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Old 07-04-2006, 07:51 AM   #1
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Re: Recently diagnosed with MRSA

MomaGin,

I have MRSA in my mastoid and am on vancomycin IV. All of the doctors I have talked to think I will need surgery to have the bone scraped. I was just wondering how things have turned out with your son.

Thanks,
Mike

Last edited by moderator2; 07-04-2006 at 07:58 AM. Reason: If you refer to the poster by name, quoting the post is not needed.

 
Old 07-05-2006, 10:16 AM   #2
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Re: Recently diagnosed with MRSA


My son is 18 years old now. What happened to him is this. He has had 17 surgeries on his ears. He had his mastoid scraped at one time. But that did not work, They had to go back in there and take his whole mastoid out. The infection ( MRSA ) was so bad that he lost some of his brain wall as well.
Now, it has been a year with no infection.
The only thing is, they can look at the x-rays and see that there are air pockets in there. They really don't know how bad it is until they get in there. My son lost all the small parts in his ear as well. Encus bone, and stapes, He lost his hearing as well.
What are the Dr.'s saying about your hearing? Please tell me more
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Old 07-06-2006, 06:09 AM   #3
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Re: Recently diagnosed with MRSA

Quote:
Originally Posted by MomaGin
My son is 18 years old now. What happened to him is this. He has had 17 surgeries on his ears. He had his mastoid scraped at one time. But that did not work, They had to go back in there and take his whole mastoid out. The infection ( MRSA ) was so bad that he lost some of his brain wall as well.
Now, it has been a year with no infection.
The only thing is, they can look at the x-rays and see that there are air pockets in there. They really don't know how bad it is until they get in there. My son lost all the small parts in his ear as well. Encus bone, and stapes, He lost his hearing as well.
What are the Dr.'s saying about your hearing? Please tell me more
I am sorry to hear about your son and the trauma he has been through. I hope he gets better soon.

Right now they are telling me that I will probably have to have the bone scraped and they are going to remove the skin graft and the ear drum. They think by leaving it open, the infection will have no place to hide. Then, when it has cleared up they may try to replace the ear drum again so I can hear better.

The original surgery was to enlarge the canal because of a skin problem I had that kept closing it off. I had contant ear infections and I suspect the MRSA was already colonized when they went in. They did not do a culture before the surgery. So the surgery cut out part of the mastoid, gave me a new ear drum, and put a skin graft all around the canal. This was in November of last year and it still has not healed properly. They found the MRSA about 6 months ago and have treated it with various antibiotics.

My hearing has always been bad because of the skin problem that ended up blocking the ear drum and giving me constant infections. I have hearing aids for both ears, but now the right one does not fit anymore after the surgery.

What were the symptoms he had from the severe MRSA? I am very worried that it is doing damage that I may not be aware of right now. Was there a lot of pain?

Thanks... Mike

 
Old 07-06-2006, 10:51 AM   #4
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Re: Recently diagnosed with MRSA

First off, Can you tell me how old you are? Also, how did this start?
My son never had earaches. He started having drainage in his ear. They put him on antibiotics after antibiotics. That never worked. They went in put tubs in 12 times. That never worked. So, they went in and scraped his mastoid. They did xrays and showed me where the air pockets were. They also opened up his ear canal, so that when he went to the Dr. he could do " surgery " in the office. What they do is clean it out and scrap off the dead skin.
As far as MRSA it is a bacteria infection. If they only found it 6 months ago, then you just have gotten it. They tested the drainage and that is how they found out that he had MRSA. No, he was never in pain. Just allot of drainage.
You never can tell what kind of damage that MRSA is doing to your body.
If you will do a search I am sure that you can find all kinds of information on the web.
My son's condition will not ever change. He will never be able to hear in that ear. He is doing very well in school. This is the first year that he was able to go swimming in our pool in 4 years. He does wear an eaar plug. Ryan doesn't have anything that he can wear a hearing aid. So you are very lucky
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Last edited by MomaGin; 07-06-2006 at 11:42 AM.

 
Old 07-07-2006, 04:10 AM   #5
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Re: Recently diagnosed with MRSA

Quote:
Originally Posted by MomaGin
First off, Can you tell me how old you are? Also, how did this start?
My son never had earaches. He started having drainage in his ear. They put him on antibiotics after antibiotics. That never worked. They went in put tubs in 12 times. That never worked. So, they went in and scraped his mastoid. They did xrays and showed me where the air pockets were. They also opened up his ear canal, so that when he went to the Dr. he could do " surgery " in the office. What they do is clean it out and scrap off the dead skin.
As far as MRSA it is a bacteria infection. If they only found it 6 months ago, then you just have gotten it. They tested the drainage and that is how they found out that he had MRSA. No, he was never in pain. Just allot of drainage.
You never can tell what kind of damage that MRSA is doing to your body.
If you will do a search I am sure that you can find all kinds of information on the web.
My son's condition will not ever change. He will never be able to hear in that ear. He is doing very well in school. This is the first year that he was able to go swimming in our pool in 4 years. He does wear an eaar plug. Ryan doesn't have anything that he can wear a hearing aid. So you are very lucky
I am 48 now. When I was in my early 20s I started getting infections in my ears. The doctors never cultured it, but just treated it with the normal antibiotics. Over the years, the antibiotics have become less and less effective. Even the newer ones no longer worked. So I just lived with the infections. They were in the external ear so they rarely got terribly painful like a middle ear infection does. But they did drain a little... not much. I never remember them doing a culture to see the bacteria type.

