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Old 11-04-2012, 08:59 AM   #1
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StillLife HB User
Angry Immune Disorder or CFS?

Hello,
I have been led to believe that I may have an immune disorder or CFS (Chronic Fatigue Syndrome). I am a 14 year old girl and I have been on birth control for a few months for my crazy menstrual cycles. I am not sexually active. I have real bad depression and anxiety, among other mental health issues. I believe that I have hypersomnia as well because I am always, ALWAYS tired. I will sleep for an entire day if you let me and still be tired when I wake up. Caffeine and sugar make me drowsy, and eating food does too. I have an average diet and I am a little overweight at 5"4 and 145lbs. I try to fit fruits and healthy stuff into my diet, but it's hard for me to exercise because I have joint and back pain and I am always SO busy between doctors appointments, homework, and school. When I'm not doing anything, I am so so so tempted to sleep, and I usually end up sleeping through dinner and having to wake up early to finish my homework. That's a bad cycle because then I'm even more tired throughout the day. I believe that a possible reason for my tiredness, besides my poor mental health, may be a poor immune system. I am constantly getting sick or feeling crappy. I am in day to day physical and mental pain. I am always getting "stomach bugs" or "colds" that make me miss school, and I can't afford to miss any more school than I already have! My mother doesn't believe me when I say I'm sick anymore because I ALWAYS feel sick. I try not to complain so much but it is really interfering with my life and I cannot get it off my mind. I sometimes get headaches, I get mildly dizzy sometimes, I am usually nauseous, if I stand for more than five minutes I feel so nauseous and overwhelmed that I HAVE to sit down, and my joints muscles always hurt for no reason. I have general allergies. I just got over a stomach bug that made me puke and feel crappy for a week, and that ended a week ago. Two days later I start feeling sick again; but now it's like a sinus infection! What in the **** is going on!?


*Edit: Negative for anemia, negative for mono, nothing found in my last general blood test (but that was over 6 months ago)

Last edited by StillLife; 11-04-2012 at 09:17 AM.

 
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Old 11-09-2012, 05:54 AM   #2
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Re: Immune Disorder or CFS?

There is a very simple very cheap blood test a doc can run to test your immune system. Ask him to check your immune globulin levels - like your IGG, IGA, IGM and IGE. That should give you a baseline to see if it actually IS immune disorder (different from autoimmune) or at least rule something out. Good luck.

 
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Old 11-19-2012, 06:19 PM   #3
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Re: Immune Disorder or CFS?

Hi. I understand how you feel. Not exactly, of course-but I get the general feeling of just wanting to sleep. All the time. And that sleep isn't restorative. That takes a toll, esp. at your age, when you feel added and unnecessary pressure to want to be doing everything. It can't be easy. I feel for you. I don't think there is just one thing going on. You know, one can't tease apart psychological/medical issues. It's all part of the same system. One thing is amiss, your entire body feels it.
Please get a sleep study. You need to know why you don't feel rested. Your general practitioner should be able to give you the information. Your iron levels should also be checked.
You are quite articulate and intelligent for 14. Any age, for that matter. Are you able to let your doctor know what's going on (without your mom in the room)?
*Please get a sleep study.* The fact that your sleep is not restorative means something is off. It also sets you up for all these problems. You need to know why you aren't ever rested. Once that is settled, I think everything else will also settle. It's better to know than to go through this torture. It won't hurt. You'll be observed sleeping, so it won't exactly be comfie, but you know that. And the benefits far outweigh what you're going through now.
You have your whole life ahead of you. You're obviously smart-take charge, get the answers you need, and the rest of this will fall into place. I'm rooting for you.

 
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