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Old 12-05-2010, 04:31 AM   #1
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Forgot to ask

How long do people need to do IVIG on average. Is it something for the rest of our lives? I know I was chatting with someone (kelli) who did it for 2 years, but was reading on the web that many people need it for the rest of their lives. Any thoughts?

Thankyou

 
Old 12-05-2010, 10:14 PM   #2
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Re: Forgot to ask

People do need it the rest of their lives and I still get it, just not IVIG (Intravenous Immune Globulin). Now I get SCIG (Subcutaneous immune globulin). Its done in the comfort of your own home, once per week, you insert little tiny needles into your skin and your body absorbs the IG. It keeps your levels steady and you don't experience the trough levels. For me, my levels got much higher once I switched to subq. There are pro's and cons to both, IV and SubQ. For me the IV gave me horrid reactions and took all day and I was bed ridden for 3 days. SubQ doesn't do that to me.

 
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Old 12-06-2010, 03:20 AM   #3
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Re: Forgot to ask

Thanks Kelli, I was hoping you would reply. It's good to know all these things. I'm going for the first treatment tomorrow and I feel better having a little information.
I really appreciate your help.

Thanks again,
Linda


 
Old 12-06-2010, 05:54 AM   #4
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Re: Forgot to ask

Do you have CVID? If you do message me. We have a wonderful support group you may be interested in. TONS of info there.

Also, please make sure you hydrate and drink lots of gatorade after. If you feel yucky in any way shape or form, ask them to slow the IV. Please feel free to message me if you need anything

 
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