But with the constant infections for years, the ear drum began the scar badly which affectied my hearing. Also, the skin degenerated in the canal and eventually grew over the ear drum. And that is why I have the hearing aids. It is conductive loss.

My son (19) had MRSA in his ear that was successfully treated a couple years ago so that is another reason for me to believe that I was probably already colonized with it.

I have surfed the web to find MRSA information and none of it is good.

Thanks for replying...

Mike

 
Old 07-07-2006, 10:16 AM   #6
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Re: Recently diagnosed with MRSA

Do you REALLY understand what MRSA is? My concern is this. I wonder why they didn't take a culture from the ear to see exactly what it is that they are dealing with? Also, MRSA is very contagious. It does spread rapidly. My son also had a bug called psudnomas. ( Not spelled right ) But, it is an infection that attacks the bones. That is why he lost the back part of his skull. He had been fighting these ear infections sense birth. They did several surgeries to see if that would work. Nothing did.
The reason I said about a culture. Is they would not give my son antibiotics until that came back. He was on Vancyomicin, he had allergic reaction 2 weeks later. He was in the hospital for 4 days. He almost died with that. Then they put him on another one and it worked.
If there is anything I can answer for you let me know. I wish you the best of luck. By the way, where are you located at? Is this a specialists that is doing it? We got one. No one had ever seen the problems that my son had. It was that servere. We even went to Childrens Hospital. One of the top Notch, and they were confused. They had never seen it either
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Old 07-08-2006, 01:38 AM   #7
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Re: Recently diagnosed with MRSA

I was very troubled by reading all of your postings about MRSA, but not at all suprised. Working in the health care setting for 15 yrs. I am all too familiar with MRSA. It is very serious and don't let the word "colonized" mislead you. That only means that a person is asymptomatic-without symptoms, but very much still able to pass the organism to others. Actually, what I was surprised about was the young age of the persons diagnosed with MRSA. I am more used to seeing it in the elderly or immunocompromised patients. It just goes to tell me how this problem with MRSA continues to grow and am ashamed to admit that the reason we have these "super bugs" is due to over prescibing antibiotics, using the wrong antibiotics, not culturing the wound or drainage or infection first. I cannot believe with all the literature and continueing training for doctors that they are required to attend, they are still ordering antibiotics BEFORE doing a culture and sensitivity. Giving an antibiotic without knowing if the organism is resistant or sensitive to that particular organism is adding to the growing number of organism that are becoming resistive to our antibiotics. I am also suprised to hear that some are taking more than one antibiotic to treat the MRSA. MRSA is resistive to all antibiotics, the type of organism that it is-staph. A is also resistive to methicillin- the antibiotic of choice for staph. infections. So the only antibiotic to use is vancomycin. But beware, because there are now (and actually have been for some time, but the number is growing) some strains that are resistive to vancomycin as well. I cannot even say that more education is needed to get doctors to stop over using antibiotics, because the literature is out there and anyone in the healthcare field is more than aware of this growing problem. It is a combination of convenience and also the health insurance companies. It truely is sad- and I am sorry to hear of yet another victim of what we have perpertrated on ourselves over the course of time. There are actually some antibiotics that are under close watch by the CDC and one must have very specific symptoms and diagnosis for getting these antibiotics, and their use MUST be reported to the CDC because they fear misuse and overuse and then the antibiotic will be useless. These antibiotics are out there, but reserved, and rightfully so. Why is it taking so long to clear the MRSA? If it is not vanco. resistive, it may take awhile, but should clear, or at least colonize.

