It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Infectious Diseases Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-25-2011, 12:49 AM   #1
Newbie
(female)
 
Join Date: Apr 2011
Location: Phoenix, AZ
Posts: 4
Khanso1 HB User
Valley Fever... anyone out there?

Hi All,

I'm new to this site, but I'm hoping to make connections with people who have been diagnosed with Valley Fever. I just found out some bad news from my infectious disease doctor this week--that i have the disseminated form of Valley Fever.

I also had a lung nodule which "burst" (not sure of the correct medical terminology for that one), which caused my left lung to collapse a few months ago; and, of course, there were quite a few complications from that happening. I'm doing "all right" right now, but it'd be great to message those who've had to deal with this disease. Thanks

 
The Following User Says Thank You to Khanso1 For This Useful Post:
absolan (02-26-2012)
Old 08-27-2011, 09:48 AM   #2
Newbie
(female)
 
Join Date: Aug 2011
Location: APPLE VALLEY, CA., USA
Posts: 1
demwhit HB User
Re: Valley Fever... anyone out there?

Hi: I hope you are doing better. I was diagnosed with Valley Fever in the early 1970's while in Scottsdale, AZ. in High School. I was pretty sick, but got better after a few months. I didn't have problems while living in Palm Springs, CA. while growing up, but since moving to Apple Valley, CA. have been very ill. The Valley Fever had come back and I was diagnosed with blood clots in my lungs; didn't come from my leg, it's a mystery where they came from. I have not ever smoked either, so that was not a factor. I'm now on oxygen full time, and on breathing treatments with a nebulizer as needed. I can't tell you why the Valley Fever came back, but I'd be happy to talk to you about my experience with it.

 
Sponsors Lightbulb
   
Old 09-05-2011, 02:08 PM   #3
Senior Member
(female)
 
Join Date: Dec 2006
Location: Oregon
Posts: 124
jlsp HB Userjlsp HB User
Re: Valley Fever... anyone out there?

Hi. Just read your reply to Khanso1. I hope she is doing well and also that you are also having pain free days. I also have VF and I am amazed how there are so few posts on this disease but then of course, VF is not very well known in the non epidemic areas of the USA. I recently moved to Portland, Oregon from Phoenix and have not found one doctor who knows or cares about this disease but I am still searching. I was wondering of you were ever tested for the cocci meningitis? Also, do the nebulizer treatments give you headaches? Take care and nice to meet you.

 
Old 09-05-2011, 02:11 PM   #4
Senior Member
(female)
 
Join Date: Dec 2006
Location: Oregon
Posts: 124
jlsp HB Userjlsp HB User
Re: Valley Fever... anyone out there?

I also have Valley Fever with the lung nodules and would be happy to share my experiences with you in any way I can help. I lived in Phoenix but now live in Oregon. I hope you are still doing well. This disease can really change lives. Good luck.

 
Old 11-05-2011, 08:12 AM   #5
Newbie
(female)
 
Join Date: Nov 2011
Location: Scottsdale, AZ
Posts: 8
Kdezi HB User
Re: Valley Fever... anyone out there?

Hi...I am also a newbie to this board, and am from Scottsdale AZ. I had a biopsy of a 2.5 cm nodule on my right lung, and was diagnosed with asymptomatic Valley Fever yesterday. I was so relieved it was a benign nodule. I have not been ill, and the blood test for VF was negative! The nodule had been discovered on a routine chest x-ray.

My doctor decided to treat the disease with Diflucan tablets...400 mg/day. Is anyone else taking this med to treat the disease? Karen

 
Old 11-05-2011, 08:14 AM   #6
Newbie
(female)
 
Join Date: Nov 2011
Location: Scottsdale, AZ
Posts: 8
Kdezi HB User
Re: Valley Fever... anyone out there?

Hi...I am also a newbie to this board, and am from Scottsdale AZ. I had a biopsy of a 2.5 cm nodule on my right lung, and was diagnosed with asymptomatic Valley Fever yesterday. I was so relieved it was a benign nodule. I have not been ill, and the blood test for VF was negative! The nodule had been discovered on a routine chest x-ray.

My doctor decided to treat the disease with Diflucan tablets...400 mg/day. Is anyone else taking this med to treat the disease? Karen.

 
Old 11-05-2011, 01:43 PM   #7
Senior Member
(female)
 
Join Date: Dec 2006
Location: Oregon
Posts: 124
jlsp HB Userjlsp HB User
Re: Valley Fever... anyone out there?

