It's been a long winter, frustrating, death of my Dad, my partner lost her job, starting meno-pause, and both losing our health insurance.
So I had to stop seeing my rheumatologist for now, and seeing my GP every 3 months until my Medicare starts up in July.
The good news is going through so much and not having health insurance is our eating habits are healthier. I've lost 26 lbs and gone down 2 sizes.
Also, kind of good news, bad news is that I think I've been mis-diagnosed. My Rheumy said I had lupus with fibromyalgia, Raynauds, and psoriasis. I know he got the Psoriasis right but this winter I've been having such a flare up of Raynauds, followed by extremely hot hands, joints, and sores on my fingers that I think the lupus is actually Rheumatoid Arthritis, why? Because now that I've researched it this one paragraph stands glaringly out:
Rheumatoid arthritis. Raynaud's often is the first sign of rheumatoid arthritis, an inflammatory condition causing pain and stiffness in the body's joints, often including the hands and feet.
Also can mimic gout, which I've had what appeared to be a few gout attacks on my big toe joint, hot swollen, painful, but I don't drink, rarely eat red meat or smoke, any of the things they say causes gout. I think he checked for the RA factor, or whatever it is, and it was negative, while the ANA tests have always been high. He pretty much came to the conclusion that it was lupus and fibromyalgia. At my last appointment with my GP he mentioned RA in passing that I forgot about it until the past few weeks of having this raynaud attacks in between the hot swollen hands, it's like having a light bulb go off in my head.
My signs, symptoms are all so text book RA that I am surprised he came to the conclusion is was lupus so fast (hind sight is 20/20 right?). I'll find a new Dr, and get a new Rheumy. I know that because I'm in the middle of a flare up I should see one now, but no money too.
I wonder if this is why I'm all of a sudden having an easy time losing weight when it's always been a battle. Thoughts, opinions anyone?
I almost forgot to add that when I get a scratch on my hand it seems infected. I was trimming a juniper and I got what seems to be an allergic reaction, lots of little red nubs, and some are about the size of a dime, very inflamed and sometimes itchy, a couple are near my middle knuckles. My left hands have a bunch of pin sized nubs under the skin.