 
Old 07-08-2006, 05:54 AM   #8
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Re: Recently diagnosed with MRSA

As a stated before, My son at the age of 6 months started to have ear infections. He is now 17 years old. They had him on so many antibiotics. I have his entire medical records and it is sad all the antibiotics that they have given him. They put tubes in after tubes. I finally moved from Tn. To Va. I got a specialists from DC. He does shows on Discovery Channel. He also has brought back peoples hearing that have not been able to ever hear. With my son's case, it was very unusual. He had all kinds of different infections in his ear. And was treated with various antibiotics. The first before he got MRSA was sudeonomas Bug, That was another "Super Bug " it attacked his bones. They did surgery to scrap the mastoid to get rid of it. They did that twice. It didn't work. Then they went in and took his encus, stapes, and all the little bones in his ear. That didn't work. He has had 7 Right Tempomastoidnecomy's.
Then they went in and took part of his mastoid out, that didn't work, Then they went in and took all of his mastoid and the back part of his skull. It was all damaged. When He had MRSA and they put him on Vancyo he had allergice reaction and almost died. They then out him on another med and that worked. We go back to the Dr.'s every 3 months. He opened up his ear canal to where when he goes to look in his ear, they do in office surgery everytime. They do what is called a debridgement. They take the dead skin out. I talk to everyone what happened to my son. It is very serious.
When he got MRSA, they did n xray and found that the MRSA was spreading to his brain, they did emergency surgery to save his life. I am so thankful that this has came to an end. I am very careful now because of this Major disease.
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Old 07-10-2006, 03:53 AM   #9
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Re: Recently diagnosed with MRSA

OMG-------- i have been searching everywhere and did not put MRSA together with this whole lengthy diagnisis my daughter's dr gave her. she is 34, 2 kids and pretty laid back life. got a pimple on her butt cheek which just kept growing. thought it was a cyst or boil and became very painful so she saw the dr and he lanced it. did a culture and it came back with MRSA. she is petrified. treating it with bartrim and has to see an infectious disease specialist. where and how do you get this? she has always been healthy accept for many sinus and ear infections especially in the past year. her husband had a boil on his knee which was lanced twice but the dr. never did a culture. i;m wondering now if he has it and didn't know. i have searched the web and can't make sense of what i am reading. can't imagine how or where she got this. please keep this going. we are at our wits end with all the questions and fears.

Last edited by ICC; 07-10-2006 at 11:59 AM.

 
Old 07-10-2006, 11:07 AM   #10
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Re: Recently diagnosed with MRSA

Here is what I found on the web:
MRSA abscesses typically are red and raised, can be the size of gumballs to golf balls and are filled with pus. These boils can appear anywhere on the body but more often appear on the backs, legs, buttocks and arms.

Infectious Diseases in Children - MRSA infections on a sharp incline among the healthy
Document Title: Infectious Diseases in Children - MRSA infections on a sharp incline among the healthy
File Name: mrsa.asp
Abstract: Dermatology MRSA infections on a sharp incline among the healthy Boils, pneumonia and occasionally necrotizing fasciitis caused by MRSA found to be increasing among healthy people. by Tara Grassia Staff WriterNovember 2004. Methicillin-resistant Staphylococcus aureus (MRSA) is emerging as a cause o
Rank: 184

I hope this helps. MRSA is a bacteria infection. We all carry it in our bodies. Some people just can't seem to fight it off
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Old 07-10-2006, 12:01 PM   #11
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Re: Recently diagnosed with MRSA

Have done alot of research today myself and some worse than others on this MRSA. we think my son-in-law might have had it months ago. a boil on his knee had to be lanced twice but the dr. never took a culture. thank God my daughter's did. they are more worried about their children than anything. one is 6 and one is 4. how do you stop this horrible thing from spreading in families?

 
Old 07-10-2006, 01:37 PM   #12
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Re: Recently diagnosed with MRSA

Everybody has to be allot more cleanier then ever before. For the person that has MRSA, they are more or less isolated. They have to have thier own towels, soap, etc. Never use anything after they have sed it. WHen that person is done, Wash it. Don't let it lay around.
Hand santitizer. Use it all the time. I washed my sons sheets on his bed like 4 times a week. All it is is Bacteria. Just make sure that you are very clean, and do not share
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Old 07-11-2006, 04:26 AM   #13
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Re: Recently diagnosed with MRSA

thansk momagin-------my daughter keeps saying to me " i am the cleanest person in the world, my skin on my hands is so dry because i wash them constantly" yeaterday we had them over for dinner and cake for her birthday. i had a box of surgical gloves in the house so we teased her a little. i know she doesn't share towels but sometimes her kids jump in her bed in the morning. will tell her to change her sheets more than once a week. she does have the area covered as it's still oozing a little. her kids pediatrician is going to do a nose culture this morning so i'm sure that will ease everyone's minds. thanks sooooooo much for all your help.

 
Old 07-11-2006, 09:18 AM   #14
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Re: Recently diagnosed with MRSA

Well, if it is still ooozzing, Watch that closely. That is where all the bacteria is. Good luck and keep me posted
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Old 07-12-2006, 03:55 AM   #15
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Re: Recently diagnosed with MRSA

momagin----wound has started to itch alot so i am assuming it is healing. been on bactrim since they found out what it is and on keflex before that. husband and kids had nasal swabs done yesterday as a precausion. just praying alot that's my daughter beats this and my grandchildren don't get it.

 
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