It's been a while since my last breakout (a month?), but now it's the second worse I've ever had.
I was diagnosed several years ago with Raynaud's Syndrome. When my ANA came back extremely high, I was sent for further blood tests, an echo-cardiogram and a pulmonary function tests. It was discovered that nothing was wrong with my internal organs, but I had severe anemia.
About two years later, I was diagnosed with Sjogren's Syndrome and Vasculitis. My dermatologist did a skin biopsy on the petechia rash on my legs and it came back non-conclusive
I have dry eyes/mouth and large red/purple patches from my thighs to my feet.
The worse breakout I ever had was at a rally where I stood for at least 5 hours straight. I had nothing to eat/drink that day until 8pm (except for a granola bar and apple cider). The rash I had was solid from my thighs to my feet. I haven't been under such extreme conditions since.
My doctor has put me on nothing other than Plaquenil and an Iron Supplement. My dermatologist put me on some topical stuff for my legs, but this make them turn into scars instead of patches.
The outbreaks on my legs keep on getting worse whenever they happen. It is common for my legs to become fatigued extremely easily during an outbreak. I also have general fatigue because of the anemia. The rash is often itchy and painful and cause swelling in my feet and legs. I can't even wear my shoes sometimes.
Should I go back to the doctor? And to my rheumatologist or my dermatologist? Is there any way that I could relieve my pain and swelling at home before I see my doctor. Is there a way to reduce the redness and/or the swelling at home?
I am now only 19. I was first diagnosed around the age of 15. I would really appreciate any and all advice that you could give me. Whenever this vasculitis appears on my legs it really scares me and it's hard to find anything about my conditions online.