Yes. I am taking 400mg of Fluconazole a day, the generic for Diflucan. You have a great doctor to start you on the medication even though you were asymptomatic. They discovered my nodule on the left lung the same way as you only my pulmonary specialist did not start me on the medication and 5 months later I was admitted to the hospital with chills, high fever, pneumonia, more nodules on my left lung and a terrible rash on my ankles and my wrist; all related to Valley Fever. Anyway, you will have some ups and downs with the medication but eventually things pan out. Feel free to ask me any questions; I am a pro with this disease by now...ha, ha. If you google valley fever survivors, etc., you will find other resources. The thing to remember about Valley Fever is to not give in to the things you read that are negative about this disease. So many people do and then they panic and just give up. Oh, and this is Valley Fever Awareness week. There is a lot of things going on in Sun City West right now to try and generate funds for a cure. I think there is a walk going on today too, and some booths set up, etc. I was living in Phoenix when I got it and now I live in Portland, Oregon. All the best!

 
Old 11-05-2011, 02:55 PM   #8
Newbie
(female)
 
Join Date: Nov 2011
Location: Scottsdale, AZ
Posts: 8
Kdezi HB User
Re: Valley Fever... anyone out there?

Thanks for the quick reply. Wow, you have had a rough go with the illness. I hope you are feeling better now. I am not sure what you meant, though, about having ups and downs with the medication. I hope you can elaborate.

Thanks also for the information about VF awareness week in Sun City. I am sure there will be some good information available. I will also take you up on asking questions. Do the nodules ever disappear?

Karen

 
Old 11-05-2011, 03:31 PM   #9
Senior Member
(female)
 
Join Date: Dec 2006
Location: Oregon
Posts: 124
jlsp HB Userjlsp HB User
Re: Valley Fever... anyone out there?

Thank you. It's been a long battle but there is light at the end of the tunnel as I am much better than I was a year ago. I don't let this disease define who I am; and a lot of people just sort of give up once diagnosed. Anyway, I began Fluconazone last April and by August my hair began to fall out. It also causes your lips to be chapped and dry; nausea, diarrhea and vomiting in some people. Some people feel dizzy when they stand up when they are on Diflucan or Fluconazole. I didn't get the vomiting but I did get dry, cracked lips and the hair falling out wasn't much fun. You might have a change of taste in your mouth too. The thing is, is that a lot of times the medication side effects are a lot like the symptoms of the Valley Fever. It's harder on older adults. I'm 61 so by the time I was treated with the medication my immune system was pretty much compromised. I stopped the medication for 7 days once and I immediately got the Valley Fever rash back so I knew I wasn't in remission. The nodules never disappear but they do shrink. I had one shrink and then all of a sudden I had a bunch of satellite nodules (baby ones surrounding the first one) appear. Don't let these side effects frighten you. If you are asymptomatic I imagine your doctor will check that nodule again in 30 days and maybe you can get off the Dilflucan. If you have a good relationship with your doctor then be sure to communicate all your symptoms with him/her so she can determine if it's the medication of the VF causing changes. Anti-fungal drugs can cause liver damage in long term usage so make sure your doctor is checking your liver enzymes after 30 days on the medication. Hope this helps. I had a lot of people help me in the beginning so don't ever feel like you're bothering me...ok?

 
The Following User Says Thank You to jlsp For This Useful Post:
Kdezi (11-05-2011)
Old 11-05-2011, 04:34 PM   #10
Newbie
(female)
 
Join Date: Nov 2011
Location: Scottsdale, AZ
Posts: 8
Kdezi HB User
Re: Valley Fever... anyone out there?

Oh great...my hair may fall out. Well, I already have a few strikes against me. I have an autoimmune disease called Sjogren's Syndrome. We are called the moisture seekers, as the primary symptoms are dry eyes and dry mouth. I am 64, and prone to pneumonia, thus the routine chest xray. I also take 5 mg prednisone daily to help manage this disease. So now I have another disease to contend with? Fun and games. I actually want to wait to talk to my rhumetologist before taking the diflucan...just to be safe. Oh, did I mention siezures? I take dilantin for that, and our pharmacist told me that diflucan raises the phenetoyn levels in your blood...another drug interaction. Through it all, however, I am still grateful for VF, considering that they thought the nodule might be malignant.

 
Old 11-07-2011, 05:11 PM   #11
Senior Member
(female)
 
Join Date: Dec 2006
Location: Oregon
Posts: 124
jlsp HB Userjlsp HB User
Re: Valley Fever... anyone out there?

I looked up Sjogren's Syndrome. One disease on top of the other, and then having to take a steroid too will be no fun with Valley Fever. I don't think that the Prednisone interacts with the Diflucan but with the VF itself. One of my infectious disease doctors told me try not to take steroids as the VF as they lower your immune system. Your infectious disease doctor will work with your RA doc and they will monitor you, I'm sure. They also say sugar should be avoided and antibiotics as much as possible because they also lower immunities and also, anything that increases blood sugar such as steroids will increase VF activity. I am also my lung nodules were not cancer. As time goes on I have learned to adjust to the VF even though so much of my life has changed. The main thing was keeping stress levels down as much as possible. VF love fatigue and stress and also causes fatigue and stress...roller coaster, huh? You'll do just fine.

