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Old 10-13-2011, 08:43 AM   #1
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Hypogammaglobulinemia Dx ... now what?

Hi everyone, thanks for reading my post (that is, if you are!).

I will try & make this as short as possible, though I have a feeling it's going to drone on ... I am a 30yo female with a host of physical & mental problems, I'm currently on SSDI for the mental stuff but have a feeling come time to be reevaluated next year (yay fun, can't wait!) I'm going to have a plethora of other diseases & such to report.

Dx's: Type II Diabetes, Fibromyalgia, PCOS, various mental illnesses, Rosacea and now? Hypogammaglobulinemia. Discovering the hypogammaglobulinemia was a long process & took three different kinds of specialists to figure out what was going on (I'm now under the care of an Immunologist).

My most recent labs showed the following values which were either high or low:
C-Reactive Protein - 0.9 (H)
IgG - 538 (L)
IgM - 31 (L)
IgA - 96 (Normal?)

Under Protein electrophoresis, my Gamma Globulin is 0.5 (L) & Gamma Globulin % is 8.2 (L)

We're still awaiting more lab results & will be testing again in about a month. I was given a pneumococcal vaccination today to protect me.


So, my question is does anyone know what's going on?! Throughout my (internet) research I have found little to be helpful & I'm goin' nuts over here!

I know that as of this point it's a wait & see type of thing, but I'm just so frustrated as to what in the heck is going on! I should also mention that I rarely get sick but have an ongoing fungal/yeast infection in my groin & "skin folds" (I'm quite overweight). Is the fibro perhaps the wrong dx due to the hypogammaglobulinemia? Where do I go from here?

Thanks so much! I hope I made sense!

Denise

 
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Old 12-01-2011, 05:42 AM   #2
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Re: Hypogammaglobulinemia Dx ... now what?

Hi Denise,

First, Hypogammaglobulinemia is defined as a reduction in ALL your immune globulines - IgA, IgG, IgM, IgD and IgE. Considering you stated you got a pnemonia vaccine my guess is you are being tested for CVID. CVID is a reduction in IgG and IgA and/or IgM AND, here's the kicker, when given a pneumonia or DTAP vaccine, you wait 3 weeks and draw your labs and see if you have mounted a response, if no, you have CVID. So he wasn't protecting you with the vaccine, he was testing you.

Hope this helps, I know it probably seems as clear as mud. Hang in there. Are you sure none of your meds have caused the reduction in IgG? There are some seizure meds that can cause it and some others (don't know the complete list but you can google it). Good luck.

 
Old 12-01-2011, 06:37 AM   #3
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Re: Hypogammaglobulinemia Dx ... now what?

Hi, thanks for your response! I hadn't thought of the medication(s) potentially causing this issue but it's definitely something I'll look into. I also had not heard of CVID. It's good to know what he's looking for & why.

Is it an issue if labs are drawn after 3 weeks? I saw my dr the day before Thanksgiving & am just today going to have them done.

 
Old 12-01-2011, 11:36 AM   #4
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Re: Hypogammaglobulinemia Dx ... now what?

3 weeks is the standard draw after receiving the pneumonia vaccine

 
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Old 12-05-2011, 01:16 PM   #5
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Re: Hypogammaglobulinemia Dx ... now what?

Yep, got that. Just wondering if lab results will be off since I've waited longer than the three weeks to have them drawn?

 
Old 12-05-2011, 08:36 PM   #6
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Re: Hypogammaglobulinemia Dx ... now what?

Quote:
Originally Posted by neiseluv View Post
Yep, got that. Just wondering if lab results will be off since I've waited longer than the three weeks to have them drawn?
it shouldn't affect it, i believe it just has to be at LEAST 3 weeks

 
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