · 07-23-2002, 04:38 AM

your right! i dont know how these people can call themselves professionals!!!!!!! i am having a hard enough time trying to cope with this unknown illness without a shrink trying to convince me that its all in my head! what gets me, is how can someone talk to you for a couple of hours and then make there own diagnosis when they dont know you from a bar of soap.
thanks for your reply! i appreciate it.