Again, your history please - Inner Ear Disorders Message Board

Mica09 · 09-09-2004, 01:24 PM

Hi guys,

I know some of you will probably say - NOT AGAIN!!!

Would you like to write a small resume - in point form if possible -

1. How long have you been sick

2. First symptoms (How did it start)

3. Main symptoms

3. Possible diagnosis

4. Are you recovering. If yes, what helped the most.

This time I'll print the results so I won't forget.

Here's my history... again.

How long - 3 years

First symptoms - gradual - feeling of being pulled to one side
- 1 week after, 24/7 dizziness (no virtigo)

Main symptoms - dizziness 24/7 (borderline virtigo)
- 2 nights of virtigo (spinning -1 year into condition)
- 2 episodes of mild spinning in the past few months

Some periods better than others. At my worse:

Borderline virtigo
Desiquilibrium - feeling like I'm walking on a tightrope
Visual disturbance - fuzzier vision, eyes seem too slow to track movement
Feel pressure/numbness in brain when moving head
Very slight feeling of body moving when resting

Diagnosis No diagnosis

All tests are negative - MRI, CTscan, ENG, blood tests etc.

Not getting any better

treefarmer · 09-09-2004, 02:26 PM

Hi there MP,

Here's my contribution:
1. How long have you been sick: I'm in my 21st month

2. First symptoms (How did it start): violent room spins with nystagmus upon turning my head in a yoga class on Dec. 28, 2002.

3. Main symptoms: room spins when I turned my head that way (sort of tilted back and to the right), nystagmus, after about 3 months brain fog, anxiety, transposing letters, short term memory stuff, inability to recall some words, etc., all the usual cognitive junk, heavy head when under stress, trampoline walk, sensation of floaty motion when walking (driving, biking, everything else okay)

3. Possible diagnosis: diagnosed with right-side BPPV; ENG showed 22% deficit on right side. MRI was normal.

4. Are you recovering. If yes, what helped the most. Yes, and TIME. Unfortunately, it's all that seems to work with this stuff. Oh, and the brilliant Epley manuever. And a sense of humor, and an ever-developing sense of acceptance and patience. Mostly these days I'm at 98-100% on any given day, but it took me a good 15-16 months to get there, and there are still blippy days but they mostly serve to frustrate me and are nothing near the severity of the early days.

T

Walty10 · 09-09-2004, 04:12 PM

1. 5 months

2. a constant vertigo feeling

3. vertigo, lightheadedness, overwhelming sensation when looking at store shelves etc.

3. no diagnosis labs maybe?

4. yes... time and gaze fixation excercises

also had the MRI, Blood Tests, etc. im a healthy guy besides this.

studyin · 09-09-2004, 07:17 PM

Hi MP,

1. How long have you been sick: 1 year, 1 week, 4 days.

2. First symptoms: terrible debilitating viral illness lasting 4 weeks, strong disequilibrium and head fog at the onset.

3. Main symptoms: chronic disequilibrium lead to an acute anxiety disorder and some depression. Strong overall feeling of being ill but unable to put my finger on it, upsetting cognitive disturbances such as feelings of isolation, and feeling like a Salvador Dali painting - surreal! Tinnitus started at 6 weeks and continued for about 4 months. Muscular pain particularly at the neck and shoulders made worse by sitting at a PC.

3. Possible diagnosis: viral lab or vestibular neuritis. Had some BPPV type symptoms at one stage during the 10th month.

4. Are you recovering: YES definitely. The first +ve change came once I started taking an SSRI. Valium was good for attacks. Nothing else helped med-wise. Never stopped moving, exercising, and stayed on track with my life as best as possible. Refused to give in to the symptoms no matter how bad it got. Support was also critical for me. I couldn't have survived without my girl or my Mom on the other end of the phone or this healthboard!!!

5. Tests done: ENG and ECoG plus basic balance tests. ENG showed nothing, the ECoG showed excess fluid in the inner ears according to an otolarynologist but not at Meniere's level.

Best......Scott

kendallbella09 · 09-09-2004, 07:55 PM

hey MP, here goes-

1. 1 month exactly

2. dizziness, lightheadedness, vision changes, foggy head, cognitive interruptions

3. vision is still off (better in the middle of the day, bad in the dark)
dizziness after walking for a long period or reading for a long period
foggy head (trying to get rid of it, maybe it's working)
co interrup (I forget things mid-sentence, never did b/4)
ANXIETY and DEPRESSION and PANIC (can't eat, sleep, go in public places)

4. meniere's or who knows- just had the ENG

5. Sometimes I feel better, Sometimes I'm on the verge of checking myself in to the mental institution. I think this is gonna take some time to get over.

I did have a normal MRI