My 13 month old was diagnosed with torticollis at 3 months old. We went to physical therapy 2 times a week for those 10 months. We ended up going to an Orthopedic Specialist 2 weeks ago. Well today he went for surgery on his sternocleidomastoid muscle, in which they cut a muscle in the neck. (we left the hospital at 11 am...and he's back to his self already) My question is has anyone else gone through this procedure, and if so what were your outcomes?
I have a friend who's child had torticollis. First of all, use maderma or something on the scar. This will help it fade and look more like a scratch when he gets older. After the surgery her son had full range of motion but still had to do some therepy to keep it. He still has probably a 5 degree tilt, but his balance and range of motion are fine today. She does daily excercises with him so that his muscles continue to stretch properly and remain strong. Hope that helps you.
Melissa- Thank you so much for that information. It really put me at ease to know that there is a positive outlook on all of this. His doctor said that he will go to therapy still, and that corrects it even more, as well as stretching at home. So I'm hoping with all that he'll improve as much as your friends child did. Again, THANKS for the info!!
Hello, I realize this is two years since your son had surgery for his torticollis, but our situation is so similar I had to inquire. My son is 13 1/2 months old and he was diagnosed with torticollis at 3 months. We have been taking him for 1 hour physical therapy seasons twice/week for the past 10 months. We started meeting with an ortho surgeon about 9 months ago. We have seen him three times since then and surgery has not been discussed. Nothing has been discussed other than we were told to continue physical therapy. Our therapist recently went to a torticollis convention where the speaker had 20 years of experience working with tort infant/kids. She recommended botox. We desperately want to give our son the brightest future possible and I would love to hear any feedback/recommendations you could provide. Do you suggest surgery? Do you know what age is the best for surgery? Was it your ortho surgeon who suggested the surgery? Any advice you could provide I would greatly appreciate. I hope your son is thriving in life and is doing well since the surgery.