I have read up on all the different inner ear problems and this one decribes my symptoms 100%. Also I have the feeling of being pushed down to one side (pulsion).
My appointment is the 3rd septemember with the audiologist, Iam feeling anxious.
Oscillopsia is not a diagnosis, it's a symptom, usually related to bilateral vestibular dysfunction, but much more common to unilateral injuries than most people said.
Moving objects from side to side and up(mostly) or "jumping vision" are the most common issues with this.
The pulling down(left, right, front or back) is also common, and both things are part of the typical vestibular symptoms, so don't worry, they're a bummer, pretty upseting, but quite in the harmless and normal range..
Hope your Audiologyst session gives you more info on this.
just found this old post of mine and am surprised because now I have had testing (this week) turns out I do have bilateral vestibular dysfunction !!!
My caloric test confirmed this.
Yesturday the hospital phoned me and asked me to visit my consultant this Tuesday .
What will happen next ? will I get pills to help me ?
I am feeling so alone with all this, please can any one tell me more about
bilateral vestibular ?
just found this old post of mine and am surprised because now I have had testing (this week) turns out I do have bilateral vestibular dysfunction !!!
My caloric test confirmed this.
Yesturday the hospital phoned me and asked me to visit my consultant this Tuesday .
What will happen next ? will I get pills to help me ?
I am feeling so alone with all this, please can any one tell me more about
bilateral vestibular ?
You can do vestibular rehab to strengthen your other sensory systems (vision and proprioception) and maximize your compensation. Bilateral dysfunction can take longer to compensate and does have less improvement with the therapy, but it can help a lot. Good luck to you!
thanks joni , I was thinking it couldnt get better so there is some hope I suppose.Also they said I am low functioning , so I take it I have some function there ? if this is the case (will find out tuesday) can I work on what function i do have ?
MSNK...I know of a woman who caught a virus when she was pregnant and has bilateral dysfunction. She is back to work full time! She has been doing vrts for over 1 year...
thank you for telling me that charlotte, it means alot to me to hear positive stories like this.I am struggling to do any work at the moment( i do 3 hours ).
I dont know how I got like this,I have had loads of antibiotics in the past and viruses. I hope my consultant will know how I got like this because I feel I need to know WHY ?
msnk....are you still dealing with oscillopsia? if so, how long has it been for you now? i have the horrible vision issues and it is about to drive me insane--along with the funny "off" feeling, imbalance, popping ears..blah blah blah....
hope you are better than the beginning of this?!?
Hi Alex , it has been 5 years for me now because my gp kept telling me it was anxiety ! Over them 5 years I would say I am 5 - 10% better than I used to be BUT Its still totally exhausting. When i walk down the street I feel like I am in a fuzzy world with things jumping in my vision, infact things jump so VERY fast that it terrifies me, I also feel like I cant walk straight and I am tired all the time because of the strain on my eyes.
Do you have this same problem Alex ? What diagnosis do you have ?
Hi Alex , it has been 5 years for me now because my gp kept telling me it was anxiety ! Over them 5 years I would say I am 5 - 10% better than I used to be BUT Its still totally exhausting. When i walk down the street I feel like I am in a fuzzy world with things jumping in my vision, infact things jump so VERY fast that it terrifies me, I also feel like I cant walk straight and I am tired all the time because of the strain on my eyes.
Do you have this same problem Alex ? What diagnosis do you have ?
hey, thanks for the reply! sorry to hear you have been dealing with this for so long---it is exhausting for me and i'm at 4 months. i don't really have a set in stone diagnosis as of yet, but the specialist is leaning toward MAV at this point, until the vestibular tests are done on the 25th. Mine is more like jumpy, shaky vision all day 24/7 even sitting still looking at something. I just dont understand how it could all be related to just migraine--uggh. i guess i will have to try my preventatives and see how it goes. Is yours just when you walk or all the time like myself? this is extremely frustrating, and all the other drs thought it was central nervous system related...but got my B12 up to where it needs to be and my brain MRI, EEG, and c/t scans came back fine--so whatever. good luck to you, let me know how things go...i know i just keep hoping to wake up like myself again. Do you have any other symptoms like the "off" feeling, lightheaded, ear stuff/pain/stuffiness?
yep , i get a pressure in my ears sometimes and buzzing,i will let u know what the consultant tells me on tuesday.
He was thinking i have mav but now i have bilateral vest dysfunction , im not sure ?
I have it all the time just like you do but walking is very difficult.
Your symptoms do sound vey much like mine, we must keep in touch!
looking forward to what your consulant has to say....and i will update you with the vestibular tests after the 25th or if i go ahead and start on the preventative for mav sooner. good luck to us!
please let me know what preventative you try and if it helps.
Good luck.
hey! i was prescribed neurontin or gabapentin. adamw on here is using that or had used it and is successful in treatment of MAV....however, i am unsure if this will help with our oscillopsia??
i will let you know!
I really hope and pray it works for you and will take a note of it to my consultant if he says I do still have mav, although I just cant get my head around the fact that Mav could cause Bilateral vestibular loss?
Here I have listed the questions I have written down to ask my consultant....
please can you tell me if I have missed anything .......
1) Why do I have low function in both ears ?
2) How much function do I have left ?
3) Is it true that I will never regain 100% ?
4) How much improvement can I gain from VRTS ?
5) can I have therapy here at the hospital ?
6) Because its been 5 years can I still improve ?
7) Do you still think I have MAV ?
Then discuss some more about my history ....
ie:when I was 19 years old I used to hear my own voice and breathing in my head and my ears were both blocked for 3 months, think it was eustation tube dysfunction so could that of damaged me ? And do I still have it ?
Yes MAV can most definitely cause bilateral vestibular dysfunction. If your hearing is still intact it is a likely cause.
Many of the syndromes that cause bilateral vestibular dysfunction also cause bilateral deafness.
You can still benefit greatly from preventatives if migraine is the cause regardless of whether you have no peripheral dysfunction, unilateral dysfunction or bilateral dysfunction.
Thanks for that Adam , my hearing is stil intact so I suppose it must be MAV ( i read its rare) but obviously reading these boards its not so rare after all.
I have the symptoms all the time , it really is crippling .
I hardly get headaches , just sometimes.
what are preventatives exactly ?
I read somewhere about propranalol but It makes me feel like my head hurts .
feeling very tearfull today ,any info much appreciated.
mnsk....i feel your worry...especially for you not having an answer after 5 years-- i was upset yesterday, i was not feeling well at all (which isn't unusual) but it sucks especially when you dont feel well on top of all the other junk. i have also read that that particular antibiotic can cause some problems, but i've never taken that specific family...but i did notice all this has gotten worse since i took some cephlacor and had an allergic reaction to it (however, i was already feeling weird when i took it...but it escalated the issue).
i would also ask your doctor if it is MAV and what type of preventative he would suggest. Preventatives are not the same as abortives (such as immatrex--those are just to treat it when it happens). Preventatives are supposed to nip this thing in the butt, from what i understand--or at least help once you find the right one for you. i still just dont understand how it is every single day, and the vision issues especially. but i am going for the preventative he gave me and see what happens.
i wish you the best of luck with all this, and i will definitely keep you updated with how things go...but i am still waiting to see if i have loss from the vestibular testing on the 25th...i am very anxious to see what comes of that.
hang in there....i know it is soooo hard...but i think with the right treatment, you can be back to where you should be!!!
