I did the sub-q first and got every side affect possible, I was in agony for days and took 3 weeks for the side affects to completely go away. I'm scared to do the IVIG even though my doctor is doing a very low dose and making sure I get fluids, pain meds and headache prevention during. The sucky part is that most of the side affects didnt hit me until hours after the fusion. This time if it happens again she's going to admit me to the hospital since the body isnt strong enough to handle that kind of ordeal again.
I'll give it this one more try, if it goes badly then it's not worth it and will have to live with the cards I've been dealt with. I'm at peace with death but dont want to be in pain.
My body reacts to anything little thing, tests even an IV line is hard for the nurses to get a good vien for. They were all great 3 years ago then bang, they started to collaspe. Now they are very fragile so they pop easy which makes treatments very difficult. Most likley they will have to put in a pic-line.
I asked about the cortisol levels cause mine are very low and just wondering how many people who have low IGG also have low cortisol. My levels during the day are 1.5 then at night jump up to 140, so both can be fatal and acourse I have a reaction to the replacement medication. Cortisol is something else our bodies need to fight off infections and keep the body running.
I dont see how you do it with your kids, that must be so hard. Just taking care of my dog (my baby girl
is hard. There are times I'm so ill that my folks have to take her for awhile. Thats good you have learned how to relax, it took me awhile to learn that one but once I did it helped a lot. When I came to peace with my situation it made my life much more serene. Going through a-fib and being coded at the hospital not beng able to breath...being at that place/thin line between life and death is really what helped. Since I have a DNR signed I wouldnt allow paddles to be used but did agree to the injection to get the heart going right again. Ever since like I mentioned I'm at peace with which ever way my health turns to. The fatigue is awful like you said...if the doctors could get that and my pain to a more comfortable level that would be great.
Do you get any side affects from your sub-q? How many hours is each infusion?