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Old 07-03-2007, 08:59 PM   #1
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centaur1201 HB User
Question for Subs & any with BPPV

Subs,
Hi! I am directing this question to you since you have been through this and I have appreciated your insight and support for others going through their recovery, and the few questions that I have asked you before that you have answered, I have always found the information very helpful.
A quick re-cap: I got very dizzy in October laying on the floor and turned head to the right. Thought it would go away but it didn't, so in Jan I went to an ENT in my area that advertised as a specialist in vertigo. He performed the Epley, gave me instructions on how to do them at home should I continue to be dizzy. It took me a month to work up the courage o do them, but in Feb. I started to do them daily and continued daily MEP's up until late May/June when, because it seemed I was doing much MUCH better, (many 100% days)I started to cut back to 1 MEP every two days.
Well, now here I am in a rough patch. From all the reading I have done on this site, my understanding is that this is normal and will happen. I get this funny feeling sometimes when I am sitting down like some one has pushed me forward, kind of like pitching forward in a boat hitting a wave. What is that? Is this recompensation?
Another question: Should I be counting my recovery from the date I was treated with the Epley at the Dr.'s Which, if I should, make it only six months into it for me. What can one expect at this point? (six months )
Yet another question: Should I go back to doing DAILY MEP's? Has cutting back brought on this rough spell? Or could it?
And one last question: Is/would vestibular rehab. exercises be usefull for a person with BPPV, or just a waste of time?
I have one last thing to add.
I am suspecting that I may have something else going on in my right ear besides BPPV, something maybe like VN. The reason is because it was after a cold with an ear ache, that this dizziness manifested. Well, last week my ear started aching again, and it had that "full" feeling (like when you are going up in altitude) and I want to pop it, it still is aching albit mildly, but I couldn't help but wonder.... Isin't VN caused by a virus attaching itself to the nerve of the inner ear? When this all started I had some other weird symptoms: It would be too much to list here.
Anyway, sorry for all the questions. It's just that I thought I was getting better, and now this *sigh*. I just want to get normal again. I seemed so close!

Last edited by centaur1201; 07-03-2007 at 09:01 PM.

 
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Old 07-04-2007, 06:58 AM   #2
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Subs30 HB UserSubs30 HB User
Talking Re: Question for Subs & any with BPPV

Hi Centaur

..."like pitching forward in a boat hitting a wave. What is that? Is this recompensation?".....

More likely then not it is a continuation of the compensation process....

...."Should I be counting my recovery from the date I was treated with the Epley".....

Yes.

...."What can one expect at this point? (six months )"....

If the rocks have cleared from the canal--u can expect the compensation process to continue---until ur 100% compensation-ed---which is a two steps forward one back---three forward one/two back etc.....as the brain(ur's) recalculates every thing this junk screwed up(which can be a lot or not so much)---from the time u first began to move---as an infant....


..."Should I go back to doing DAILY MEP's?".....

For me---after the MEP's had cleared the rocks---I continue to use them occasionally as a check---u can tell if the rocks are out---if the MEP does not cause any, repeat any probs in any position---from that point on---if used it is a maintenance/double check---and a personal choice....

...."Is/would vestibular rehab. exercises be useful for a
person with BPPV, or just a waste of time?".....

VRT is essential---to achieving 100% compensation---with any Inner Ear prob---and is the way---with BPPV u get there---make sure it is tailored to/for u....

..."Isin't VN caused by a virus attaching itself to the nerve of the inner ear?"...

Basically--true--but can be more then that---read the paper by the Doc---think I put it up(posted) when in the last four days.....

Remember---ur brain will have to go back and check/recalculate---most every thing---from when u first begin to move(in most cases)---and that takes time(some times a lot)---the way it is presented with those problems---to solve---is through---u attempting to make the movement---through VRT's---and u moving---about....


Last edited by Subs30; 07-04-2007 at 07:02 AM.

 
Old 07-05-2007, 04:26 AM   #3
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Join Date: Mar 2005
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redsands HB User
Re: Question for Subs & any with BPPV

