To Mayo or not to Mayo?
I have been dealing with acutely swollen knees (with no pain) for the last nine months. Initially, it started with swelling in one knee 5 days on, nine days off. It continued this cycle until I had the fluid drained and a steroid injection. Then it just switched to the other knee. About 3 months in, I started to notice a change in bowel movements (diarrhea and/or cow-pat type stools). I have been tested for RA, Celiac's, Gout, Pseudogout, food allergies, allergies and Lyme disease. All negative. I eliminated gluten for 4 months and initially it helped with my gut. Now I've eliminated lactose, which doesn't seem to help at all. I still have the swelling in one knee, but it no longer follows the original "pattern"...Recently I have had strange, burning heat in my hands and feet at night that keeps me from sleeping.I have seen a rheumatologist, an allergist, 2 orthopods, a Celiac specialist and my regular GP. I have had Graves Disease but it is currently in remission. This "new" thing just feels autoimmune to me.
My family wants me to go to Mayo, but I am concerned that I won't be able to afford it and that it may not mean a diagnosis.
After reading many of the other posts, I feel fortunate to have no pain. I'm just terribly frustrated and concerned what this might turn in to.
I'd appreciate any thoughts or insights! Thanks All! Take care of yourselves!