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Old 08-09-2011, 04:11 PM   #1
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Unhappy I need some answers please :(

Hi everyone im in a rut Just wondering if anyone could give me some advice on what they think this might be or if they have had simmilar experiences?

My mom has an autoimmune disease called Mythenia Gravis , she has been going for plasma flourisis 1-2 times a week for the past 7 months due to what the drs call a " mythenia crisis" .
My dr has told me that autoimmune issues can be hereditary and as a female im at higher risk .

Within the past 6 months i started loosing weight with no explanation as to why , i was not trying to loose weight at all.
My blood work shows i have low platelets and low b12.
Also i have had severe abdominal pain on my left side occasionally all over but usually in that area.
I found out my spleen is pretty enlarged.
I also have red dots and patches on parts on my body,the dots are more all over my hands arms legs and near my nose and ive noticed the patches more on my chest near my breasts.The patches come and go but the dots seem to appear more and more as time passes.
I am extremly sensitive to the sun and have suffered heatstroke a couple times as well as severe sunburns.
I am constantly tired and feeling worn out no matter how much sleep i get.
I bruise very very very easily and latly they have been appearing all over randomly.
And most recently i have been experiencing a lot of joint and leg pain .

I have had within the past 6 months an ultrasound , colonoscopy, endoscope, ct , and a gallium scan. All showed everything to be pretty normal aside from my spleenomegaly.

My blood results always seem to come back strange so the dr has told me since i am young ( i am 21 ) they will just keep an eye on my spleen and blood for the next little while . They said they definatly think i am developing an autoimmune problem they just cannot seem to put there finger on it yet.
Lupus had been brought up recently with a specialist but he also has said its too soon to say forsure .

Any feed back i can get will be greatly apreciated thank you so much !!

 
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Old 08-11-2011, 09:11 PM   #2
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Re: I need some answers please :(

The red spots are probably from the low platelets, which I have also. I had enlarged spleen also, they did every test they could think of including a bone marrow biopsy. They found out I have sjogrens syndrome, they tend to worry when spleen is enlarged and blood tests up and down. My father had low B12 he had pernicious anemia, which is auto immune and some times goes with thyroid disorders. They can test for all of these auto immune problems. Have they done ultra sound on you spleen and abdomen. I would not let them tell you that just because your 21, they dont look further. Demand they look further. Good Luck

 
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MISTY EYES (08-15-2011)
Old 08-15-2011, 08:18 PM   #3
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Thumbs up Re: I need some answers please :(

Thanks so much for the reply yikes bone marrow that scares me . I guess its just the not knowing of why im feeling this way and having all these symptoms that is driving me crazy. Yes i have had an ultra sound also but they just told me it was enlarged and pretty much left it at that . I need to make another dr appt asap and put my foot down i guess . Try to discuss other options . Im just really confused and worried.

 
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auto immune disease, b12 deficiency, help asap, low platelet count, lupus



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