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Old 10-25-2009, 03:07 PM   #1
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Spiritist HB User
CVID and H1N1 - Antivirals Anyone?

Hi, I am from Ontario, Canada. I was diagnosed with CVID in 2005 (All my 5 immunoglobulins are almost non existent). Prior to being diagnosed I had an average of 10 severe respiratory infections per year, each lasting a long time; and I had pneumonia 2 or 3 times. I started Gamunex infusions once a month. After that, the number of resp inf I got decreased substantially. They are not as severe, but they still last long.

However, I am deeply concerned with the H1N1. I thought research done suggested CVID patients should be on antivirals.

I don't understand why my doctor here is not prescribing the antiviral.

Does anyone know anything about this?

Last edited by moderator2; 10-25-2009 at 03:44 PM. Reason: this is a peer support forum - please do not post your credentials

 
Old 10-28-2009, 02:35 PM   #2
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Join Date: Aug 2006
Location: Palm City,FL,USA
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cyn2920 HB User
Re: CVID and H1N1 - Antivirals Anyone?

Quote:
Originally Posted by Spiritist View Post
Hi, I am from Ontario, Canada. I was diagnosed with CVID in 2005 (All my 5 immunoglobulins are almost non existent). Prior to being diagnosed I had an average of 10 severe respiratory infections per year, each lasting a long time; and I had pneumonia 2 or 3 times. I started Gamunex infusions once a month. After that, the number of resp inf I got decreased substantially. They are not as severe, but they still last long.

However, I am deeply concerned with the H1N1. I thought research done suggested CVID patients should be on antivirals.

I don't understand why my doctor here is not prescribing the antiviral.

Does anyone know anything about this?
My 17 yr old son has CVID. His immunologist gave me a prescription for an antiviral called relenza, with instructions to start taking it if he is exposed to H1N1 or if he shows any symptoms. So far we haven't needed it.

 
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Old 03-22-2011, 05:03 PM   #3
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Join Date: Mar 2011
Location: Cambridge, ON
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pinchbeck HB User
Re: CVID and H1N1 - Antivirals Anyone?

Hi, I live in Ontario too and like you I get 10 or more upper respiratory infections per year that usually lead to secondary infections like sinusitis and ear infections.

Was it hard to convince your doctor to order an immunoglobulin test? I told my doctor I get sick a lot and he just dismissed it, but now I am beginning to think something is wrong.

My biochemistry and CBC (complete blood count) results came back normal, so this could be why my doctor doesn't see any alarm bells. I don't know if there is a relationship between the blood tests I had done and the immunoglobulin test I didn't have done. But, I do know doctor's here in Canada won't be quick to give out requisitions due to the cost of these tests.

 
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