I am posting because I'm trying to find answers for myself.
I am a 26 year old adult female who had a test positive for Parvovirus B19 last May. I seem to have contracted it on the big Island of Hawaii where I was a volunteer with the National Park System. I had to end my term with the parks because I became ill there. I began to bruise easily on my skin and muscles and then got random hiccups, had visual changes - floaters, static, and bright sparks, intense fatigue, swollen saliva glands and lymph nodes. Then the most apparent symptom, myoclonic jerks and muscle fasciculations, started at which point I had to leave to go back to mainland America.
After this, other symptoms emerged, a dry persistent cough, very dry eyes, folliculitis on the skin on my arms, upper torso, and neck which actually may be small vasculitis, low B12 level, a lymph node behind my ear that has been swollen for about 10 months with no pain or tenderness, random pain in arms/hands/legs/abdomen, red/itchy palms, bad acne, muscle vibrations, waking up with numbness or tingling in the hands/arms, poor digestion, the diagnosis of an egg allergy and a few other allergies, dizziness and more.
I have done everything I can to try to find someone who can tell me what is wrong with me or if there is any cure for me. My symptoms have generally become less severe since my illness began, but it's been a year since I got sick and I'm still not healthy enough to live a normal live, hold a job, etc. I have seen many family doctors, specialists, and I have even spent a week at the Mayo Clinic. Everyone I have seen has told me it was either stress or some unknown virus (I guess because they thought Parvo could not possibly give me the symptoms I had, but just a little searching on the internet has made me realize it can). They have told me that as long as I'm getting better I shouldn't worry about it. But my life is in ruins compared to how it used be, I am constantly putting up with random symptoms and I never know how I'm going to be from one day to the next. Not to mention the anxiety of having an illness that no one will diagnose for sure and wondering what it's doing to my body as I search for answers.
I recently found out that adult Parvovirus could present differently in adults than in children and not many doctors seem to be aware of it. I also found out that it could trigger an autoimmune disease. For the longest time I had no idea what was wrong with me and all the doctors discounted Parvovirus for many months, but now I have a hunch that it may all go back to Parvo.
I am trying to find a specialist in this as no one has been able to help me and I really need help. If anyone has any information that they can give me, or if they can please post back with similar experiences, coping strategies, or anything else, it is greatly appreciated.
I also live in NC and was diagnosed recently. How is everything going for you? Any comications? First I had a rash, it faded, then extreme joint pain for about a week. I thought it was over, but continue to get a rash that gets worse with sun exposure, exercise, or any heat really. It is quite frustrating because the rash is now itchy like my skin is allergic to everything, even sunlight. Did you get lab tests and have your values returned to normal? Just curious.
I also live in NC and was diagnosed recently. How is everything going for you? Any comications? First I had a rash, it faded, then extreme joint pain for about a week. I thought it was over, but continue to get a rash that gets worse with sun exposure, exercise, or any heat really. It is quite frustrating because the rash is now itchy like my skin is allergic to everything, even sunlight. Did you get lab tests and have your values returned to normal? Just curious.
I am looking for help with this right now...I awoke last week with severe joint pain all over my body, only a slight lacey rash on my arms. I don't thin ki had a fever, definatley not a rash on the face. I am terribly tired....i have another dr appt thursday. they tested for thyroid issues but it came back fine. I am thinking it could be this parvovirus....any thoughts. the dr also said it could be depression. I know it's not!! I am afraid that they will chalk it up to that if they can't find anything else. I am miserable. I can't hardly walk around and I am having a hard time picking my baby up because my fingers / wrists hurt so bad.
I am curious if you (the original poster) still are having symptoms of parvovirus. I have had it since early January and possibly before then. It seems to be getting worse instead of better...now I have excruciating joint pain at times, mostly in the mornings. Are any of you from anywhere near Greensboro, NC? I now know two other people here with parvo... I have also noticed a lot of adults on this message board are from NC...
I have tested positive for Adult Parvo 19. Symptoms (all over joint pain) presented a month ago, bloodwork was positive for Parvo (IgM 7.8, IgG 4.9) two weeks ago. Currently taking Mobec for joint pain. I am waiting for this to run it's course, but am getting tired of waiting. It has really flared in my right wrist causing it to me numb and tingling, especially at night.
Curious to see if previous posters are well now. I want to be retested to see if numbers are coming down....at least I will have hope that it is going away.
My story is a little different. About 7 years ago i developed some kind of a virus or an upper resp infection or bad cold and cough. I don't remember exactly but my dr put me on an antibiotic. I was never the same since. After getting over the initial symptoms that brought me to the dr i started with extreme fatigue and just felt very ill. My legs and arms felt very heavy. I could barely stand up. Kind of like CFS. Then a few months later I started with bad stomach problems. I started my mission on trying to find out what was wrong with me. I got no answers. I started going to natural drs who diagnosed me with candida (overgrowth of yeast in the intestines) which causes havoc on the body. I had so many different symptoms. Then about 3 yrs later I started to get tingling on the top of my head, neck pain, eye twitching, buzzing in ear and a balance problem. I Continued with every dr you can think of. I got no answers. One of the drs I went to was a rheumy. They tested me for all kinds of viruses. Parvo virus showed as a past virus. I always wondered if maybe i have a post viral syndrome from that virus. The thing is that i have no way of knowing if that virus was what I originally had or that is just a past virus from some other time in my life and just did not know that I had it. i am still on my mission to find out what is wrong with me. one of the things that I wonder about is the possibility of Lyme disease. i have been tested for it and the blood work was negative but from all my research, you can have Lyme and test negative. Some of your complaints on this thread is very much lyme sounding. Has anybody been checked for that? Also, any input on past parvo causing all of my neuro symptoms? I would love input. p.s. i have a very long list of symtoms. To many to get into now. Thanks.LaLa
Adult Parvovirus B19 / Fifth Disease -Autoimmune Disease Trigger? 