 
Old 11-09-2011, 02:15 PM   #12
Newbie
(female)
 
Join Date: Nov 2011
Location: Scottsdale, AZ
Posts: 8
Kdezi HB User
Re: Valley Fever... anyone out there?

Thanks again for being so helpful in my first week with this diagnosis. I will continue to research VF, and work with my docs to manage both the Sjogren's Syndrome and the VF. I am scheduled for a blood test as early an next Monday. Stay tunned...and take care all.
Karen

 
Old 01-06-2012, 04:17 PM   #13
Newbie
(female)
 
Join Date: Jan 2012
Location: Cool, CA
Posts: 7
cooljudy HB User
Re: Valley Fever... anyone out there?

First posting. I will be getting caught up on the various Valley Fever threads in this Forum, but this thread seems the most recent.

I had a positive cocci blood test after multiple bouts of what we thought was bronchitis or pneumonia. First titer was 1:8 and first CT-Scan showed a "spot" on my lungs. We just repeated both tests after two months of monitoring. Scan shows "some improvement" but "no significant change" (duh??). My second blood test was just sent to UCDavis where they have a specialist who will "interpret" the latest results and get the information back to my primary care doctor, pulmonology doctor, and an infection disease doctor who have been working together on this case. I will consult with them next Wednesday. I am not taking in medications, just "resting".

Originally, I did not have all the "symptoms" I read about, but did have the sweats, loss of weight, cough, and fatigue. Currently I feel about 95% normal with just an occasional coughing spell and still needing naps for the fatigue. I believe I contracted VF in New Mexico where we go annually for the ABQ Balloon Fiesta. We are RVers and spend Jan-April in the deserts of Arizona and So. Cal.

Stay tuned for further updates.
-- CoolJudy

 
Old 01-06-2012, 08:07 PM   #14
Newbie
(female)
 
Join Date: Jan 2012
Location: Cool, CA
Posts: 7
cooljudy HB User
Re: Valley Fever... anyone out there?

Another new Forum member here with Valley Fever. I am early in the positive diagnosis process.

We are RV travelers and spend 4-5 months a year in the deserts of the Southwest and So. California. I think I was exposed in New Mexico during the ABQ Balloon Fiesta time in early October. Went through multiple diagnosis of bronchitis and pneumonia. Symptoms were not as extensive as others have had. I had the flu feeling, weight loss, night sweats, severe cough, shortness of breadth, and fatigue.

Got home Nov. 1 and saw my Dr. the next day. He had me do a chest x-ray and CT Scan which showed lung congestion and a "spot". I was familiar with VF and requested a cocci blood test which came back positive with a titer of 1:8. I had a second chest x-ray that confirmed the congestion was still present, but improving.

I have been seen by a pulmonology doctor (before the VF test results were known) so my Dr. has been consulting with both pulmonology and infection disease staff. We waited until this week to have a second CT Scan to see if there had been any change in the "spot". My doctor called and said it was still there so they ran a second cocci VF blood test which they have sent to UC Davis researchers who are specializing in VF serology interpretation. I will consult with all my doctors next Wednesday when the results of the analysis is known. Healthwise, I am feeling about 95% normal but still have daily coughing spells and some fatigue after any exertion. Not on any treatment; just resting.

I will be following this thread and others to learn what might be ahead and so I can be proactive. Stay tuned...

-- CoolJudy

 
Old 01-10-2012, 08:42 AM   #15
Senior Member
(female)
 
Join Date: Dec 2006
Location: Oregon
Posts: 124
jlsp HB Userjlsp HB User
Re: Valley Fever... anyone out there?

Hi! I really think you need to be on the anti fungal med that is right for you either Fluconozole/Diflucan. I had all the same symptoms and was hospitalized in the beginning only to get much worse and then had to be hospitalized again 5 months later and receive infusions of Diflucan while admitted. I'm paying for my lack of treatment now with debilitating symptoms. Just a suggestion. I'm sorry you have this disease. It is NO fun! Take care...

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
High ASO Titer...rheumatic fever...need help DESPERATELY Victoria05 Infectious Diseases 20 02-25-2012 10:19 AM
Prescribed Diflucan for coccidioides (Valley Fever) jlsp Infectious Diseases 3 01-10-2012 08:34 AM
Possible Strep carrier/rheumatic fever snickers26 Infectious Diseases 2 02-07-2010 03:13 PM
Valley Fever? mikilynn Infectious Diseases 2 07-29-2008 12:36 PM
I was diagnosed with Q Fever over a year ago. mollymac Infectious Diseases 17 09-04-2007 09:12 AM

Tags
pneumothorax, valley fever



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



harka (14), jmw63 (5), JJ (3), jonnstar (2), jake22 (2), esorb11 (2), sjb (2), JamesV (1), xinerevelle (1), stepbystep89 (1)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (856), janewhite1 (823), Titchou (770), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (655), BlueSkies14 (610)



All times are GMT -7. The time now is 01:20 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!