Hypogammaglobulinemia - help for husband
Hi everyone. My husband has the above illness - he is now 58, and has had this for at least 30 years. He has had many bouts of pneumonia over the years, but is in general quite well. However, he has never stuck to a regular IVIG treatment as he says he finds it does nothing for him. Also, different doctors have prescribed different doses, and different times to take the infusions, which makes him very sceptical.
As he has got older, he gets tired very quickly and falls asleep whenever he sits down for a few minutes. He has no "get up and go" and finds it difficult to keep focused. He refuses to take any vitamin or mineral supplements, and is not interested in talking to others with the same problem, or reading up on any new information on this illness.
In recent months he has suffered from an eye infection which comes and goes. He has had medical treatment for it, but it returns. My big worry regarding his symptoms though is his general exhaustion and ability to sleep any time of the day.
Any thoughts on how I can help him?