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Old 03-19-2010, 06:43 PM   #1
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britt90 HB User
mystery fevers... PLEASE HELP

please help my boyfriend and provide some medical advice. my boyfriend is 23 years old and his quality of life is being greatly diminished due to fevers of unknown ideology. my boyfriend was born with a bicuspid aortic valve. he had many strep throat infections as a kid. he used to drink heavily as a teen. for a few years now he's been getting these intermittent fevers that disappear after 48 hours. they appear with chills, soaking night sweats and body aches. when we started dating it got worse. these fevers start appearing every two weeks. he would know the fever was coming that morning. he got pain in his head and eyes. he would feel weak and get terrible chills and night sweats that were soaking wet. i brought him to the hospital and they wrote it off as tonsillitis because they got inflammed at the time of the fever. since these cyclical fevers kept recurring i brought him to an internist. he tested him for lupus, lyme disease, strep, did blood cultures and a variety of other tests. his aso titer was very high so they dismissed it as strep and gave him 10 days of amoxicillin. his lyme titer was also high. he was referred to an oncologist who told him he had lyme disease. he then went to an infectious disease specialist who treated him with 28 days of doxy. the fevers still persisted. strep throat cultures always came back negative. hospitals wrote him off and no one cared. the fevers truly resemble a cycle. they come on at night and it is followed by a period of good health. it's every 2-3 weeks. he saw another infectious disease specialist who said he never had lyme and if he did doxy would've knocked it out. he was told by his gp that he had ehrlichiosis because the titer was elevated but the doctor said doxy would have killed that too. even without the fevers he is plagued with dizziness and headaches. he had an echo done to rule out endocarditis. he truly is suffering endlessly. what could cause fevers of this pattern? every 2 weeks with a period of wellness in between? the new infectious disease specialist said this sounds inflammatory. he lives in ny, a heavily tick infested area. is the high aso titer a clue? he is 23..i thought a little old for rheumatic fever. the c reactive protein was also very high! please help! what do you think is causing these intermittent fevers?!

 
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Old 03-23-2010, 02:41 PM   #2
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Re: mystery fevers..PLEASE HELP

Quote:
Originally Posted by britt90 View Post
please help my boyfriend and provide some medical advice. my boyfriend is 23 years old and his quality of life is being greatly diminished due to fevers of unknown ideology. my boyfriend was born with a bicuspid aortic valve. he had many strep throat infections as a kid. he used to drink heavily as a teen. for a few years now he's been getting these intermittent fevers that disappear after 48 hours. they appear with chills, soaking night sweats and body aches. when we started dating it got worse. these fevers start appearing every two weeks. he would know the fever was coming that morning. he got pain in his head and eyes. he would feel weak and get terrible chills and night sweats that were soaking wet. i brought him to the hospital and they wrote it off as tonsillitis because they got inflammed at the time of the fever. since these cyclical fevers kept recurring i brought him to an internist. he tested him for lupus, lyme disease, strep, did blood cultures and a variety of other tests. his aso titer was very high so they dismissed it as strep and gave him 10 days of amoxicillin. his lyme titer was also high. he was referred to an oncologist who told him he had lyme disease. he then went to an infectious disease specialist who treated him with 28 days of doxy. the fevers still persisted. strep throat cultures always came back negative. hospitals wrote him off and no one cared. the fevers truly resemble a cycle. they come on at night and it is followed by a period of good health. it's every 2-3 weeks. he saw another infectious disease specialist who said he never had lyme and if he did doxy would've knocked it out. he was told by his gp that he had ehrlichiosis because the titer was elevated but the doctor said doxy would have killed that too. even without the fevers he is plagued with dizziness and headaches. he had an echo done to rule out endocarditis. he truly is suffering endlessly. what could cause fevers of this pattern? every 2 weeks with a period of wellness in between? the new infectious disease specialist said this sounds inflammatory. he lives in ny, a heavily tick infested area. is the high aso titer a clue? he is 23..i thought a little old for rheumatic fever. the c reactive protein was also very high! please help! what do you think is causing these intermittent fevers?!
He was seen by an infectious disease specialist so that's a good start--they specialize in fevers of unknown origin. If he has a bicuspid aortic valve, they really need to rule out endocarditis (i.e. infection on the aortic valve). I'm sure they've done an echocardiogram...have they done a trans ESOPHAGEAL echo where they stick a probe down in to the esophagus to take a better look at the heart?!

When's the last time he saw the infectious disease guy? Did he get the 10 day course of amoxicillin before or after his blood cultures were taken? Streptococcus species are known to cause endocarditis, especially in people who have abnormal heart valves. Also has he had a CT of his chest/abdomen?

Please try to answer all the questions.

 
Old 04-08-2010, 02:24 PM   #3
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chlobo HB User
Re: mystery fevers..PLEASE HELP

I would find a lyme literate medical doctor. Sounds like her might have lyme & co-infections, especially if his titers were high. 2 weeks of doxycyclene likely wouldn't help at this point and he needs an aggressive plan of action. There is a Lyme disease board here where you can probably get information about a doctor in your area.

 
Old 07-05-2012, 02:32 AM   #4
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Abcanada HB User
Re: mystery fevers..PLEASE HELP

[QUOTE=britt90;4207649]please help my boyfriend and provide some medical advice. my boyfriend is 23 years old and his quality of life is being greatly diminished due to fevers of unknown ideology. my boyfriend was born with a bicuspid aortic valve. he had many strep throat infections as a kid. he used to drink heavily as a teen. for a few years now he's been getting these intermittent fevers that disappear after 48 hours. they appear with chills, soaking night sweats and body aches. when we started dating it got worse. these fevers start appearing every two weeks. he would know the fever was coming that morning. he got pain in his head and eyes. he would feel weak and get terrible chills and night sweats that were soaking wet. i brought him to the hospital and they wrote it off as tonsillitis because they got inflammed at the time of the fever. since these cyclical fevers kept recurring i brought him to an internist. he tested him for lupus, lyme disease, strep, did blood cultures and a variety of other tests. his aso titer was very high so they dismissed it as strep and gave him 10 days of amoxicillin. his lyme titer was also high. he was referred to an oncologist who told him he had lyme disease. he then went to an infectious disease specialist who treated him with 28 days of doxy. the fevers still persisted. strep throat cultures always came back negative. hospitals wrote him off and no one cared. the fevers truly resemble a cycle. they come on at night and it is followed by a period of good health. it's every 2-3 weeks. he saw another infectious disease specialist who said he never had lyme and if he did doxy would've knocked it out. he was told by his gp that he had ehrlichiosis because the titer was elevated but the doctor said doxy would have killed that too. even without the fevers he is plagued with dizziness and headaches. he had an echo done to rule out endocarditis. he truly is suffering endlessly. what could cause fevers of this pattern? every 2 weeks with a period of wellness in between? the new infectious disease specialist said this sounds inflammatory. he lives in ny, a heavily tick infested area. is the high aso titer a clue? he is 23..i thought a little old for rheumatic fever. the c reactive protein was also very high! please help! what do you think is causing these intermittent




Im 20 and i have exactly as discribed here for a year and two months, my lymph nodes on both sides always swell up in 2 weeks and i get cold chills and fevers that are unbareable and every joint on my body snaps so easily, and i also know the previous day when im gunna be feverish. Like i said this has been on going on for a very very long time and ive seen doctors who seem to know nothing about this, blood work is fine full physical comes back normal. Im so fustrated and tired of it if u learn anything or he gets better somehow please please let me know how he got better cause i want my life back .

 
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