I am totally with you Lara and understand your frustration (although you have had it longer than me). I've only had mine since March and I am completely fed up with it (and yes, insane too).
Generally speaking, I usually have a couple of bad weeks, and then one good week. Then a couple of bad weeks, and then one good week, etc... It does seem to be getting better in the sense that I don't have to live on Ativan like I did in the beginning. I couldn't even stand up at first, back in March/May without taking Ativan (anti-dizzy med). Now I can struggle through the day without it (but sometimes I still need it). During a decomp/blip (or whatever the heck it is), computers make me totally nauseaous and I feel rocky for an hour afterwards too. And also being in a crowd or where there is a lot of movement makes me sway more. It's so so lame. The most comfortable place to be during a blip is in bed, in the dark and quiet. Althought, I know, I know, I should still be out there making my brain "re-learn" how to deal with movement and that is what I usually end of doing but it's miserable.
I haven't done any VRT's yet. I want to wait until after my consultation with one of the best neurotologists out there - Robert Baloh from UCLA. I have an appointment with him next Monday and I can't WAIT to hear what he has to say. Is this VN? MAV? Both? The mystery is killing me!!
Anyway, sorry to go off on my own little tangent. Hang in there - we all understand what you are going through. I have been to all sorts of docs - ENT, GP, ER, ALLERGIST, and had tons of blood work and a CT scan, ENG test, balance test - all of them come back normal (excluding the Allergy testing which revealed that I have allergies to dust and dog hair). I do think allergies play a part in all of this by the way. Have you been tested? I think the allergies aggrivate the already damaged vestibular area or something. Who knows! This thing is all I seem to think about!! I am constantly questioning and talking to myself about this illness. I'm going insane too!
