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Old 08-06-2007, 03:23 AM   #1
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oscillopsia ?

Hi does anyone have this diagnosis ?

I have read up on all the different inner ear problems and this one decribes my symptoms 100%. Also I have the feeling of being pushed down to one side (pulsion).

My appointment is the 3rd septemember with the audiologist, Iam feeling anxious.

 
Old 08-06-2007, 07:49 AM   #2
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Re: oscillopsia ?

Hi

Oscillopsia is not a diagnosis, it's a symptom, usually related to bilateral vestibular dysfunction, but much more common to unilateral injuries than most people said.

Moving objects from side to side and up(mostly) or "jumping vision" are the most common issues with this.

The pulling down(left, right, front or back) is also common, and both things are part of the typical vestibular symptoms, so don't worry, they're a bummer, pretty upseting, but quite in the harmless and normal range..

Hope your Audiologyst session gives you more info on this.

 
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Old 10-12-2007, 12:54 AM   #3
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Re: oscillopsia ?

just found this old post of mine and am surprised because now I have had testing (this week) turns out I do have bilateral vestibular dysfunction !!!

My caloric test confirmed this.

Yesturday the hospital phoned me and asked me to visit my consultant this Tuesday .

What will happen next ? will I get pills to help me ?
I am feeling so alone with all this, please can any one tell me more about
bilateral vestibular ?

 
Old 10-12-2007, 05:37 AM   #4
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Re: oscillopsia ?

Quote:
Originally Posted by mnsk View Post
just found this old post of mine and am surprised because now I have had testing (this week) turns out I do have bilateral vestibular dysfunction !!!

My caloric test confirmed this.

Yesturday the hospital phoned me and asked me to visit my consultant this Tuesday .

What will happen next ? will I get pills to help me ?
I am feeling so alone with all this, please can any one tell me more about
bilateral vestibular ?
You can do vestibular rehab to strengthen your other sensory systems (vision and proprioception) and maximize your compensation. Bilateral dysfunction can take longer to compensate and does have less improvement with the therapy, but it can help a lot. Good luck to you!

 
Old 10-12-2007, 05:41 AM   #5
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Re: oscillopsia ?

thanks joni , I was thinking it couldnt get better so there is some hope I suppose.Also they said I am low functioning , so I take it I have some function there ? if this is the case (will find out tuesday) can I work on what function i do have ?

many thanks for listening

 
Old 10-12-2007, 05:51 AM   #6
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Re: oscillopsia ?

MSNK...I know of a woman who caught a virus when she was pregnant and has bilateral dysfunction. She is back to work full time! She has been doing vrts for over 1 year...

Don't give up.

 
Old 10-12-2007, 07:38 AM   #7
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Re: oscillopsia ?

thank you for telling me that charlotte, it means alot to me to hear positive stories like this.I am struggling to do any work at the moment( i do 3 hours ).
I dont know how I got like this,I have had loads of antibiotics in the past and viruses. I hope my consultant will know how I got like this because I feel I need to know WHY ?

TAKE CARE

 
Old 10-12-2007, 08:10 AM   #8
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Re: oscillopsia ?

Hey, I totally understand. Heck, I feel the same way...I still don't feel 100% yet...and it has changed my life.

Just know that you can have plenty of colds/virus and they don't hit your ear. Then one day one does...that is what happened to me.

I know it stinks.

 
Old 10-12-2007, 11:50 AM   #9
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Re: oscillopsia ?

msnk....are you still dealing with oscillopsia? if so, how long has it been for you now? i have the horrible vision issues and it is about to drive me insane--along with the funny "off" feeling, imbalance, popping ears..blah blah blah....
hope you are better than the beginning of this?!?

 
Old 10-12-2007, 01:04 PM   #10
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Re: oscillopsia ?

Hi Alex , it has been 5 years for me now because my gp kept telling me it was anxiety ! Over them 5 years I would say I am 5 - 10% better than I used to be BUT Its still totally exhausting. When i walk down the street I feel like I am in a fuzzy world with things jumping in my vision, infact things jump so VERY fast that it terrifies me, I also feel like I cant walk straight and I am tired all the time because of the strain on my eyes.
Do you have this same problem Alex ? What diagnosis do you have ?

 
Old 10-12-2007, 01:26 PM   #11
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Re: oscillopsia ?

Quote:
Originally Posted by mnsk View Post
Hi Alex , it has been 5 years for me now because my gp kept telling me it was anxiety ! Over them 5 years I would say I am 5 - 10% better than I used to be BUT Its still totally exhausting. When i walk down the street I feel like I am in a fuzzy world with things jumping in my vision, infact things jump so VERY fast that it terrifies me, I also feel like I cant walk straight and I am tired all the time because of the strain on my eyes.
Do you have this same problem Alex ? What diagnosis do you have ?
hey, thanks for the reply! sorry to hear you have been dealing with this for so long---it is exhausting for me and i'm at 4 months. i don't really have a set in stone diagnosis as of yet, but the specialist is leaning toward MAV at this point, until the vestibular tests are done on the 25th. Mine is more like jumpy, shaky vision all day 24/7 even sitting still looking at something. I just dont understand how it could all be related to just migraine--uggh. i guess i will have to try my preventatives and see how it goes. Is yours just when you walk or all the time like myself? this is extremely frustrating, and all the other drs thought it was central nervous system related...but got my B12 up to where it needs to be and my brain MRI, EEG, and c/t scans came back fine--so whatever. good luck to you, let me know how things go...i know i just keep hoping to wake up like myself again. Do you have any other symptoms like the "off" feeling, lightheaded, ear stuff/pain/stuffiness?

 
Old 10-13-2007, 05:23 AM   #12
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Re: oscillopsia ?

yep , i get a pressure in my ears sometimes and buzzing,i will let u know what the consultant tells me on tuesday.
He was thinking i have mav but now i have bilateral vest dysfunction , im not sure ?
I have it all the time just like you do but walking is very difficult.
Your symptoms do sound vey much like mine, we must keep in touch!


xxx

 
Old 10-13-2007, 12:40 PM   #13
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Re: oscillopsia ?

looking forward to what your consulant has to say....and i will update you with the vestibular tests after the 25th or if i go ahead and start on the preventative for mav sooner. good luck to us!

 
Old 10-13-2007, 02:03 PM   #14
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Re: oscillopsia ?

please let me know what preventative you try and if it helps.
Good luck.

 
Old 10-13-2007, 08:57 PM   #15
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Re: oscillopsia ?

Quote:
Originally Posted by mnsk View Post
please let me know what preventative you try and if it helps.
Good luck.
hey! i was prescribed neurontin or gabapentin. adamw on here is using that or had used it and is successful in treatment of MAV....however, i am unsure if this will help with our oscillopsia??
i will let you know!

 
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