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Inner Ear Disorders Message Board
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Old 08-17-2007, 01:31 PM   #1
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aahinbda HB User
New here!

Hi everyone! I can't tell you how excited I was to find this forum. I just want to tell you my story:

Back in July of 2003 (July 9th, how could I possibly forget the day my life changed) I was sitting on the sofa with a friend, just chatting, and I stretched. I felt something "snap" in my ear and got the dizziest feeling. I was so dizzy I could not get out of bed for the next 3 weeks and when I finally managed to get mobile I was completely weak and lethargic.

Since that time I've battled dizziness, major fatigue, cloudy and unfocused head, and just a general feeling of being "off". Does this sound familiar to anyone?!

I feel so much for those who have been feeling like me, it makes life not worth living.

 
Old 08-17-2007, 01:57 PM   #2
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Re: New here!

Hi. I have dizziness for 3 years. It's the worst, isn't it? Mine came on suddenly too, however I didn;t feel a snap, just got really dizzy.
Have you been to any doctors? How old are you and do you have any other symptoms?

My dizziness is like an imbalance swaying feeling. I have it all the time and sometimes I go a week or so without it. But generally, I have this all the time. I also have tingling in the arms and legs, anxiety and I don't sleep very well. I am tired too. I have been to numerous drs all not knowing what is wrong since all tests are normal. I had and ENG- normal, VEP's - normal, brain scans, CT scans, normal. My one neuro says Vestibular neurits, others ay perhaps migraine disorder (although I don;'t get painful headaches), but most cannto give me an official dx.

Just wish I was back to my normal self again...
Rachel

 
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Old 08-17-2007, 03:24 PM   #3
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aahinbda HB User
Re: New here!

Hi Rachel,

Thanks for the quick response. I haven't been to anyone but my general practitioner when this all first happened, and he said it was probably just a virus. I did get an MRI at that time and it came back fine so basically everything was dismissed as being a psychological thing. That's so frustrating!!! I'm 33 now, was 29 when it happened and I haven't been the same since.

I'm constantly feeling foggy, like I can't open my eyes all the way and that I'm walking around off balance. I can't whip my head around anymore because it feels like my eyes are two seconds behind my head which throws my balance off. I friggin' hate this!!! I just want to be me again.

I'm so sorry you've been dealing with this for 3 years. How old are you?

Last edited by aahinbda; 08-17-2007 at 03:25 PM. Reason: Forgot something

 
Old 08-17-2007, 03:53 PM   #4
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Frodoh HB User
Re: New here!

Did you get an MRI of your neck?

Are you having any problems with your Jaw?

 
Old 08-17-2007, 04:42 PM   #5
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aahinbda HB User
Re: New here!

No, I don't think it was of my neck and yes, sometimes I get a stiff neck.

 
Old 08-17-2007, 05:29 PM   #6
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Re: New here!

You should go see a neuro-otologist. These doctors specialize in this area and could look further into what is causing this for you. Many people do have dizziness with anxiety/panic disorders, but there are also MANY causes not related to psychological causes and they can be treated. Keep searching for the right specialist for you and don't give up!
Joni

 
Old 08-17-2007, 07:30 PM   #7
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aahinbda HB User
Re: New here!

Thanks Joni! I'm definitely going to look for one straight away, this forum has opened my eyes to the options!

 
Old 08-17-2007, 08:50 PM   #8
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joy78 HB User
Re: New here!

Definatley don't just let the doctors tell you "nothing is wrong". there is something going on and you deserve to get some answers. Inner ear problems are usually looked over by GP's and even ENT's. You need to see a neuro-otologist. I never did and looking back on the situation i wish i had. I think it would have saved me months of fustrations.

You've been feeling bad for way too long to get some answers. I hope you find some
Joy

 
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