I have been on IVIG every 21 days for 5.5 years for C.V.I.D. (an immune disorder) as my body does not produce antibodies and without it I get sick. I have recently had a Pulmonary Embolism and they have found that I have Antiphosopholipid Syndrome and probably Lupus. I have so many health issues due to the CVID, GI, pain with walking, balance issue, the list goes on and on.
My point here is that the IVIG really help me, I do have an allergic reaction to it so I am infused at the hospital and given Benadrl at the same time, I feel really crappy (vomitting, headache for 2-3 days) but then I have a good 2 weeks where my pain is better, fatigue is better.
Now that I have the clotting disorder and on so much blood thinner to break the lung clot he can not tell me 100percent about the lupus, but is 95% sure.
I live here in Canada so my IVIG is paid for I really feel bad for those of you who have to depend on insurance companys to approve you for this
If you can try it give it a while for your body to heal, it took mine a good 6 months of treatment to stop the constant infections ect.
Wish you luck
Tracey (Newbie to the board)