Actually, I am happy to get replies from anyone on this board, but thought I'd direct my questions more towards the veterans on this board, since they have been around the longest, and might steer me in the right direction. By the way... to hbep... you have already been so helpful to me with your responses to my last post, so thank you!!
Anyway, I listed my vestibular symptoms on a previous post, and some thought it sounded a lot like I may have MAV. I have had the following symptoms for 2 and 1/2 years:
constant, 24/7 dizziness (swaying, rocking, feeling of head being pulled to one side or another, or like a magnet is in my head, pulling my head in various directions)
sometimes the dizziness turns in to full on, room spinning fun (but that's not too often)
constant, 24/7 feeling of being drugged, in a dream, trapped in my head, looking through a video camera lens, things seeming to be far away and too close, all at the same time. THIS FEELING IS THE MOST DISTURBING... way more upsetting than even the dizziness.
constant ringing in my ears... which sometimes gets louder when I have had sensory overload (lights, noises, lack of sleep, etc...) (NO HEARING PROBLEMS, or hearing loss, thankfully)
bad headaches on a daily basis, which move around to different areas of my head, and behind my eyes, and sinuses, etc.. but no history of sinus problems
extreme fatigue almost all the time
feeling lightheaded and faint
Anyway, with those symptoms in mind, I would like to ask if any of you know what I am talking about with the constant drugged, disconnected, dreamlike feeling??? This symptom really, really, REALLY bothers me and it is with me ALL the damn time... every second of every day and night.... and I am not just talking about brainfog where you can't remember things well, and your mind feels slow.... but rather a physical sensation of being drugged, trapped in your head, in a dream, looking through a video camera lens type of feeling.... It would help me so much if any of you could kind of detail your experience with this symptom, if you have had it.
Next, does VRT work for MAV?? If so, does it help a little, or a lot?
Finally, what is the longest you have gone with this drugged, dreamlike state being constant? For me, it has not let up in two and 1/2 years, except for three (count them... THREE) 12-hour periods over the past 2 and 1/2 years, where my head cleared of most symptoms for those 12 hours, and then everything came right back again. So I have never even had periods of real remission... and it worries me so much that I will forever feel dizzy, and drugged!! I can even handle the dizziness feeling better than the drugged, disconnected feeling....
Last, I am very medication sensitive... but I am willing to try some different MAV medications in the future.. but I cannot right now because I am 7 months pregnant. With that in mind, have MAV meds helped most of you a lot?? Or just somewhat??
I know you all can relate to the worry and anxiety I feel about this vestibular problem... and how great it is to get another's experience with this, so I know someone else is going through what I am going through. Hbep, I know you said you had almost my exact same symptoms for many months.... so I am wondering how many months you had these symptoms? I just feel like something has got to be wrong with me, to still have the constant dizzy and disconnected/drugged feeling after 2 and 1/2 years straight, with only three miniscule 12 hour periods of some relief!!!! What is going on with me???
Thank you everyone!!