Originally Posted by audriquill
I joined this forum out of sheer desperation. I saw yet another Rhumatologist today, and after no answers from her I have no idea what else to do or where else to turn. I have been experiencing chronic, debilitating pain for 2 1/2 years. I am a 20 year old female with a family history of auto-immune problems including lupus (my paternal grandfather) and anti-cardiolipin (my maternal aunt). I have given pints and pints of blood, with a few abnormalities including high ANA (1/640 most recently), high MCH, high monocytes and absolute monocytes, and low C4 complement. My urine tests have all come back normal, except for one very recently with high bacteria and protein.
I went back for another opinion this morning because I feel like I am getting worse. My pain has had me bedridden more and more lately, I am on my third UTI in six months, and my hair has thinned significantly. I have no idea what else to do, has anyone else ever been in this situation or have similar symptoms to me? How did you handle it?
I also had lots of pain for many years. Had every test in the book. Docs blamed it on my weight. Wasn't true!
For me, B12/B vitamins helped relieve a lot of muscle pain. I raised my level from 545 to 1045 even though the doc said 545 was fine. Changed my life! Raising my D3 with supplements and more sun time helped a lot too!
In addition, purchasing trailer runner shoes (more support, stiffer uppers, better treads) has helped a lot in reducing lower back pain. I replace them at least annually and using silicon inserts(after removing the inserts that come with the shoes). I also use custom orthotics (custom inserts) as well. Yes, two type of inserts! For around the house I wear slippers with an additional set of custom inserts due to tile/hardwood floors.
I also had massage/acupuncture for 11 months due to an untreated lower back muscle strain. Ended up with 6 mo. chiropractic as well. I had terrible muscle pain all over my back/shoulders that they helped me with.
My doc checks for protein in my urine to keep tabs on my diabetes. Have you had an A1C test? Also, thyroid testing led me to being treated for low thryoid.
Drinking a lot of water every day helped me as well.
So you see my fatigue and pain were reduced/eliminated through a combination of things. There was no "magic bullet". It took time and my research to figure things out.
Don't give up! Hope you feel better.
Possibly it's time to find another doc? Maybe an internist the treats thyroid/diabetes, etc.