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Old 06-11-2003, 08:58 AM   #1
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Pippin31 HB User
Angry Be very aware of Lupron!!!!!!!

O.K. girls, be aware, be very aware!!!!!!!!!!! I have posted many times about my Lupron use! 2 ½ years at almost twice the dose. I did my research before starting this drug and thought I asked all the right questions. I am finding more and more information post-Lupron unfortunately. One of the most common side effects (75%) is memory loss. What doctors tell us is that MOST of the side effects will go away after treatment. What they don’t tell us is that the rest of the “most” is permanent damage!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!
I was grateful for Lupron because it was the only thing that made the pain go away. But I tell you....Now, I don’t think I would have ever taken it!!!!!!! My side effects include hot flashes, mood swings, sleeplessness, weight gain, hair fell out, and memory loss. I contributed most of the side effects to stress. WELL..........It wasn’t!!!!!!! Now the latest problem since going off Lupron is intestinal pain and related problems.
I know I was on it for an extended period of time, but it is being reported by the 100's with just the normal 6 month use. This drug is actually so controversial with permanent damage that in CA, FL, and all the way into Canada, people are trying to get it off the market!!!!!!!!!!!!
I would hate for anyone to go into it blindly. I didn’t think I did, but like I said...I thought I could tolerate the side effects as long as I got back to myself after treatment! Some women report that after 8 years, they still are not back to normal and never will be!!!!!!!!!!! Please research EVERYTHING!!!!!!!!!!!! 10 times over and with 12 different opinions!!!!!!!!

 
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Old 06-11-2003, 12:58 PM   #2
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Pippin ~ that is great info. I have a 19 yo cousin who is on it and she is in horrible pain and has all sorts of problems. Were you taking it to put you into a temporary menopause state?

Any other info you can tell me about Lupron would be greatly appreciated.

TAZ

 
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Old 06-11-2003, 02:15 PM   #3
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Pippin31 HB User
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Yes I was. I was given Lupron for Chronic pelvic pain. I had one Lapro in which they found no endometriosis, however I was on birth control pills at that point. The second lapro. They found no endo., but I was on Lupron for 2 ½ years during that procedure. The doctor then told me they could have missed it because Lupron may have shrunk it! The problem is..if that is the case, it will come back as soon as my period does! Which by the way still has not occurred since my last shot 4 months ago!!
Here is a little of what I found.....

“With long-term studies missing, the obvious question is: just how many women who were ill when they started taking Lupron did not have the capacity to reverse the effects of Lupron treatment - in other words, to get back the full capacity of the pituitary.
1. There are some leads that researchers must follow. Common symptoms of pituitary disorders include irregular menses, sexual dysfunction, infertility, changes in physical appearance, and unexplained mood changes. These are the types of complaints some women have after stopping Lupron.
There is also no research to determine whether Lupron treatment "sticks." That is, does Lupron continue to affect certain receptors in the body, once treatment has stopped? Can Lupron continue to have an effect in certain susceptible women? “
2.
“Over the next five years, Hayward, a healthy, active postal worker, was given 18 more injections of the drug. Other curious health problems followed. She developed herniated discs, her body ached all over, and her memory worsened.
1. Two years after she stopped taking the drug, Hayward, now 43 and living in Carver, is on disability and has trouble remembering basic things, like conversations she had earlier in the day. She suspects Lupron triggered irreversible changes in her brain.
``I went to college and I feel like I am an idiot now, because I can't remember anything,'' Hayward said. ``There has to be some connection.''
Hayward is hardly alone.”
3.
“Scores of women nationwide have reported to federal health officials serious side effects from Lupron, a drug originally developed to treat men with advanced prostate cancer but now widely used to treat women for a variety of routine gynecological problems.
1. The serious side effects reported by women include tremors, seizures, memory loss and joint pain. The problem is, some women say these side effects are not going away - even after they stop taking the drug.
Lupron's manufacturer insists its product is safe. The Food and Drug Administration, the federal agency that approves drugs for public use, says the benefits from Lupron outweigh the risks.
But a growing number of women, women's health advocates and medical ethicists question that, saying the potent drug designed for men who have few other treatment options for advanced prostate cancer is being widely used on young, healthy women - without enough studies to show whether it causes long-term, and possibly irreversible, side effects.
``Lupron is something that sends a substantial number of women into a tailspin,'' said Judy Norsigian, program director for the Boston Women's Health Book Collective, a co-author of ``Our Bodies, Ourselves.'' ``It's one of the drugs that we feel has not been adequately assessed.''

I don’t think I can give the web pages? If I am incorrect, someone let me know and I will post the web site information. Otherwise, I will keep pasting the info here.
Hope this helps!!!!!!!!!!!!!!!!!!!!


 
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Old 06-11-2003, 02:31 PM   #4
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Thank you for the information I will pass it a long to my cousin. She started lupron treatments I believe last August. Since then she has had continuing abdominal pain, nerve damage pain, and she just had to have her right ovary removed. Again, she is only 19. The lupron was supposed to put her into a menopausal state but she continues to have bleeding. She also has horrible night sweats, mood swings, hot flashes, and is in constant pain.

Thanks again for the info,

tAZ

 
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Old 06-11-2003, 02:40 PM   #5
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hi pippin - thank you for this info - i am on my third day of lupron and i will only be on it for 31 days, however, it is good to know this information - best of luck to you! jen

 
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