Welcome to Healthboards and to the Infant Care board. I'm sorry that you are going through this and hope you find some answers.
I believe that you will have a better chance of finding info about the specific condition you are asking about at the Cardiac board, though. In general, I've found unless you've got a question that is more generic about babies, this board is more focused on generic info about raising a child (GERD, spit up, feeding, coughs, etc.). If you have some specific ailment with respect to your child you're usually better off going to that board. Once you get to the specific board you can do a search within that board for the topic you are looking for.
Good luck in your search for info!