Originally Posted by Suffering in OH
I suffer from fecal incontenence and it is so scary. I'm scared to go places and afraid that even if I'm wearing pads/diapers the smell will be evident. How does anyone deal with that issue? There is a new procedure called Interstim but has restrictions and seems pretty invasive to me. They insert basically a pacemaker in your back side and you carry this device around. Sounds too complicated for me and not sure Medicare will pay for it. I feel so alone since no one else I know has this. I feel so much better on these forums because I know I'm not alone. Mine was caused by birthing two big babies and constant constipation all my life. Once again, even wearing a diaper would cause odor -- is there tips on this?
I did the one thing I could figure out to do... I gave up on embaressment.
When I mess in public, no big deal anymore. I take my backpack to the restroom, clean up, and move on. My friends know my condition. It makes a world of difference having accepting friends. It's a life saver when I can ask a friend "Crap. Go get a diaper from my car! Please!", or not having to be cryptic or lie about why I need to run home before our spontaneous plans. It's also nice when they will occasionally joke with me about it (lovingly, nothing mean), humor makes it easier to cope.
I'm not sure if you can, but I can tell a few seconds before it happens. This at least gives me a chance to take a step back away from people.
Ignore people's reaction. Think about it... If their life is such that they need to make fun, judge, etc for a medical condition that you can't control, then they have much bigger problems than you do!
I stopped caring. My life improved dramatically when I did. I clean up when necessary, keep people around who are accepting, and enjoy my life.