Quote:
Originally Posted by centaur1201 View Post
Subs,
Hi! I am directing this question to you since you have been through this and I have appreciated your insight and support for others going through their recovery, and the few questions that I have asked you before that you have answered, I have always found the information very helpful.
A quick re-cap: I got very dizzy in October laying on the floor and turned head to the right. Thought it would go away but it didn't, so in Jan I went to an ENT in my area that advertised as a specialist in vertigo. He performed the Epley, gave me instructions on how to do them at home should I continue to be dizzy. It took me a month to work up the courage o do them, but in Feb. I started to do them daily and continued daily MEP's up until late May/June when, because it seemed I was doing much MUCH better, (many 100% days)I started to cut back to 1 MEP every two days.
Well, now here I am in a rough patch. From all the reading I have done on this site, my understanding is that this is normal and will happen. I get this funny feeling sometimes when I am sitting down like some one has pushed me forward, kind of like pitching forward in a boat hitting a wave. What is that? Is this recompensation?
Another question: Should I be counting my recovery from the date I was treated with the Epley at the Dr.'s Which, if I should, make it only six months into it for me. What can one expect at this point? (six months )
Yet another question: Should I go back to doing DAILY MEP's? Has cutting back brought on this rough spell? Or could it?
And one last question: Is/would vestibular rehab. exercises be usefull for a person with BPPV, or just a waste of time?
I have one last thing to add.
I am suspecting that I may have something else going on in my right ear besides BPPV, something maybe like VN. The reason is because it was after a cold with an ear ache, that this dizziness manifested. Well, last week my ear started aching again, and it had that "full" feeling (like when you are going up in altitude) and I want to pop it, it still is aching albit mildly, but I couldn't help but wonder.... Isin't VN caused by a virus attaching itself to the nerve of the inner ear? When this all started I had some other weird symptoms: It would be too much to list here.
Anyway, sorry for all the questions. It's just that I thought I was getting better, and now this *sigh*. I just want to get normal again. I seemed so close!
Hi
I saw your post and yes it sounds like a repeat performance for me- doing fine and whammo- if you follow the post on flying for redsands, you will see that mine seems so strange- in warm weather mainly, and after a 2 segment air plane ride. but it is hanging on w/ a vengence. I have a strange feeling that comes over me- like on top of my head and then I feel like faint- but I don't - but could feel nauseous- and of course then I will feel very very anxious- which doesn't help yes when I had a very bad bout 2 yrs ago- the Dr. did an eply and it helped. what I am having now isn't as bad as that- I don't have a complete vertigo when I lie down and get up quickly or turn my head to the right lying down. I just feel strange- like a week ago I felt like I was going to be dizzy( I was sitting in a car)- and it passed over- within 5 mins, but I felt shaky, and slightyly nauseated. since then I have just gotten the feeling of kind of a feeling over my ears and a general lousy feeling- slightly nauseous. So- My Dr, is making light of this- since I am not into vertigo and he can't make it come on( w/ eply)- he doesn't have much to offer. I can not accept that- My test didn't show any vestibular problems- so I was lumped into the BPPV and Etd category and given vrt which I do all the exercises faithfully, which I definitely feel must help- since this bout isn't as severe. Kind of afraid to do the epley my self- have you?\
How about dietary measures? Have you tried that- I have tried cutting out wheat, dairy- eating every few hours- don't think that is making it different.
Any ideas. Please keep in touch

 
Old 07-05-2007, 09:05 AM   #4
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curiouscat02 HB User
Re: Question for Subs & any with BPPV

Quote from Redsands: ..........since I am not into vertigo and he can't make it come on( w/ eply)- he doesn't have much to offer. I can not accept that- My test didn't show any vestibular problems- so I was lumped into the BPPV and Etd category and given vrt which I do all the exercises faithfully, which I definitely feel must help- since this bout isn't as severe. Kind of afraid to do the epley my self- have you?\ end of quote.

Redsands: I dreaded the Epley. Never went in to have it done at the ENT.
Too afraid of going into a huge V. attack again. Finally got up the courage to try it myself, thanks to several of the senior and veteran board members who helped me understand. I feel much, much better travelling, and in all head positions. Here's what I did, if it will help to know another's experience.

I didn't know which ear. it was suggested to lay down on one side, ear down. If dizzy on that side, it is that ear. That was the first thing I did. It seemed not so scary as doing a whole maneuver first thing. I laid down on my left ear and wham, the dizziness came. I gritted teeth, closed eyes and counted to 30 and by about 20 sec. it had stopped. I was still alive! I wasn't even nauseous. got up and called it a day. The next day I felt braver. Did the same thing again but then went to the first 45 deg. angle of the MEP and waited. Nothing. I moved my head slightly adjusting the angle, and got a short spin, 10 sec. Second position the next 45 deg. angle, and had a whirl, counted again, it stopped. I waited another 30 sec. and turned over, looking at the floor, for about two minutes or so. When I sat up, I felt somewhat dizzy suddenly for 2 sec. but nothing else. The next day I did exactly the same thing, same ear (the left). Very little bit of spinning and the next day none. Since then I can tell you, life has improved. Tinnitus much less. Today I did the other ear (rt.) and felt really odd afterward for a few minutes, but no spins. will keep doing it every day, 2X.

Hope this is useful. If not, charlotte's VRTs may be the answer. CC

 
Old 07-06-2007, 07:44 PM   #5
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Join Date: Feb 2007
Location: Milwaukie, OR.
Posts: 99
centaur1201 HB User
Re: Question for Subs & any with BPPV

Redsands-
Wow, your situation sounds a lot like mine. I too, can kind of sense when I'm going to be dizzy , sort of like a person with Epilepsy can sense an oncoming sezure (sp?). I really am not understanding this whole thing, and it is starting to make me very weary. Fortunately, today was a good day, and I only felt "swooshy" ( that's feeling like I'm swaying and woozy together) once and it passed quickly. )
It makes me angry that so many Dr.s just pass this off like we're imagining it! It is frustrating and one of the factors that keeps me from persuing any other tests to try to pinpoint what might be going on. So many people have said they have had every test known to man and still the Dr.'s are shrugging their shoulders.! Arrrrggghhhh! I mean, something real is going on here,we are feeling discomfort and having a terrible time. Our lives are disrupted, and in some cases put completely on hold! You'd think that all that schooling should have clued them in. Maybe they were sleeping through that part, I don;t know. (venting! venting !venting! )
Okay, I'm off track here.
I was terrified of doing the Epley myself, but I was really getting angry about feeling like a victim to this - disease(?) whatever it is, and to be honest I really think it was helping a lot. I have decided that I am going to have to go back to doing the Epley either everyday, or every other day , I think skipping several days was what has put me back. I have not really done any VT's, and don't know really what to do. Does anyone have any sujestions for me?

 
Old 07-06-2007, 07:47 PM   #6
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Join Date: Feb 2007
Location: Milwaukie, OR.
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centaur1201 HB User
Re: Question for Subs & any with BPPV

curiouscat-
GOOD FOR YOU! It takes sooooo much courage to lay back and do those MEP's, but you did it AND you're feeling better! I am so happy to hear that!
Take care!

 
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