Re: newly digagnosed with CVID at age 62
You said, you want to "begin a very aggressive treatment with a product called ImmuneV in the hopes of maybe turning my scores around over the next few months."
Sorry, but I'll be blunt. Thinking any drug will permanently raise you IgG is like thinking there is a product that someone who has had a hand amputated could take a drug and somehow have the hand regrow.
If you physician has correctly diagnosed you your immune system is broken or nonexistent. It isn't coming back.
Before you invest you money and risk your health on ImmuneV, Were it me, I ask them if they have any peer reviewed research on its safety and effectiveness. Whenever I talk to someone who wants to try and unproven therapy, I ask, why would my insurance company have paid for over 350 of my infusion for the past 30 years if something far less costly. My infusions cost my insurance carrier about $8,000 eaqch and I was diagnosed in 1978. I'm now 63.
My last advise is to try and find a qualified IMMUNOLOGIST to treat you. Many allergists try and treat this illness, but patients of physicians who have had a fellowship, specifically in clinical immunology, consistently have better outcomes. Finally, make sure your physician has performed a vaccine challenge test. It is part of a complete diagnosis. If you decide to get IG therapy, in order to have medicare pay for it when you go on it in a few years, you will have had the test. After you have started IG therapy it is too late. To do the test later you will have to go off IViG for at least 6 months.
Good luck, I've been on IViG for the past 340+yest with absolutely no problems.